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Patrick DL, Kinne S, Engelberg RA, Pearlman RA. Functional status and perceived quality of life in adults with and without chronic conditions. J Clin Epidemiol. 2000 Aug;53(8):779-85. doi: 10.1016/s0895-4356(00)00205-5. PubMed PMID: 10942859.
Curtis JR, Patrick DL, Shannon SE, Treece PD, Engelberg RA, Rubenfeld GD. The family conference as a focus to improve communication about end-of-life care in the intensive care unit: opportunities for improvement. Crit Care Med. 2001 Feb;29(2 Suppl):N26-33. doi: 10.1097/00003246-200102001-00006. Review. PubMed PMID: 11228570.
Patrick DL, Engelberg RA, Curtis JR. Evaluating the quality of dying and death. J Pain Symptom Manage. 2001 Sep;22(3):717-26. doi: 10.1016/s0885-3924(01)00333-5. PubMed PMID: 11532585.
Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I. A measure of the quality of dying and death. Initial validation using after-death interviews with family members. J Pain Symptom Manage. 2002 Jul;24(1):17-31. doi: 10.1016/s0885-3924(02)00419-0. PubMed PMID: 12183092.
Curtis JR, Engelberg RA, Wenrich MD, Nielsen EL, Shannon SE, Treece PD, Tonelli MR, Patrick DL, Robins LS, McGrath BB, Rubenfeld GD. Studying communication about end-of-life care during the ICU family conference: development of a framework. J Crit Care. 2002 Sep;17(3):147-60. doi: 10.1053/jcrc.2002.35929. PubMed PMID: 12297990.
Engelberg RA. Commentary: observational studies and their importance in improving end-of-life care in the intensive care unit. J Crit Care. 2003 Sep;18(3):141-4. doi: 10.1016/j.jcrc.2003.08.002. PubMed PMID: 14626210.
Patrick DL, Curtis JR, Engelberg RA, Nielsen E, McCown E. Measuring and improving the quality of dying and death. Ann Intern Med. 2003 Sep 2;139(5 Pt 2):410-5. doi: 10.7326/0003-4819-139-5_part_2-200309021-00006. Review. PubMed PMID: 12965967.
Treece PD, Engelberg RA, Crowley L, Chan JD, Rubenfeld GD, Steinberg KP, Curtis JR. Evaluation of a standardized order form for the withdrawal of life support in the intensive care unit. Crit Care Med. 2004 May;32(5):1141-8. doi: 10.1097/01.ccm.0000125509.34805.0c. PubMed PMID: 15190964.
Chan JD, Treece PD, Engelberg RA, Crowley L, Rubenfeld GD, Steinberg KP, Curtis JR. Narcotic and benzodiazepine use after withdrawal of life support: association with time to death?. Chest. 2004 Jul;126(1):286-93. doi: 10.1378/chest.126.1.286. PubMed PMID: 15249473.
McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR. Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction. Crit Care Med. 2004 Jul;32(7):1484-8. doi: 10.1097/01.ccm.0000127262.16690.65. PubMed PMID: 15241092.
Hodde NM, Engelberg RA, Treece PD, Steinberg KP, Curtis JR. Factors associated with nurse assessment of the quality of dying and death in the intensive care unit. Crit Care Med. 2004 Aug;32(8):1648-53. doi: 10.1097/01.ccm.0000133018.60866.5f. PubMed PMID: 15286539.
Curtis JR, Engelberg RA, Nielsen EL, Au DH, Patrick DL. Patient-physician communication about end-of-life care for patients with severe COPD. Eur Respir J. 2004 Aug;24(2):200-5. doi: 10.1183/09031936.04.00010104. PubMed PMID: 15332385.
Mularski R, Curtis JR, Osborne M, Engelberg RA, Ganzini L. Agreement among family members in their assessment of the Quality of Dying and Death. J Pain Symptom Manage. 2004 Oct;28(4):306-15. doi: 10.1016/j.jpainsymman.2004.01.008. PubMed PMID: 15471648.
