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Items: 1 to 20 of 38

1.

Recontacting patients in clinical genetics services: recommendations of the European Society of Human Genetics.

Carrieri D, Howard HC, Benjamin C, Clarke AJ, Dheensa S, Doheny S, Hawkins N, Halbersma-Konings TF, Jackson L, Kayserili H, Kelly SE, Lucassen AM, Mendes Á, Rial-Sebbag E, Stefánsdóttir V, Turnpenny PD, van El CG, van Langen IM, Cornel MC, Forzano F; European Society of Human Genetics.

Eur J Hum Genet. 2018 Oct 11. doi: 10.1038/s41431-018-0285-1. [Epub ahead of print]

PMID:
30310124
2.

Chapitre 6. Cells? safety in Europe: Towards an ethical safety.

Rial-Sebbag E, Mahalatchimy A, Duguet AM.

J Int Bioethique Ethique Sci. 2017 Oct 13;28(2):107-129. doi: 10.3917/jib.282.0107. French.

PMID:
29561103
3.

[Chapter 4. Governing Big Data for Health, national and international issues].

Rial-Sebbag E.

J Int Bioethique Ethique Sci. 2017 Oct 27;28(3):39-50. doi: 10.3917/jib.283.0039. French.

PMID:
29561098
4.

[Chapter 3. Governing the research on embryos].

Bioy X, Rial-Sebbag E.

J Int Bioethique Ethique Sci. 2018 Mar 7;28(4):55-76. doi: 10.3917/jib.284.0055. French.

PMID:
29561088
5.

Including all voices in international data-sharing governance.

Kaye J, Terry SF, Juengst E, Coy S, Harris JR, Chalmers D, Dove ES, Budin-Ljøsne I, Adebamowo C, Ogbe E, Bezuidenhout L, Morrison M, Minion JT, Murtagh MJ, Minari J, Teare H, Isasi R, Kato K, Rial-Sebbag E, Marshall P, Koenig B, Cambon-Thomsen A.

Hum Genomics. 2018 Mar 7;12(1):13. doi: 10.1186/s40246-018-0143-9.

6.

Responsible innovation in human germline gene editing: Background document to the recommendations of ESHG and ESHRE.

De Wert G, Heindryckx B, Pennings G, Clarke A, Eichenlaub-Ritter U, van El CG, Forzano F, Goddijn M, Howard HC, Radojkovic D, Rial-Sebbag E, Dondorp W, Tarlatzis BC, Cornel MC; European Society of Human Genetics and the European Society of Human Reproduction and Embryology.

Eur J Hum Genet. 2018 Apr;26(4):450-470. doi: 10.1038/s41431-017-0077-z. Epub 2018 Jan 12.

PMID:
29326429
7.

Human germline gene editing: Recommendations of ESHG and ESHRE.

de Wert G, Pennings G, Clarke A, Eichenlaub-Ritter U, van El CG, Forzano F, Goddijn M, Heindryckx B, Howard HC, Radojkovic D, Rial-Sebbag E, Tarlatzis BC, Cornel MC; European Society of Human Genetics and the European Society of Human Reproduction and Embryology.

Eur J Hum Genet. 2018 Apr;26(4):445-449. doi: 10.1038/s41431-017-0076-0. Epub 2018 Jan 12.

PMID:
29326428
8.

One small edit for humans, one giant edit for humankind? Points and questions to consider for a responsible way forward for gene editing in humans.

Howard HC, van El CG, Forzano F, Radojkovic D, Rial-Sebbag E, de Wert G, Borry P, Cornel MC; Public and Professional Policy Committee of the European Society of Human Genetics.

Eur J Hum Genet. 2018 Jan;26(1):1-11. doi: 10.1038/s41431-017-0024-z. Epub 2017 Nov 30.

9.

Legislation of direct-to-consumer genetic testing in Europe: a fragmented regulatory landscape.

Kalokairinou L, Howard HC, Slokenberga S, Fisher E, Flatscher-Thöni M, Hartlev M, van Hellemondt R, Juškevičius J, Kapelenska-Pregowska J, Kováč P, Lovrečić L, Nys H, de Paor A, Phillips A, Prudil L, Rial-Sebbag E, Romeo Casabona CM, Sándor J, Schuster A, Soini S, Søvig KH, Stoffel D, Titma T, Trokanas T, Borry P.

J Community Genet. 2018 Apr;9(2):117-132. doi: 10.1007/s12687-017-0344-2. Epub 2017 Nov 18.

10.

How to responsibly acknowledge research work in the era of big data and biobanks: ethical aspects of the Bioresource Research Impact Factor (BRIF).

Howard HC, Mascalzoni D, Mabile L, Houeland G, Rial-Sebbag E, Cambon-Thomsen A.

J Community Genet. 2018 Apr;9(2):169-176. doi: 10.1007/s12687-017-0332-6. Epub 2017 Sep 25.

11.

