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Nurs Older People. 2019 Mar 22;31(2):18-24. doi: 10.7748/nop.2019.e1129.

Understanding quality of life and well-being for people living with advanced dementia.

Author information

1
College of health sciences, Bangor University, Bangor, Gwynedd, Wales.
2
Dementia studies, college of health sciences, Bangor University, Bangor, Gwynedd, Wales.

Abstract

AIM:

To investigate the quality of life (QoL) and well-being of people living with advanced dementia in care homes.

METHOD:

A mixed-methods approach was taken combining participant observations, interviews with the participants' families and carers, and quantitative measurements. The quantitative measures included AwareCare assessments, QoL in Late-Stage Dementia scale ratings and semi-structured interviews with relatives and staff members. Ryff's psychological well-being framework, the Fairness, Respect, Equality, Identity, Dignity, Autonomy principles, and Kitwood's indicators of well-being, were examined to attempt to identify contributors to QoL for people living with advanced dementia.

RESULTS:

Participants had limited verbal abilities, but used non-vocal behaviours to communicate. These behaviours influenced their QoL and well-being.

CONCLUSION:

The indicators of well-being in Kitwood's personhood model were helpful in describing how relatives and staff perceived the QoL of the person with dementia.

KEYWORDS:

advanced dementia; care homes; dementia; human rights; older people; quality of life; research; well-being

PMID:
31468780
DOI:
10.7748/nop.2019.e1129
[Indexed for MEDLINE]

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