Stapleton RD, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Association of depression and life-sustaining treatment preferences in patients with COPD. Chest. 2005 Jan;127(1):328-34. doi: 10.1378/chest.127.1.328. PubMed PMID: 15654000.
Curtis JR, Engelberg RA, Wenrich MD, Shannon SE, Treece PD, Rubenfeld GD. Missed opportunities during family conferences about end-of-life care in the intensive care unit. Am J Respir Crit Care Med. 2005 Apr 15;171(8):844-9. doi: 10.1164/rccm.200409-1267OC. Epub 2005 Jan 7. PubMed PMID: 15640361.
Levy CR, Ely EW, Payne K, Engelberg RA, Patrick DL, Curtis JR. Quality of dying and death in two medical ICUs: perceptions of family and clinicians. Chest. 2005 May;127(5):1775-83. doi: 10.1378/chest.127.5.1775. PubMed PMID: 15888858.
Knauft E, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest. 2005 Jun;127(6):2188-96. doi: 10.1378/chest.127.6.2188. PubMed PMID: 15947336.
Norris WM, Nielsen EL, Engelberg RA, Curtis JR. Treatment preferences for resuscitation and critical care among homeless persons. Chest. 2005 Jun;127(6):2180-7. doi: 10.1378/chest.127.6.2180. PubMed PMID: 15947335.
West HF, Engelberg RA, Wenrich MD, Curtis JR. Expressions of nonabandonment during the intensive care unit family conference. J Palliat Med. 2005 Aug;8(4):797-807. doi: 10.1089/jpm.2005.8.797. PubMed PMID: 16128654.
Curtis JR, Engelberg RA, Wenrich MD, Au DH. Communication about palliative care for patients with chronic obstructive pulmonary disease. J Palliat Care. 2005 Autumn;21(3):157-64. Review. PubMed PMID: 16334970.
Engelberg RA, Patrick DL, Curtis JR. Correspondence between patients' preferences and surrogates' understandings for dying and death. J Pain Symptom Manage. 2005 Dec;30(6):498-509. doi: 10.1016/j.jpainsymman.2005.06.006. PubMed PMID: 16376736.
Stapleton RD, Engelberg RA, Wenrich MD, Goss CH, Curtis JR. Clinician statements and family satisfaction with family conferences in the intensive care unit. Crit Care Med. 2006 Jun;34(6):1679-85. doi: 10.1097/01.CCM.0000218409.58256.AA. PubMed PMID: 16625131.
Engelberg RA. Measuring the quality of dying and death: methodological considerations and recent findings. Curr Opin Crit Care. 2006 Oct;12(5):381-7. doi: 10.1097/01.ccx.0000244114.24000.bc. Review. PubMed PMID: 16943713.
Downey L, Engelberg RA, Shannon SE, Curtis JR. Measuring intensive care nurses' perspectives on family-centered end-of-life care: evaluation of 3 questionnaires. Am J Crit Care. 2006 Nov;15(6):568-79. PubMed PMID: 17053264.
Treece PD, Engelberg RA, Shannon SE, Nielsen EL, Braungardt T, Rubenfeld GD, Steinberg KP, Curtis JR. Integrating palliative and critical care: description of an intervention. Crit Care Med. 2006 Nov;34(11 Suppl):S380-7. doi: 10.1097/01.CCM.0000237045.12925.09. PubMed PMID: 17057602.
Curtis JR, Engelberg RA. Measuring success of interventions to improve the quality of end-of-life care in the intensive care unit. Crit Care Med. 2006 Nov;34(11 Suppl):S341-7. doi: 10.1097/01.CCM.0000237048.30032.29. Review. PubMed PMID: 17057596.
Wall RJ, Engelberg RA, Downey L, Heyland DK, Curtis JR. Refinement, scoring, and validation of the Family Satisfaction in the Intensive Care Unit (FS-ICU) survey. Crit Care Med. 2007 Jan;35(1):271-9. doi: 10.1097/01.CCM.0000251122.15053.50. PubMed PMID: 17133189.
White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR. Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med. 2007 Feb;35(2):442-8. doi: 10.1097/01.CCM.0000254723.28270.14. PubMed PMID: 17205000.
