GRADE profile 3Patient and carer perspective (parents)

Quality assessmentSummary of findingsQuality
No. of studiesStudy designLimitationsInconsistencyIndirectnessImprecision
Carer perspective (children): parents of child or adolescent (aged 21 years or under) with CKD (any stage)
Tong 2008
Systematic reviewNo serious limitationsNo serious inconsistenciesNo serious indirectnessNot relevantThemes developed by the original researchers related to pre-dialysis were:
  • self-accusation and blame
  • depression and generalised anxiety
  • uncertainty around diagnosis
  • uncertainty for the child’s future.
Related to dialysis were:
  • emotional turmoil
  • uncertainty around prognosis
  • surrendering control of the child to clinical staff.
Overall, main themes were:
  • intrapersonal issues
  • interpersonal issues
  • external issues.

From: 3, How this guideline was developed

Cover of Peritoneal Dialysis
Peritoneal Dialysis: Peritoneal Dialysis in the Treatment of Stage 5 Chronic Kidney Disease.
NICE Clinical Guidelines, No. 125.
Centre for Clinical Practice at NICE (UK).
Copyright © 2011, National Institute for Health and Clinical Excellence.

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