Table 4–2, Examples of possible baseline data elements - Registries for Evaluating Patient Outcomes

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Gliklich RE, Dreyer NA, Leavy MB, editors. Registries for Evaluating Patient Outcomes: A User's Guide [Internet]. 3rd edition. Rockville (MD): Agency for Healthcare Research and Quality (US); 2014 Apr.

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Registries for Evaluating Patient Outcomes: A User's Guide [Internet]. 3rd edition.

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Table 4–2Examples of possible baseline data elements

Enrollee contact information	Enrollee contact information for registries with direct-to-enrollee contact Another individual who can be reached for followup (address, telephone, email)
Enrollment data elements	Patient identifiers (e.g., name [last, first, middle initial], date of birth, place of birth, Social Security number) Permission/consent Source of enrollment (e.g., provider, institution, phone number, address, contact information) Enrollment criteria Sociodemographic characteristics, including race, gender, and age or date of birth Education and/or economic status, insurance, etc. Preferred language Place of birth Location of residence at enrollment Source of information Country, State, city, county, ZIP Code of residence

Enrollee contact information

Enrollee contact information for registries with direct-to-enrollee contact
Another individual who can be reached for followup (address, telephone, email)

Enrollment data elements

Patient identifiers (e.g., name [last, first, middle initial], date of birth, place of birth, Social Security number)
Permission/consent
Source of enrollment (e.g., provider, institution, phone number, address, contact information)
Enrollment criteria
Sociodemographic characteristics, including race, gender, and age or date of birth
Education and/or economic status, insurance, etc.
Preferred language
Place of birth
Location of residence at enrollment
Source of information
Country, State, city, county, ZIP Code of residence

From: 4, Data Elements for Registries

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Gliklich RE, Dreyer NA, Leavy MB, editors. Registries for Evaluating Patient Outcomes: A User's Guide [Internet]. 3rd edition. Rockville (MD): Agency for Healthcare Research and Quality (US); 2014 Apr. Table 4–2, Examples of possible baseline data elements.

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