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Items: 1 to 20 of 28


Experiences and perspectives on the return of secondary findings among genetic epidemiologists.

Stein CM, Ponsaran R, Trapl ES, Goldenberg AJ.

Genet Med. 2018 Nov 23. doi: 10.1038/s41436-018-0369-x. [Epub ahead of print]


Including ELSI research questions in newborn screening pilot studies.

Goldenberg AJ, Lloyd-Puryear M, Brosco JP, Therrell B, Bush L, Berry S, Brower A, Bonhomme N, Bowdish B, Chrysler D, Clarke A, Crawford T, Goldman E, Hiner S, Howell RR, Orren D, Wilfond BS, Watson M; Bioethics and Legal Workgroup of the Newborn Screening Translational Research Network.

Genet Med. 2018 Aug 13. doi: 10.1038/s41436-018-0101-x. [Epub ahead of print]


Effect of a melanocortin type 2 receptor (MC2R) antagonist on the corticosterone response to hypoxia and ACTH stimulation in the neonatal rat.

Goldenberg AJ, Gehrand AL, Waples E, Jablonski M, Hoeynck B, Raff H.

Am J Physiol Regul Integr Comp Physiol. 2018 Jul 1;315(1):R128-R133. doi: 10.1152/ajpregu.00009.2018. Epub 2018 May 2.


Modernizing Research Regulations Is Not Enough: It's Time to Think Outside the Regulatory Box.

Rivera SM, Brothers KB, Cadigan RJ, Harrell HL, Rothstein MA, Sharp RR, Goldenberg AJ.

Am J Bioeth. 2017 Jul;17(7):1-3. doi: 10.1080/15265161.2017.1328899. No abstract available.


Photo-documentation in the community: reflections on genetics, health and health disparities.

Morello L, Marshall PA, Hartmann CD, Brooks S, Colón-Zimmermann K, Goldenberg AJ.

Int J Epidemiol. 2017 Apr 1;46(2):385-389. doi: 10.1093/ije/dyw334. No abstract available.


Genomic newborn screening: public health policy considerations and recommendations.

Friedman JM, Cornel MC, Goldenberg AJ, Lister KJ, Sénécal K, Vears DF; Global Alliance for Genomics and Health Regulatory and Ethics Working Group Paediatric Task Team.

BMC Med Genomics. 2017 Feb 21;10(1):9. doi: 10.1186/s12920-017-0247-4.


Ethical and legal considerations for pediatric biobank consent: current and future perspectives.

Brothers KB, Goldenberg AJ.

Per Med. 2016 Nov;13(6):597-607. doi: 10.2217/pme-2016-0028. Epub 2016 Oct 13.


Biobank participant support of newborn screening for disorders with variable treatment and intervention options.

Bunnell ME, Tarini BA, Petros M, Goldenberg AJ, Arjunan A, Wicklund C.

J Community Genet. 2016 Oct;7(4):291-302. Epub 2016 Sep 1.


Evaluating Harms in the Assessment of Net Benefit: A Framework for Newborn Screening Condition Review.

Goldenberg AJ, Comeau AM, Grosse SD, Tanksley S, Prosser LA, Ojodu J, Botkin JR, Kemper AR, Green NS.

Matern Child Health J. 2016 Mar;20(3):693-700. doi: 10.1007/s10995-015-1869-9.


Return of Results from Research Using Newborn Screening Dried Blood Samples.

Lewis MH, Goldenberg AJ.

J Law Med Ethics. 2015 Fall;43(3):559-68. doi: 10.1111/jlme.12299.


IRB practices and policies regarding the secondary research use of biospecimens.

Goldenberg AJ, Maschke KJ, Joffe S, Botkin JR, Rothwell E, Murray TH, Anderson R, Deming N, Rosenthal BF, Rivera SM.

BMC Med Ethics. 2015 May 8;16:32. doi: 10.1186/s12910-015-0020-1.


Parent and public interest in whole-genome sequencing.

Dodson DS, Goldenberg AJ, Davis MM, Singer DC, Tarini BA.

Public Health Genomics. 2015;18(3):151-9. doi: 10.1159/000375115. Epub 2015 Mar 6.


Is there a space for place in family history assessment? Underserved community views on the impact of neighborhood factors on health and prevention.

Hartmann CD, Marshall PA, Goldenberg AJ.

J Prim Prev. 2015 Apr;36(2):119-30. doi: 10.1007/s10935-015-0384-5.


Practical barriers and ethical challenges in genetic data sharing.

Simpson CL, Goldenberg AJ, Culverhouse R, Daley D, Igo RP, Jarvik GP, Mandal DM, Mascalzoni D, Montgomery CG, Pierce B, Plaetke R, Shete S, Goddard KA, Stein CM.

Int J Environ Res Public Health. 2014 Aug 15;11(8):8383-98. doi: 10.3390/ijerph110808383.


Genomic counseling in the newborn period: experiences and views of genetic counselors.

Nardini MD, Matthews AL, McCandless SE, Baumanis L, Goldenberg AJ.

J Genet Couns. 2014 Aug;23(4):506-15. doi: 10.1007/s10897-014-9706-7.


Addressing the ethical challenges in genetic testing and sequencing of children.

Clayton EW, McCullough LB, Biesecker LG, Joffe S, Ross LF, Wolf SM; Clinical Sequencing Exploratory Research (CSER) Consortium Pediatrics Working Group.

Am J Bioeth. 2014;14(3):3-9. doi: 10.1080/15265161.2013.879945.


Next-generation disadvantages: identifying potential barriers to integrating genomics into underserved medical settings.

Goldenberg AJ, Marshall PA, Sharp RR.

Per Med. 2013 Sep;10(7):623-625. doi: 10.2217/pme.13.75. No abstract available.


Decision-making process for conditions nominated to the recommended uniform screening panel: statement of the US Department of Health and Human Services Secretary's Advisory Committee on Heritable Disorders in Newborns and Children.

Kemper AR, Green NS, Calonge N, Lam WK, Comeau AM, Goldenberg AJ, Ojodu J, Prosser LA, Tanksley S, Bocchini JA Jr.

Genet Med. 2014 Feb;16(2):183-7. doi: 10.1038/gim.2013.98. Epub 2013 Aug 1.


The perils of SNP microarray testing: uncovering unexpected consanguinity.

Tarini BA, Konczal LL, Goldenberg AJ, Goldman EB, McCandless SE.

Pediatr Neurol. 2013 Jul;49(1):50-3. doi: 10.1016/j.pediatrneurol.2013.03.008.


Parents' interest in whole-genome sequencing of newborns.

Goldenberg AJ, Dodson DS, Davis MM, Tarini BA.

Genet Med. 2014 Jan;16(1):78-84. doi: 10.1038/gim.2013.76. Epub 2013 Jun 6.

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