Format

Send to

Choose Destination
BMJ Open. 2018 Aug 17;8(8):e022127. doi: 10.1136/bmjopen-2018-022127.

Measuring health-related quality of life of care home residents, comparison of self-report with staff proxy responses for EQ-5D-5L and HowRu: protocol for assessing proxy reliability in care home outcome testing.

Author information

1
Division of Medical Sciences and Graduate Entry Medicine, School of Medicine, University of Nottingham, Derby, UK.
2
Division of Epidemiology and Public Health, School of Medicine, University of Nottingham, Nottingham, UK.
3
East Midlands Academic Health Science Network, Nottingham, UK.
4
School of Economics, University of Surrey, Guildford, UK.
5
Institute of Mental Health, University of Nottingham, Nottingham, UK.
6
Division of Rehabilitation and Ageing, University of Nottingham, Nottingham, UK.
7
East Midlands Collaboration for Leadership in Applied Health Research and Care, Nottingham, UK.
8
National Institute for Health Research (NIHR) Nottingham Biomedical Research Centre, Nottingham.
9
School of Health Sciences, City, University of London, London, UK.

Abstract

INTRODUCTION:

Research into interventions to improve health and well-being for older people living in care homes is increasingly common. Health-related quality of life (HRQoL) is frequently used as an outcome measure, but collecting both self-reported and proxy HRQoL measures is challenging in this setting. This study will investigate the reliability of UK care home staff as proxy respondents for the EQ-5D-5L and HowRu measures.

METHODS AND ANALYSIS:

This is a prospective cohort study of a subpopulation of care home residents recruited to the larger Proactive Healthcare for Older People in Care Homes (PEACH) study. It will recruit residents ≥60 years across 24 care homes and not receiving short stay or respite care. The sample size is 160 participants. Resident and care home staff proxy EQ-5D-5L and HowRu responses will be collected monthly for 3 months. Weighted kappa statistics and intraclass correlation adjusted for clustering at the care home level will be used to measure agreement between resident and proxy responses. The extent to which staff variables (gender, age group, length of time caring, role, how well they know the resident, length of time working in care homes and in specialist gerontological practice) influence the level of agreement between self-reported and proxy responses will be considered using a multilevel mixed-effect regression model.

ETHICS AND DISSEMINATION:

The PEACH study protocol was reviewed by the UK Health Research Authority and University of Nottingham Research Ethics Committee and was determined to be a service development project. We will publish this study in a peer-reviewed journal with international readership and disseminate it through relevant national stakeholder networks and specialist societies.

KEYWORDS:

frailty; homes for the aged; quality of life

PMID:
30121605
PMCID:
PMC6104798
DOI:
10.1136/bmjopen-2018-022127
[Indexed for MEDLINE]
Free PMC Article

Supplemental Content

Full text links

Icon for HighWire Icon for PubMed Central
Loading ...
Support Center