Mechanisms of the Development of Allergy (MeDALL): Introducing novel concepts in allergy phenotypes.

Anto JM, Bousquet J, Akdis M, Auffray C, Keil T, Momas I, Postma DS, Valenta R, Wickman M, Cambon-Thomsen A, Haahtela T, Lambrecht BN, Lodrup Carlsen KC, Koppelman GH, Sunyer J, Zuberbier T, Annesi-Maesano I, Arno A, Bindslev-Jensen C, De Carlo G, Forastiere F, Heinrich J, Kowalski ML, Maier D, Melén E, Smit HA, Standl M, Wright J, Asarnoj A, Benet M, Ballardini N, Garcia-Aymerich J, Gehring U, Guerra S, Hohmann C, Kull I, Lupinek C, Pinart M, Skrindo I, Westman M, Smagghe D, Akdis C, Andersson N, Bachert C, Ballereau S, Ballester F, Basagana X, Bedbrook A, Bergstrom A, von Berg A, Brunekreef B, Burte E, Carlsen KH, Chatzi L, Coquet JM, Curin M, Demoly P, Eller E, Fantini MP, von Hertzen L, Hovland V, Jacquemin B, Just J, Keller T, Kiss R, Kogevinas M, Koletzko S, Lau S, Lehmann I, Lemonnier N, Mäkelä M, Mestres J, Mowinckel P, Nadif R, Nawijn MC, Pellet J, Pin I, Porta D, Rancière F, Rial-Sebbag E, Saeys Y, Schuijs MJ, Siroux V, Tischer CG, Torrent M, Varraso R, Wenzel K, Xu CJ.

J Allergy Clin Immunol. 2017 Feb;139(2):388-399. doi: 10.1016/j.jaci.2016.12.940. Review.

PMID:
28183433
12.

Consent for Biobanking: The Legal Frameworks of Countries in the BioSHaRE-EU Project.

Kaye J, Briceño Moraia L, Curren L, Bell J, Mitchell C, Soini S, Hoppe N, Øien M, Rial-Sebbag E.

Biopreserv Biobank. 2016 Jun;14(3):195-200. doi: 10.1089/bio.2015.0123. Epub 2016 May 4.

13.

Feedback of Individual Genetic Results to Research Participants: Is It Feasible in Europe?

Budin-Ljøsne I, Mascalzoni D, Soini S, Machado H, Kaye J, Bentzen HB, Rial-Sebbag E, D'Abramo F, Witt M, Schamps G, Katić V, Krajnovic D, Harris JR.

Biopreserv Biobank. 2016 Jun;14(3):241-8. doi: 10.1089/bio.2015.0115. Epub 2016 Apr 15.

14.

[DOhaD and epigenetic information: societal challenges].

Rial-Sebbag E, Guibet Lafaye C, Simeoni U, Junien C.

Med Sci (Paris). 2016 Jan;32(1):100-5. doi: 10.1051/medsci/20163201016. Epub 2016 Feb 5. Review. French.

15.

Regulation of Biobanks in France.

Rial-Sebbag E, Pigeon A.

J Law Med Ethics. 2015 Winter;43(4):754-65. doi: 10.1111/jlme.12317.

PMID:
26711415
16.

Genome Editing and Dialogic Responsibility: "What's in a Name?".

Blasimme A, Anegon I, Concordet JP, De Vos J, Dubart-Kupperschmitt A, Fellous M, Fouchet P, Frydman N, Giovannangeli C, Jouannet P, Serre JL, Steffann J, Rial-Sebbag E, Thomsen M, Cambon-Thomsen A.

Am J Bioeth. 2015;15(12):54-7. doi: 10.1080/15265161.2015.1103811. No abstract available.

PMID:
26632366
17.

The impact of European embryonic stem cell patent decisions on research strategies.

Mahalatchimy A, Rial-Sebbag E, Duguet AM, Taboulet F, Cambon-Thomsen A.

Nat Biotechnol. 2015 Jan;33(1):41-3. doi: 10.1038/nbt.3105. No abstract available.

PMID:
25574634
18.

The European Court of Human Rights' ruling on unproven stem cell therapies: a missed opportunity?

Rial-Sebbag E, Blasimme A.

Stem Cells Dev. 2014 Dec;23 Suppl 1:39-43. doi: 10.1089/scd.2014.0361.

19.

[Personalized medicine, privatized medicine? legal and public health stakes].

Rial-Sebbag E.

Med Sci (Paris). 2014 Nov;30 Spec No 2:36-40. doi: 10.1051/medsci/201430s208. Epub 2014 Nov 17. French.

20.

[Academic cell therapy facilities are challenged by European regulation on advanced therapy medicinal products].

Chabannon C, Sabatier F, Rial-Sebbag E, Calmels B, Veran J, Magalon G, Lemarie C, Mahalatchimy A.

Med Sci (Paris). 2014 May;30(5):576-83. doi: 10.1051/medsci/20143005022. Epub 2014 Jun 13. French.

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