Format

Send to

Choose Destination
Am J Obstet Gynecol. 2019 Feb 18. pii: S0002-9378(19)30385-0. doi: 10.1016/j.ajog.2019.02.033. [Epub ahead of print]

Assessing research gaps and unmet needs in endometriosis.

Author information

1
Department of Obstetrics and Gynecology, University of Michigan, Ann Arbor, MI.
2
patient advocates, Fairfax, VA.
3
Department of Obstetrics, Gynecology, and Reproductive Sciences, University of California, San Francisco, San Francisco, CA.
4
White Dress Project, Atlanta, GA.
5
Department of Global and Community Health, George Mason University, Fairfax, VA.
6
Society for Women's Health Research, Washington, DC.
7
Division of Gynecology, Boston Children's Hospital, Harvard Medical School, Boston, MA; Division of Pediatric and Adolescent Gynecology, Brigham and Women's Hospital, Harvard Medical School, Boston, MA; Department of Obstetrics, Gynecology, and Reproductive Biology, Harvard Medical School, Boston, MA.
8
4Directions Counseling LLC, Bethlehem, PA.
9
Department of Epidemiology, Harvard T. H. Chan School of Public Health, Boston, MA; Department of Obstetrics, Gynecology, and Reproductive Biology, Michigan State University, East Lansing, MI.
10
patient advocates, Camden, ME.
11
Department of Obstetrics and Gynecology, University of Utah, Salt Lake City, UT.
12
Department of Obstetrics and Gynecology, University of Mississippi Medical Center, Jackson, MS.
13
Department of Obstetrics and Gynecology, Columbia University Medical Center, New York, NY.
14
Department of Obstetrics and Gynecology, University of British Columbia, Vancouver, BC, Canada.
15
Society for Women's Health Research, Washington, DC. Electronic address: science@swhr.org.

Abstract

Endometriosis, a systemic disease that is often painful and chronic, affects ∼10% of reproductive-age women. The disease can have a negative impact on a patient's physical and emotional well-being, quality of life, and productivity. Endometriosis also places significant economic and social burden on patients, their families, and society as a whole. Despite its high prevalence and cost, endometriosis remains underfunded and underresearched, greatly limiting our understanding of the disease and slowing much-needed innovation in diagnostic and treatment options. Due in part to the societal normalization of women's pain and stigma around menstrual issues, there is also a lack of disease awareness among patients, health care providers, and the public. The Society for Women's Health Research convened an interdisciplinary group of expert researchers, clinicians, and patients for a roundtable meeting to review the current state of the science on endometriosis and identify areas of need to improve a woman's diagnosis, treatment, and access to quality care. Comprehensive and interdisciplinary approaches to disease management and increased education and disease awareness for patients, health care providers, and the public are needed to remove stigma, increase timely and accurate diagnosis and treatment, and allow for new advancements.

KEYWORDS:

chronic pain; endometriosis; infertility; pelvic pain; stigma; women’s health

PMID:
30790565
DOI:
10.1016/j.ajog.2019.02.033

Supplemental Content

Full text links

Icon for Elsevier Science
Loading ...
Support Center