Wall RJ, Engelberg RA, Gries CJ, Glavan B, Curtis JR. Spiritual care of families in the intensive care unit. Crit Care Med. 2007 Apr;35(4):1084-90. doi: 10.1097/01.CCM.0000259382.36414.06. PubMed PMID: 17334245.
Wall RJ, Curtis JR, Cooke CR, Engelberg RA. Family satisfaction in the ICU: differences between families of survivors and nonsurvivors. Chest. 2007 Nov;132(5):1425-33. doi: 10.1378/chest.07-0419. Epub 2007 Jun 15. PubMed PMID: 17573519.
Gries CJ, Curtis JR, Wall RJ, Engelberg RA. Family member satisfaction with end-of-life decision making in the ICU. Chest. 2008 Mar;133(3):704-12. doi: 10.1378/chest.07-1773. Epub 2008 Jan 15. PubMed PMID: 18198256; PubMed Central PMCID: PMC2744978.
Glavan BJ, Engelberg RA, Downey L, Curtis JR. Using the medical record to evaluate the quality of end-of-life care in the intensive care unit. Crit Care Med. 2008 Apr;36(4):1138-46. doi: 10.1097/CCM.0b013e318168f301. PubMed PMID: 18379239; PubMed Central PMCID: PMC2735216.
Reinke LF, Engelberg RA, Shannon SE, Wenrich MD, Vig EK, Back AL, Curtis JR. Transitions regarding palliative and end-of-life care in severe chronic obstructive pulmonary disease or advanced cancer: themes identified by patients, families, and clinicians. J Palliat Med. 2008 May;11(4):601-9. doi: 10.1089/jpm.2007.0236. PubMed PMID: 18454613; PubMed Central PMCID: PMC4484272.
Pham K, Thornton JD, Engelberg RA, Jackson JC, Curtis JR. Alterations during medical interpretation of ICU family conferences that interfere with or enhance communication. Chest. 2008 Jul;134(1):109-16. doi: 10.1378/chest.07-2852. Epub 2008 Mar 17. PubMed PMID: 18347204; PubMed Central PMCID: PMC2693085.
Curtis JR, Treece PD, Nielsen EL, Downey L, Shannon SE, Braungardt T, Owens D, Steinberg KP, Engelberg RA. Integrating palliative and critical care: evaluation of a quality-improvement intervention. Am J Respir Crit Care Med. 2008 Aug 1;178(3):269-75. doi: 10.1164/rccm.200802-272OC. Epub 2008 May 14. PubMed PMID: 18480429; PubMed Central PMCID: PMC2542424.
Gerstel E, Engelberg RA, Koepsell T, Curtis JR. Duration of withdrawal of life support in the intensive care unit and association with family satisfaction. Am J Respir Crit Care Med. 2008 Oct 15;178(8):798-804. doi: 10.1164/rccm.200711-1617OC. Epub 2008 Aug 14. PubMed PMID: 18703787; PubMed Central PMCID: PMC2566791.
Engelberg RA, Wenrich MD, Curtis JR. Responding to families' questions about the meaning of physical movements in critically ill patients. J Crit Care. 2008 Dec;23(4):565-71. doi: 10.1016/j.jcrc.2007.12.018. Epub 2008 Apr 18. PubMed PMID: 19056024; PubMed Central PMCID: PMC2639791.
Thornton JD, Pham K, Engelberg RA, Jackson JC, Curtis JR. Families with limited English proficiency receive less information and support in interpreted intensive care unit family conferences. Crit Care Med. 2009 Jan;37(1):89-95. doi: 10.1097/CCM.0b013e3181926430. PubMed PMID: 19050633; PubMed Central PMCID: PMC2678961.
Downey L, Engelberg RA, Curtis JR, Lafferty WE, Patrick DL. Shared priorities for the end-of-life period. J Pain Symptom Manage. 2009 Feb;37(2):175-88. doi: 10.1016/j.jpainsymman.2008.02.012. Epub 2008 Aug 22. PubMed PMID: 18722084; PubMed Central PMCID: PMC2746763.
