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Curr Oncol. 2019 Jun;26(3):192-204. doi: 10.3747/co.26.4729. Epub 2019 Jun 1.

An integrated knowledge translation approach to develop a shared decision-making strategy for use by Inuit in cancer care: a qualitative study.

Author information

1
School of Rehabilitation Therapy, Queen's University, Kingston, ON.
2
Clinical Epidemiology Program, The Ottawa Hospital Research Institute, Ottawa, ON.
3
Tungasuvvingat Inuit, Ottawa, ON.
4
Indigenous Cancer Control Unit, Cancer Care Ontario, Toronto, ON.
5
The Ottawa Hospital, Ottawa, ON.
6
Larga Baffin, Ottawa, ON.
7
Ottawa Health Services Network Inc., Ottawa, ON.
8
Epidemiology and Public Health, University of Ottawa, Ottawa, ON.

Abstract

Background:

In relation to the general Canadian population, Inuit face increased cancer risks and barriers to health services use. In shared decision-making (sdm), health care providers and patients make health care decisions together. Enhanced participation in cancer care decisions is a need for Inuit. Integrated knowledge translation (kt) supports the development of research evidence that is likely to be patient-centred and applied in practice.

Objective:

Using an integrated kt approach, we set out to promote the use of sdm by Inuit in cancer care.

Methods:

An integrated kt study involving researchers with a Steering Committee of cancer care system partners who support Inuit in cancer care ("the team") consisted of 2 theory-driven phases:■ using consensus-building methods to tailor a previously developed sdm strategy and developing training in the sdm strategy; and■ training community support workers (csws) in the sdm strategy and testing the sdm strategy with community members.

Results:

The team developed a sdm strategy that included a workshop and a booklet with 6 questions for use by csws with patients. The sdm strategy (training and booklet) was finalized based on feedback from 5 urban-based Inuit csws who were recruited and trained in using the strategy. Trained csws were matched with 8 community members, and use of the sdm strategy was assessed during interviews, reported as 6 themes. Participants found the sdm strategy to be useful and feasible for use.

Conclusions:

An integrated kt approach of structured research processes with partners developed a sdm strategy for use by Inuit in cancer care. Further work is needed to test the sdm strategy.

KEYWORDS:

Inuit; co-creation; decision coaching; field tests; integrated knowledge translation; shared decision-making

Conflict of interest statement

CONFLICT OF INTEREST DISCLOSURES We have read and understood Current Oncology’s policy on disclosing conflicts of interest, and we declare that we have none.

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