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Items: 1 to 20 of 266

1.

Reply to Kranendonk et al.

Sénécal K, Thys K, Vears DF, Van Assche K, Knoppers BM, Borry P.

Eur J Hum Genet. 2016 Nov 23. doi: 10.1038/ejhg.2016.160. [Epub ahead of print] No abstract available.

PMID:
27876816
2.

Are Data Sharing and Privacy Protection Mutually Exclusive?

Joly Y, Dyke SO, Knoppers BM, Pastinen T.

Cell. 2016 Nov 17;167(5):1150-1154. doi: 10.1016/j.cell.2016.11.004.

PMID:
27863233
3.

The discombobulation of de-identification.

Phillips M, Knoppers BM.

Nat Biotechnol. 2016 Nov 8;34(11):1102-1103. doi: 10.1038/nbt.3696. No abstract available.

PMID:
27824850
4.

Data Sharing - Is the Juice Worth the Squeeze?

Strom BL, Buyse ME, Hughes J, Knoppers BM.

N Engl J Med. 2016 Oct 27;375(17):1608-1609. No abstract available.

5.

The Adoption of Cloud Computing in the Field of Genomics Research: The Influence of Ethical and Legal Issues.

Charlebois K, Palmour N, Knoppers BM.

PLoS One. 2016 Oct 18;11(10):e0164347. doi: 10.1371/journal.pone.0164347.

6.

International Biobanking Summit V: Harmonizing Privacy Laws to Enable International Biobank Research.

Bledsoe MJ, Henderson M, Tassé AM, Knoppers BM.

Biopreserv Biobank. 2016 Oct;14(5):452-453. No abstract available.

PMID:
27749136
7.

Registered access: a 'Triple-A' approach.

Dyke SO, Kirby E, Shabani M, Thorogood A, Kato K, Knoppers BM.

Eur J Hum Genet. 2016 Dec;24(12):1676-1680. doi: 10.1038/ejhg.2016.115.

PMID:
27677416
8.

Next-Generation Sequencing and the Return of Results.

Knoppers BM, Nguyen MT, Sénécal K, Tassé AM, Zawati MH.

Cold Spring Harb Perspect Med. 2016 Oct 3;6(10). pii: a026724. doi: 10.1101/cshperspect.a026724. Review.

PMID:
27599532
9.

Harmonizing Global Biospecimen Consent Practices to Advance Translational Research: A Call to Action.

Warner AW, Moore H, Reinhard D, Ball LA, Knoppers BM.

Clin Pharmacol Ther. 2016 Aug 25. doi: 10.1002/cpt.461. [Epub ahead of print]

PMID:
27558027
10.

Streamlining ethical review of data intensive research.

Townend D, Dove ES, Nicol D, Bovenberg J, Knoppers BM.

BMJ. 2016 Aug 2;354:i4181. doi: 10.1136/bmj.i4181. No abstract available.

PMID:
27486077
11.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium..

Am J Hum Genet. 2016 Jul 7;99(1):246. doi: 10.1016/j.ajhg.2016.06.002. No abstract available.

12.

International Charter of principles for sharing bio-specimens and data.

Mascalzoni D, Dove ES, Rubinstein Y, Dawkins HJ, Kole A, McCormack P, Woods S, Riess O, Schaefer F, Lochmüller H, Knoppers BM, Hansson M.

Eur J Hum Genet. 2016 Jul;24(7):1096. doi: 10.1038/ejhg.2015.237. No abstract available.

13.

Legal approaches regarding health-care decisions involving minors: implications for next-generation sequencing.

Sénécal K, Thys K, Vears DF, Van Assche K, Knoppers BM, Borry P.

Eur J Hum Genet. 2016 Nov;24(11):1559-1564. doi: 10.1038/ejhg.2016.61.

14.

Maelstrom Research guidelines for rigorous retrospective data harmonization.

Fortier I, Raina P, Van den Heuvel ER, Griffith LE, Craig C, Saliba M, Doiron D, Stolk RP, Knoppers BM, Ferretti V, Granda P, Burton P.

Int J Epidemiol. 2016 Jun 6. pii: dyw075. [Epub ahead of print]

15.

Comparative Approaches to Biobanks and Privacy.

Rothstein MA, Knoppers BM, Harrell HL.

J Law Med Ethics. 2016 Mar;44(1):161-72. doi: 10.1177/1073110516644207.

PMID:
27256132
16.

Don't Take It Personal: European Union Legal Aspects of Procuring and Protecting Environmental Exposure Data in Population Biobanks Through the Use of a Geo-Information-Systems Toolkit.

Bovenberg JA, de Hoogh K, Knoppers BM, Hveem K, Hansell AL.

Biopreserv Biobank. 2016 Jun;14(3):217-23. doi: 10.1089/bio.2016.0007.

PMID:
27187500
17.

Access Governance for Biobanks: The Case of the BioSHaRE-EU Cohorts.

Kaye J, Briceño Moraia L, Mitchell C, Bell J, Bovenberg JA, Tassé AM, Knoppers BM.

Biopreserv Biobank. 2016 Jun;14(3):201-6. doi: 10.1089/bio.2015.0124.

PMID:
27183185
18.

Clinical Sequencing Exploratory Research Consortium: Accelerating Evidence-Based Practice of Genomic Medicine.

Green RC, Goddard KA, Jarvik GP, Amendola LM, Appelbaum PS, Berg JS, Bernhardt BA, Biesecker LG, Biswas S, Blout CL, Bowling KM, Brothers KB, Burke W, Caga-Anan CF, Chinnaiyan AM, Chung WK, Clayton EW, Cooper GM, East K, Evans JP, Fullerton SM, Garraway LA, Garrett JR, Gray SW, Henderson GE, Hindorff LA, Holm IA, Lewis MH, Hutter CM, Janne PA, Joffe S, Kaufman D, Knoppers BM, Koenig BA, Krantz ID, Manolio TA, McCullough L, McEwen J, McGuire A, Muzny D, Myers RM, Nickerson DA, Ou J, Parsons DW, Petersen GM, Plon SE, Rehm HL, Roberts JS, Robinson D, Salama JS, Scollon S, Sharp RR, Shirts B, Spinner NB, Tabor HK, Tarczy-Hornoch P, Veenstra DL, Wagle N, Weck K, Wilfond BS, Wilhelmsen K, Wolf SM, Wynn J, Yu JH; CSER Consortium..

Am J Hum Genet. 2016 Jun 2;98(6):1051-66. doi: 10.1016/j.ajhg.2016.04.011.

19.

Facilitating a culture of responsible and effective sharing of cancer genome data.

Siu LL, Lawler M, Haussler D, Knoppers BM, Lewin J, Vis DJ, Liao RG, Andre F, Banks I, Barrett JC, Caldas C, Camargo AA, Fitzgerald RC, Mao M, Mattison JE, Pao W, Sellers WR, Sullivan P, Teh BT, Ward RL, ZenKlusen JC, Sawyers CL, Voest EE.

Nat Med. 2016 May 5;22(5):464-71. doi: 10.1038/nm.4089.

20.

A step forward for data protection and biomedical research.

Dove ES, Thompson B, Knoppers BM.

Lancet. 2016 Apr 2;387(10026):1374-5. doi: 10.1016/S0140-6736(16)30078-2. No abstract available.

PMID:
27115815
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