Specialist centre

The definition of a specialist centre is not rigid and is based on a combination of patient treatment services, numbers and ages of individuals attending there, the presence of a multi-disciplinary team (which may include for example, physicians, lipidologists, specialist nurses, dietitians), the ability to manage the more unusual manifestations of the condition and the additional functions such as research, education and standard setting. Care is supervised by expert healthcare professionals but shared with local hospitals and primary care teams. Whilst details of the model may vary between patients and areas, the key is that specialist supervision oversees local provision with the patient seen at diagnosis for initial assessment and then at minimum, annually for review.