Q.5 How would things be different if you did not have the constipation problems?

Respondent No.Responses
1a) Parents would feel more relaxed with him b) Parents would not worry so much about him.
2a) You would not be stressed. b) No pain on defecation / sore abdomen.
3At school more – patient has been off school due to sickness caused by constipation.
4a) Play more b) Not have sore tummy!
5Play outside when it is sunny.
6a) Would be better because I could be at school more. b) I would not have to have enemas.
7Won't have to go to toilet as much and won't be as hard.
8I would be more confident getting changed in public and friends smelling it.
9a) Play more b) Tummy not so sore.
10A lot different, I wouldn't get picked on at school.
11a) No Pain. b) Feel better. c) Feel happy. d) Not miss as much school.
12No difference currently – not severe enough to cause any real problems.
13Things would be lovely as it's quite inconvenient at times with a child, you have to try and second guess when they want to go to the toilet.
14It would make life a lot easier if it's really hard work when a child has this problem.
15There is no problem at the moment (because of Movicol) but it used to be very different (cancelled outings, carrying spare clothing etc.).
16Just a little less hassle getting repeat prescriptions (being able to call and pick up medicine when you've run out would be so much easier).
17Outside school – social life, would be able to go out without taking nappies and pull ups, would be more confident wouldn't be picked on in school.
19He would be out of nappies by now.
20a) Childs confidence would go up socially and school toilets dislikes access, b) Goes to bed later trying to poo, c) Family life affected.
21Things have improved – ok re family life.
22Improve child's social, family and school life (bullied in latter).
23a) No social problems. b) Confidence was affected during initial problem – improved when treatment succeeded.
24Nice having fun instead of having a wash.
25Would have to go to hospital. Wouldn't get tummy ache. Wouldn't poo in knickers.
26I would be able to go to the toilet. Be a normal kid. Would not poo in my pants at school..
27I would be able to take Liam to school and he wouldn't have any other problems with children taking the mickey.
28I would feel better in myself.
29People wouldn't be mean to me when I have [an] accident. I wouldn't get tummy ache.
30I would be able to go round people's houses and not worry that I could have an accident. I would be able to wear boxer shorts.
31Would be toilet trained and not be restricted to where and how long to go out for.
32They wouldn't.
33Not a problem now. Doesn't stop anything. No sleepovers yet though.
34It would be better. Less people making fun of me or even none. Wouldn't need to go to the toilet at certain times.
35Life would be easier and calmer and a lot happier for my son. It has been a long road for someone so young to have to take and he would be able to go to friends' houses more and even have sleepovers. Not having to worry about the delay treatment and generally just easier all around. We are also half way through this but achievement so far has been great and one day we will be able to look back and say-we did this together and son you got through it.
36I would be happy. I would not have to wear a nappy in bed.

From: Appendix F, Involving children in guideline development

Cover of Constipation in Children and Young People
Constipation in Children and Young People: Diagnosis and Management of Idiopathic Childhood Constipation in Primary and Secondary Care.
NICE Clinical Guidelines, No. 99.
National Collaborating Centre for Women's and Children's Health (UK).
London: RCOG Press; 2010.
Copyright © 2010, National Collaborating Centre for Women's and Children's Health.

No part of this publication may be reproduced, stored or transmitted in any form or by any means, without the prior written permission of the publisher or, in the case of reprographic reproduction, in accordance with the terms of licences issued by the Copyright Licensing Agency in the UK [www.cla.co.uk]. Enquiries concerning reproduction outside the terms stated here should be sent to the publisher at the UK address printed on this page.

The use of registered names, trademarks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant laws and regulations and therefore for general use.

PubMed Health. A service of the National Library of Medicine, National Institutes of Health.