GRADE profile 3Patient and carer perspective (parents)

Quality assessmentSummary of findingsQuality
No. of studiesStudy designLimitationsInconsistencyIndirectnessImprecision
Carer perspective (children): parents of child or adolescent (aged 21 years or under) with CKD (any stage)
1
Tong 2008
Systematic reviewNo serious limitationsNo serious inconsistenciesNo serious indirectnessNot relevantThemes developed by the original researchers related to pre-dialysis were:
  • self-accusation and blame
  • depression and generalised anxiety
  • uncertainty around diagnosis
  • uncertainty for the child’s future.
Related to dialysis were:
  • emotional turmoil
  • uncertainty around prognosis
  • surrendering control of the child to clinical staff.
Overall, main themes were:
  • intrapersonal issues
  • interpersonal issues
  • external issues.
HIGH

From: 3, How this guideline was developed

Cover of Peritoneal Dialysis
Peritoneal Dialysis: Peritoneal Dialysis in the Treatment of Stage 5 Chronic Kidney Disease.
NICE Clinical Guidelines, No. 125.
Centre for Clinical Practice at NICE (UK).
Copyright © 2011, National Institute for Health and Clinical Excellence.

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