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Items: 1 to 20 of 130

1.

Validation of a health-related quality of life instrument for primary ciliary dyskinesia (QOL-PCD).

Behan L, Leigh MW, Dell SD, Dunn Galvin A, Quittner AL, Lucas JS.

Thorax. 2017 Feb 28. pii: thoraxjnl-2016-209356. doi: 10.1136/thoraxjnl-2016-209356. [Epub ahead of print]

2.

Use of the Daily Phone Diary to Study Religiosity and Mood: Convergent Validity.

Szczesniak RD, Zou Y, Dimitriou SM, Quittner AL, Grossoehme DH.

J Health Care Chaplain. 2017 Apr-Jun;23(2):67-85. doi: 10.1080/08854726.2016.1253955. Epub 2016 Nov 21.

PMID:
27869567
3.

Maintaining mental health and function for the long run in cystic fibrosis.

Smith BA, Georgiopoulos AM, Quittner AL.

Pediatr Pulmonol. 2016 Oct;51(S44):S71-S78. doi: 10.1002/ppul.23522. Review.

PMID:
27662107
4.

Patient-Centered Research Priorities for Pulmonary Nontuberculous Mycobacteria (NTM) Infection. An NTM Research Consortium Workshop Report.

Henkle E, Aksamit T, Barker A, Daley CL, Griffith D, Leitman P, Leitman A, Malanga E, Marras TK, Olivier KN, Prevots DR, Prieto D, Quittner AL, Skach W, Walsh JW, Winthrop KL; NTMRC Patient Advisory Panel..

Ann Am Thorac Soc. 2016 Sep;13(9):S379-84. doi: 10.1513/AnnalsATS.201605-387WS.

PMID:
27627485
5.

Associations between adherence, depressive symptoms and health-related quality of life in young adults with cystic fibrosis.

Knudsen KB, Pressler T, Mortensen LH, Jarden M, Skov M, Quittner AL, Katzenstein T, Boisen KA.

Springerplus. 2016 Jul 29;5(1):1216. doi: 10.1186/s40064-016-2862-5. eCollection 2016 Jul 29.

6.

Primary Ciliary Dyskinesia: First Health-related Quality-of-Life Measures for Pediatric Patients.

Dell SD, Leigh MW, Lucas JS, Ferkol TW, Knowles MR, Alpern A, Behan L, Morris AM, Hogg C, DunnGalvin A, Quittner AL.

Ann Am Thorac Soc. 2016 Oct;13(10):1726-1735.

PMID:
27464304
7.

Study protocol, rationale and recruitment in a European multi-centre randomized controlled trial to determine the efficacy and safety of azithromycin maintenance therapy for 6 months in primary ciliary dyskinesia.

Kobbernagel HE, Buchvald FF, Haarman EG, Casaulta C, Collins SA, Hogg C, Kuehni CE, Lucas JS, Omran H, Quittner AL, Werner C, Nielsen KG.

BMC Pulm Med. 2016 Jul 22;16(1):104. doi: 10.1186/s12890-016-0261-x.

8.

A randomised, double-blind, placebo-controlled trial of repeated nebulisation of non-viral cystic fibrosis transmembrane conductance regulator (CFTR) gene therapy in patients with cystic fibrosis.

Alton EWFW, Armstrong DK, Ashby D, Bayfield KJ, Bilton D, Bloomfield EV, Boyd AC, Brand J, Buchan R, Calcedo R, Carvelli P, Chan M, Cheng SH, Collie DS, Cunningham S, Davidson HE, Davies G, Davies JC, Davies LA, Dewar MH, Doherty A, Donovan J, Dwyer NS, Elgmati HI, Featherstone RF, Gavino J, Gea-Sorli S, Geddes DM, Gibson JSR, Gill DR, Greening AP, Griesenbach U, Hansell DM, Harman K, Higgins TE, Hodges SL, Hyde SC, Hyndman L, Innes JA, Jacob J, Jones N, Keogh BF, Limberis MP, Lloyd-Evans P, Maclean AW, Manvell MC, McCormick D, McGovern M, McLachlan G, Meng C, Montero MA, Milligan H, Moyce LJ, Murray GD, Nicholson AG, Osadolor T, Parra-Leiton J, Porteous DJ, Pringle IA, Punch EK, Pytel KM, Quittner AL, Rivellini G, Saunders CJ, Scheule RK, Sheard S, Simmonds NJ, Smith K, Smith SN, Soussi N, Soussi S, Spearing EJ, Stevenson BJ, Sumner-Jones SG, Turkkila M, Ureta RP, Waller MD, Wasowicz MY, Wilson JM, Wolstenholme-Hogg P; on behalf of the UK Cystic Fibrosis Gene Therapy Consortium.

Southampton (UK): NIHR Journals Library; 2016 Jul.

9.

Symbolic Play and Novel Noun Learning in Deaf and Hearing Children: Longitudinal Effects of Access to Sound on Early Precursors of Language.

Quittner AL, Cejas I, Wang NY, Niparko JK, Barker DH.

PLoS One. 2016 May 26;11(5):e0155964. doi: 10.1371/journal.pone.0155964. eCollection 2016 May 26.

10.

Development of Health-Related Quality of Life Instruments for Young Children With Disorders of Sex Development (DSD) and Their Parents.

Alpern AN, Gardner M, Kogan B, Sandberg DE, Quittner AL.

J Pediatr Psychol. 2016 Mar 29. pii: jsw022. [Epub ahead of print]

PMID:
27026663
11.