Back AL, Young JP, McCown E, Engelberg RA, Vig EK, Reinke LF, Wenrich MD, McGrath BB, Curtis JR. Abandonment at the end of life from patient, caregiver, nurse, and physician perspectives: loss of continuity and lack of closure. Arch Intern Med. 2009 Mar 9;169(5):474-9. doi: 10.1001/archinternmed.2008.583. PubMed PMID: 19273777; PubMed Central PMCID: PMC2918275.
Downey L, Engelberg RA, Standish LJ, Kozak L, Lafferty WE. Three lessons from a randomized trial of massage and meditation at end of life: patient benefit, outcome measure selection, and design of trials with terminally ill patients. Am J Hosp Palliat Care. 2009 Aug-Sep;26(4):246-53. doi: 10.1177/1049909109331887. Epub 2009 Apr 24. PubMed PMID: 19395701; PubMed Central PMCID: PMC2855225.
Billings ME, Curtis JR, Engelberg RA. Medicine residents' self-perceived competence in end-of-life care. Acad Med. 2009 Nov;84(11):1533-9. doi: 10.1097/ACM.0b013e3181bbb490. PubMed PMID: 19858811; PubMed Central PMCID: PMC5847268.
Kross EK, Engelberg RA, Shannon SE, Curtis JR. Potential for response bias in family surveys about end-of-life care in the ICU. Chest. 2009 Dec;136(6):1496-1502. doi: 10.1378/chest.09-0589. Epub 2009 Jul 17. PubMed PMID: 19617402; PubMed Central PMCID: PMC2789922.
White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR. The language of prognostication in intensive care units. Med Decis Making. 2010 Jan-Feb;30(1):76-83. doi: 10.1177/0272989X08317012. Epub 2008 Aug 27. PubMed PMID: 18753685; PubMed Central PMCID: PMC2812635.
Downey L, Curtis JR, Lafferty WE, Herting JR, Engelberg RA. The Quality of Dying and Death Questionnaire (QODD): empirical domains and theoretical perspectives. J Pain Symptom Manage. 2010 Jan;39(1):9-22. doi: 10.1016/j.jpainsymman.2009.05.012. Epub 2009 Sep 25. PubMed PMID: 19782530; PubMed Central PMCID: PMC2815047.
Gries CJ, Engelberg RA, Kross EK, Zatzick D, Nielsen EL, Downey L, Curtis JR. Predictors of symptoms of posttraumatic stress and depression in family members after patient death in the ICU. Chest. 2010 Feb;137(2):280-7. doi: 10.1378/chest.09-1291. Epub 2009 Sep 17. PubMed PMID: 19762549; PubMed Central PMCID: PMC2816640.
Downey L, Engelberg RA. Quality-of-life trajectories at the end of life: assessments over time by patients with and without cancer. J Am Geriatr Soc. 2010 Mar;58(3):472-9. doi: 10.1111/j.1532-5415.2010.02734.x. PubMed PMID: 20398115; PubMed Central PMCID: PMC2863315.
Reinke LF, Shannon SE, Engelberg RA, Young JP, Curtis JR. Supporting hope and prognostic information: nurses' perspectives on their role when patients have life-limiting prognoses. J Pain Symptom Manage. 2010 Jun;39(6):982-92. doi: 10.1016/j.jpainsymman.2009.11.315. PubMed PMID: 20538182; PubMed Central PMCID: PMC2884140.
Engelberg RA, Downey L, Wenrich MD, Carline JD, Silvestri GA, Dotolo D, Nielsen EL, Curtis JR. Measuring the quality of end-of-life care. J Pain Symptom Manage. 2010 Jun;39(6):951-71. doi: 10.1016/j.jpainsymman.2009.11.313. PubMed PMID: 20538181.
Cooke CR, Hotchkin DL, Engelberg RA, Rubinson L, Curtis JR. Predictors of time to death after terminal withdrawal of mechanical ventilation in the ICU. Chest. 2010 Aug;138(2):289-97. doi: 10.1378/chest.10-0289. Epub 2010 Apr 2. PubMed PMID: 20363840; PubMed Central PMCID: PMC2913765.
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