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BMC Health Serv Res. 2019 Jun 17;19(1):390. doi: 10.1186/s12913-019-4227-6.

Health care stakeholder perspectives regarding the role of a patient navigator during transition to adult care.

Author information

1
Faculty of Social Work, Professional Faculties 4212, University of Calgary, 2500 University Dr. NW, Calgary, AB, T2N 1N4, Canada. gdimit@ucalgary.ca.
2
Department of Psychiatry, University of Calgary, Calgary, Alberta, Canada. gdimit@ucalgary.ca.
3
Alberta Children's Hospital Research Institute, Calgary, Alberta, Canada. gdimit@ucalgary.ca.
4
University of Calgary, Calgary, Alberta, Canada.
5
Faculty of Social Work, Professional Faculties 4212, University of Calgary, 2500 University Dr. NW, Calgary, AB, T2N 1N4, Canada.
6
Alberta Children's Hospital Research Institute, Calgary, Alberta, Canada.
7
Department of Pediatrics, University of Calgary, Calgary, Alberta, Canada.
8
Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada.
9
Department of Pediatrics, University of Alberta, Edmonton, Alberta, Canada.
10
Section of Pediatric Oncology and Blood and Marrow Transplant, Alberta Children's Hospital, Calgary, Alberta, Canada.
11
Section of Nephrology, Alberta Children's Hospital, Calgary, Alberta, Canada.
12
Department of Emergency Medicine, University of Calgary, Calgary, Alberta, Canada.
13
Department of Community Health Sciences, University of Calgary, Calgary, Alberta, Canada.
14
Department of Family Medicine, University of Calgary, Calgary, Alberta, Canada.
15
Section of Diabetes and Endocrinology, Alberta Children's Hospital, Calgary, Alberta, Canada.
16
Division of Cardiology, Stollery Children's Hospital, Edmonton, Alberta, Canada.

Abstract

BACKGROUND:

Transition to adult care represents a vulnerable period for young people with special health care needs as they navigate multiple life transitions and developmental issues. Patient navigators are a promising intervention designed to facilitate the transfer from pediatric to adult care. However, consistent definitions, key tasks, roles and responsibilities are lacking in guiding the scope of practice and the implementation of patient navigators.

METHODS:

Fundamental qualitative description was utilized in this study to identify perceptions from health care providers about implementing a patient navigator service for young people with special health care needs in transition to adult care. A purposive sample of health care providers with a variety of backgrounds within pediatric and adult systems in Alberta, Canada were recruited. Semi-structured interviews with participants were analyzed using thematic analysis to inductively identify perceptions regarding the role of patient navigators.

RESULTS:

A total of 43 health care providers highlighted the need for a patient navigator service to encompass 4 key stages for young people with special health care needs transitioning from pediatric to adult services: (1) identification of young people with special health care needs and families requiring support, (2) preparation for transfer, (3) health system navigation and, (4) post-transfer support.

CONCLUSIONS:

The results of this qualitative study provide guidance for the development of patient navigator interventions for young people with special health care needs, as well as provide support for current transition services offered across Canada.

KEYWORDS:

Adolescents; Chronic disease; Patient navigator (PN); Qualitative research; Special health care needs (SHCN); Transition age young people; Young adults

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