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Palliat Med. 2019 Apr;33(4):415-429. doi: 10.1177/0269216319834227. Epub 2019 Mar 11.

A systematic review and critical appraisal of quality indicators to assess optimal palliative care for older people with dementia.

Author information

1
1 Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, London, UK.
2
2 Centre for Research in Primary and Community Care, University of Hertfordshire, Hatfield, UK.
3
3 Institute for Ageing and Institute of Health & Society, Newcastle University, Newcastle upon Tyne, UK.

Abstract

BACKGROUND::

A challenge for commissioners and providers of end-of-life care in dementia is to translate recommendations for good or effective care into quality indicators that inform service development and evaluation.

AIM::

To identify and critically evaluate quality indicators for end-of-life care in dementia.

RESULTS::

We found 8657 references, after de-duplication. In all, 19 publications describing 10 new and 3 updated sets of indicators were included in this review. Ultimately, 246 individual indicators were identified as being relevant to dementia end-of-life care and mapped against EAPC guidelines.

CONCLUSIONS::

We systematically derived and assessed a set of quality indicators using a robust framework that provides clear definitions of aspects of palliative care, which are dementia specific, and strengthens the theoretical underpinning of new complex interventions in end-of-life care in dementia.

KEYWORDS:

Systematic review; dementia; end-of-life care; healthcare; palliative care; quality indicators; terminal care

PMID:
30854933
DOI:
10.1177/0269216319834227

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