Patient-reported symptoms and functioning as indicators of mortality in advanced cystic fibrosis: A new tool for referral and selection for lung transplantation.

Solé A, Pérez I, Vázquez I, Pastor A, Escrivá J, Sales G, Hervás D, Glanville AR, Quittner AL.

J Heart Lung Transplant. 2016 Jun;35(6):789-94. doi: 10.1016/j.healun.2016.01.1233. Epub 2016 Feb 12.

PMID:
27021279
12.

The psychological burden of cystic fibrosis.

Quittner AL, Saez-Flores E, Barton JD.

Curr Opin Pulm Med. 2016 Mar;22(2):187-91. doi: 10.1097/MCP.0000000000000244. Review.

PMID:
26814144
13.

Parental Depression and Pancreatic Enzymes Adherence in Children With Cystic Fibrosis.

Barker DH, Quittner AL.

Pediatrics. 2016 Feb;137(2):e20152296. doi: 10.1542/peds.2015-2296. Epub 2016 Jan 5.

14.

Comparisons of Longitudinal Trajectories of Social Competence: Parent Ratings of Children With Cochlear Implants Versus Hearing Peers.

Hoffman MF, Cejas I, Quittner AL; CDaCI Investigative Team..

Otol Neurotol. 2016 Feb;37(2):152-9. doi: 10.1097/MAO.0000000000000938.

15.

An international registry for primary ciliary dyskinesia.

Werner C, Lablans M, Ataian M, Raidt J, Wallmeier J, Große-Onnebrink J, Kuehni CE, Haarman EG, Leigh MW, Quittner AL, Lucas JS, Hogg C, Witt M, Priftis KN, Yiallouros P, Nielsen KG, Santamaria F, Ückert F, Omran H.

Eur Respir J. 2016 Mar;47(3):849-59. doi: 10.1183/13993003.00776-2015. Epub 2015 Dec 8.

PMID:
26659107
16.

International Committee on Mental Health in Cystic Fibrosis: Cystic Fibrosis Foundation and European Cystic Fibrosis Society consensus statements for screening and treating depression and anxiety.

Quittner AL, Abbott J, Georgiopoulos AM, Goldbeck L, Smith B, Hempstead SE, Marshall B, Sabadosa KA, Elborn S; International Committee on Mental Health.; EPOS Trial Study Group..

Thorax. 2016 Jan;71(1):26-34. doi: 10.1136/thoraxjnl-2015-207488. Epub 2015 Oct 9.

17.

Validating chest MRI to detect and monitor cystic fibrosis lung disease in a pediatric cohort.

Tepper LA, Ciet P, Caudri D, Quittner AL, Utens EM, Tiddens HA.

Pediatr Pulmonol. 2016 Jan;51(1):34-41. doi: 10.1002/ppul.23328. Epub 2015 Oct 5.

PMID:
26436668
18.

Repeated nebulisation of non-viral CFTR gene therapy in patients with cystic fibrosis: a randomised, double-blind, placebo-controlled, phase 2b trial.

Alton EW, Armstrong DK, Ashby D, Bayfield KJ, Bilton D, Bloomfield EV, Boyd AC, Brand J, Buchan R, Calcedo R, Carvelli P, Chan M, Cheng SH, Collie DD, Cunningham S, Davidson HE, Davies G, Davies JC, Davies LA, Dewar MH, Doherty A, Donovan J, Dwyer NS, Elgmati HI, Featherstone RF, Gavino J, Gea-Sorli S, Geddes DM, Gibson JS, Gill DR, Greening AP, Griesenbach U, Hansell DM, Harman K, Higgins TE, Hodges SL, Hyde SC, Hyndman L, Innes JA, Jacob J, Jones N, Keogh BF, Limberis MP, Lloyd-Evans P, Maclean AW, Manvell MC, McCormick D, McGovern M, McLachlan G, Meng C, Montero MA, Milligan H, Moyce LJ, Murray GD, Nicholson AG, Osadolor T, Parra-Leiton J, Porteous DJ, Pringle IA, Punch EK, Pytel KM, Quittner AL, Rivellini G, Saunders CJ, Scheule RK, Sheard S, Simmonds NJ, Smith K, Smith SN, Soussi N, Soussi S, Spearing EJ, Stevenson BJ, Sumner-Jones SG, Turkkila M, Ureta RP, Waller MD, Wasowicz MY, Wilson JM, Wolstenholme-Hogg P; UK Cystic Fibrosis Gene Therapy Consortium..

Lancet Respir Med. 2015 Sep;3(9):684-91. doi: 10.1016/S2213-2600(15)00245-3. Epub 2015 Jul 3. Erratum in: Lancet Respir Med. 2015 Sep;3(9):e33.

19.

Cochrane corner: psychological interventions for individuals with cystic fibrosis and their families.

Goldbeck L, Fidika A, Herle M, Quittner AL.

Thorax. 2015 Nov;70(11):1089-91. doi: 10.1136/thoraxjnl-2015-207297. Epub 2015 Jun 19. Review.

PMID:
26092922
20.

A quality-of-life measure for adults with primary ciliary dyskinesia: QOL-PCD.

Lucas JS, Behan L, Dunn Galvin A, Alpern A, Morris AM, Carroll MP, Knowles MR, Leigh MW, Quittner AL.

Eur Respir J. 2015 Aug;46(2):375-83. doi: 10.1183/09031936.00216214. Epub 2015 May 14.

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