Table 4.3PDS survey (1999)31

Whether the person had PD explained to them on diagnosis (N=1,127)
Very clearly explained20
Fairly clearly explained24
Neither clearly nor unclearly explained9
Not very clearly explained17
Not at all clearly explained9
No explanation given15
Whether people were given an opportunity to ask questions on diagnosis
Adequate opportunity28
Fairly adequate opportunity22
No opportunity at all15
Did not want/feel able to ask questions at the time22
How useful people find PD information resources (N=1,693)
Very usefulNot very usefulNot used/not availableDid not answer
Hospital doctor/consultant56191412
PDS – local branch4073617
PDS – national office3693619
People who have PD or care for someone with PD3673621
Newspapers or magazines32242619
Occupational therapist1975619
Social services department18125118
Speech therapist1675819
PDS – field staff (eg area officer)1565721
Subjects on which people need information (N=945)
New treatments that may be available in future90
What drugs are available and/or their side effects84
Specific health problems related to PD81
How the disease is likely to affect me or the person I care for in the future75
Aids and equipment and how to get them49
How PD can affect personal relationships44
How to get health or social services assistance41
How to get welfare benefits and financial help39
How to deal with difficulties in getting services for people with PD from insurance companies, banks, etc.30
How to find a suitable holiday29
How to find suitable respite care26

From: 4, Communication with people with Parkinson’s disease and their carers

Cover of Parkinson's Disease
Parkinson's Disease: National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care.
NICE Clinical Guidelines, No. 35.
National Collaborating Centre for Chronic Conditions (UK).
Copyright © 2006, Royal College of Physicians of London.

All rights reserved. No part of this publication may be reproduced in any form (including photocopying or storing it in any medium by electronic means and whether or not transiently or incidentally to some other use of this publication) without the written permission of the copyright owner. Applications for the copyright owner’s written permission to reproduce any part of this publication should be addressed to the publisher.

PubMed Health. A service of the National Library of Medicine, National Institutes of Health.