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Items: 1 to 20 of 29

1.

Ethics education for clinician-researchers in genetics: The combined approach.

Zawati M, Cohen E, Parry D, Avard D, Syncox D.

Appl Transl Genom. 2014 Dec 16;4:16-20. doi: 10.1016/j.atg.2014.12.001. eCollection 2015 Mar. Review.

2.

Public concerns regarding the storage and secondary uses of residual newborn bloodspots: an analysis of print media, legal cases, and public engagement activities.

Cunningham S, O'Doherty KC, Sénécal K, Secko D, Avard D.

J Community Genet. 2015 Apr;6(2):117-28. doi: 10.1007/s12687-014-0206-0. Epub 2014 Dec 23.

3.

To disclose, or not to disclose? Context matters.

Rahimzadeh V, Avard D, Sénécal K, Knoppers BM, Sinnett D.

Eur J Hum Genet. 2015 Mar;23(3):279-84. doi: 10.1038/ejhg.2014.108. Epub 2014 Jun 11.

4.

FORGE Canada Consortium: outcomes of a 2-year national rare-disease gene-discovery project.

Beaulieu CL, Majewski J, Schwartzentruber J, Samuels ME, Fernandez BA, Bernier FP, Brudno M, Knoppers B, Marcadier J, Dyment D, Adam S, Bulman DE, Jones SJ, Avard D, Nguyen MT, Rousseau F, Marshall C, Wintle RF, Shen Y, Scherer SW; FORGE Canada Consortium, Friedman JM, Michaud JL, Boycott KM.

Am J Hum Genet. 2014 Jun 5;94(6):809-17. doi: 10.1016/j.ajhg.2014.05.003.

5.

Public views on participating in newborn screening using genome sequencing.

Bombard Y, Miller FA, Hayeems RZ, Barg C, Cressman C, Carroll JC, Wilson BJ, Little J, Avard D, Painter-Main M, Allanson J, Giguere Y, Chakraborty P.

Eur J Hum Genet. 2014 Nov;22(11):1248-54. doi: 10.1038/ejhg.2014.22. Epub 2014 Feb 19.

6.

Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases.

Kleiderman E, Knoppers BM, Fernandez CV, Boycott KM, Ouellette G, Wong-Rieger D, Adam S, Richer J, Avard D.

J Med Ethics. 2014 Oct;40(10):691-6. doi: 10.1136/medethics-2013-101648. Epub 2013 Dec 19.

7.

Return of whole-genome sequencing results in paediatric research: a statement of the P3G international paediatrics platform.

Knoppers BM, Avard D, Sénécal K, Zawati MH; P3G International Paediatrics Platform Members.

Eur J Hum Genet. 2014 Jan;22(1):3-5. doi: 10.1038/ejhg.2013.176. Epub 2013 Aug 7. No abstract available. Erratum in: Eur J Hum Genet. 2014 Jan;22(1):153-4.

8.

Funding considerations for the disclosure of genetic incidental findings in biobank research.

Black L, Avard D, Zawati MH, Knoppers BM, Hébert J, Sauvageau G; Leucegene Project.

Clin Genet. 2013 Nov;84(5):397-406. doi: 10.1111/cge.12190. Epub 2013 Jun 10. Review.

9.

Physician recruitment of patients to non-therapeutic oncology clinical trials: ethics revisited.

Black L, Batist G, Avard D, Rousseau C, Diaz Z, Knoppers BM.

Front Pharmacol. 2013 Mar 11;4:25. doi: 10.3389/fphar.2013.00025. eCollection 2013.

10.

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research setting.

Fernandez CV, Strahlendorf C, Avard D, Knoppers BM, O'Connell C, Bouffet E, Malkin D, Jabado N, Boycott K, Sorensen PH.

Genet Med. 2013 Jul;15(7):558-64. doi: 10.1038/gim.2012.183. Epub 2013 Jan 31.

11.

Expectations and values about expanded newborn screening: a public engagement study.

Hayeems RZ, Miller FA, Bombard Y, Avard D, Carroll J, Wilson B, Little J, Chakraborty P, Bytautas J, Giguere Y, Allanson J, Axler R.

Health Expect. 2015 Jun;18(3):419-29. doi: 10.1111/hex.12047. Epub 2013 Feb 1.

12.

Emerging issues in paediatric health research consent forms in Canada: working towards best practices.

Dove ES, Avard D, Black L, Knoppers BM.

BMC Med Ethics. 2013 Jan 30;14:5. doi: 10.1186/1472-6939-14-5.

13.

Exploring resources for intrafamilial communication of cancer genetic risk: we still need to talk.

McClellan KA, Kleiderman E, Black L, Bouchard K, Dorval M, Simard J, Knoppers BM, Avard D.

Eur J Hum Genet. 2013 Sep;21(9):903-10. doi: 10.1038/ejhg.2012.286. Epub 2013 Jan 23.

14.

Intrafamilial disclosure of risk for hereditary breast and ovarian cancer: points to consider.

Black L, McClellan KA, Avard D, Knoppers BM.

J Community Genet. 2013 Apr;4(2):203-14. doi: 10.1007/s12687-012-0132-y. Epub 2012 Dec 29.

15.

Recruiting terminally ill patients into non-therapeutic oncology studies: views of health professionals.

Kleiderman E, Avard D, Black L, Diaz Z, Rousseau C, Knoppers BM.

BMC Med Ethics. 2012 Dec 5;13:33. doi: 10.1186/1472-6939-13-33.

16.

Personalized medicine and access to health care: potential for inequitable access?

McClellan KA, Avard D, Simard J, Knoppers BM.

Eur J Hum Genet. 2013 Feb;21(2):143-7. doi: 10.1038/ejhg.2012.149. Epub 2012 Jul 11.

17.

Beyond dissemination: A knowledge translation model to drive change in pediatric genetics.

Greenberg C, McClellan K, Avard D.

J Pediatr Genet. 2012 Mar;1(1):7-11. doi: 10.3233/PGE-2012-003. Review.

18.

Forward Look: Tenth Anniversary of the Human Genome Sequence and 21 Century Postgenomics Global Health - A Close Up on Africa and Women's Health.

Kamal SM, Warnich L, Ferguson LR, Srivastava S, Ray S, Avard D, Joly Y, Le Huynh M, Page M, Masellis M, Dove ES, Gurwitz D, Ozdemir V.

Curr Pharmacogenomics Person Med. 2011 Sep 1;9(3):148-155. No abstract available.

19.

Are the kids really all right? Direct-to-consumer genetic testing in children: are company policies clashing with professional norms?

Howard HC, Avard D, Borry P.

Eur J Hum Genet. 2011 Nov;19(11):1122-6. doi: 10.1038/ejhg.2011.94. Epub 2011 Jun 1.

20.

Reconsidering reproductive benefit through newborn screening: a systematic review of guidelines on preconception, prenatal and newborn screening.

Bombard Y, Miller FA, Hayeems RZ, Avard D, Knoppers BM.

Eur J Hum Genet. 2010 Jul;18(7):751-60. doi: 10.1038/ejhg.2010.13. Epub 2010 Mar 3. Review.

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