Format

Send to

Choose Destination
See comment in PubMed Commons below
J Diabetes Sci Technol. 2017 Sep;11(5):980-987. doi: 10.1177/1932296817721938. Epub 2017 Aug 3.

Management and Family Burdens Endorsed by Parents of Youth <7 Years Old With Type 1 Diabetes.

Author information

1
1 Joslin Diabetes Center, Boston, MA, USA.
2
2 Jaeb Center for Health Research, Tampa, FL, USA.
3
3 Baylor College of Medicine and Texas Children's Hospital, Houston, TX, USA.
4
4 Yale School of Medicine, New Haven, CT, USA.
5
5 Indiana University School of Medicine, Indianapolis, IN, USA.

Abstract

BACKGROUND:

This study investigated unique burdens experienced by parents of young children with type 1 diabetes in the context of contemporary diabetes management.

METHODS:

Self-report surveys and medical record information from the T1D Exchange clinic registry were used. Parental burden and family impact scores were tabulated across demographic and clinical characteristics, overall and according to age group (<4, 4-<6, and 6-<7 years).

RESULTS:

The mean age of the 597 children was 5.2 ± 1.2 years (n = 111 <4 years, n = 291 4-<6 years, and n = 195 6-<7 years) and mean duration of diabetes was 2.4 ± 1.1 years. Mean hemoglobin A1c was 8.2% ± 1.1%. Approximately one-third (31%) reported their child was currently using CGM and over half (58%) reported using insulin pumps. The most frequently endorsed parent-reported burdens of diabetes were worrying about child having a low blood sugar (74%), about the future and possibility of serious complications (70%), and feeling upset when their child's diabetes management is "off track" (61%). Areas endorsed for negative family impact were diminished amount or quality of sleep for family members (59%) and need for flexible working arrangements to help care for their child (55%).

CONCLUSIONS:

Substantial burdens remain for parents of young children with type 1 diabetes, despite the availability of advanced technologies for diabetes management.

KEYWORDS:

Family Impact Survey; Problem Areas in Diabetes Survey; T1D Exchange Clinic Registry; type 1 diabetes; young children

PMID:
28770627
DOI:
10.1177/1932296817721938
PubMed Commons home

PubMed Commons

0 comments
How to join PubMed Commons

    Supplemental Content

    Full text links

    Icon for Atypon
    Loading ...
    Support Center