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Items: 1 to 20 of 228

1.

Communicating "cure" to pediatric oncology patients: A mixed-methods study.

Essig S, Michel G, Dupont C, Kiss A, Bergstraesser E, Tinner EM, Kuehni CE; Swiss Pediatric Oncology Group (SPOG).

Pediatr Blood Cancer. 2019 Feb 7:e27661. doi: 10.1002/pbc.27661. [Epub ahead of print]

PMID:
30729685
2.

Pulmonary exacerbations in patients with primary ciliary dyskinesia: an expert consensus definition for use in clinical trials.

Lucas JS, Gahleitner F, Amorim A, Boon M, Brown P, Constant C, Cook S, Crowley S, Destouches DMS, Eber E, Mussaffi H, Haarman E, Harris A, Koerner-Rettberg C, Kuehni CE, Latzin P, Loebinger MR, Lorent N, Maitre B, Moreno-Galdó A, Nielsen KG, Özçelik U, Philipsen LKD, Pohunek P, Polverino E, Rademacher J, Robinson P, Snijders D, Yiallouros P, Carr SB.

ERJ Open Res. 2019 Feb 1;5(1). pii: 00147-2018. doi: 10.1183/23120541.00147-2018. eCollection 2019 Feb.

3.

The Swiss Primary Ciliary Dyskinesia registry: objectives, methods and first results

Goutaki M, Eich MO, Halbeisen FS, Barben J, Casaulta C, Clarenbach C, Hafen G, Latzin P, Regamey N, Lazor R, Tschanz S, Zanolari M, Maurer E, Kuehni CE; Swiss PCD Registry (CH-PCD) Working Group.

Swiss Med Wkly. 2019 Jan 13;149. pii: w20004. doi: 10.4414/smw.2019.20004. eCollection 2019 Jan 1.

4.

Recommendations for ototoxicity surveillance for childhood, adolescent, and young adult cancer survivors: a report from the International Late Effects of Childhood Cancer Guideline Harmonization Group in collaboration with the PanCare Consortium.

Clemens E, van den Heuvel-Eibrink MM, Mulder RL, Kremer LCM, Hudson MM, Skinner R, Constine LS, Bass JK, Kuehni CE, Langer T, van Dalen EC, Bardi E, Bonne NX, Brock PR, Brooks B, Carleton B, Caron E, Chang KW, Johnston K, Knight K, Nathan PC, Orgel E, Prasad PK, Rottenberg J, Scheinemann K, de Vries ACH, Walwyn T, Weiss A, Am Zehnhoff-Dinnesen A, Cohn RJ, Landier W; International Guideline Harmonization Group ototoxicity group.

Lancet Oncol. 2019 Jan;20(1):e29-e41. doi: 10.1016/S1470-2045(18)30858-1. Review.

PMID:
30614474
5.

Comparison of two sweat test systems for the diagnosis of cystic fibrosis in newborns.

Rueegg CS, Kuehni CE, Gallati S, Jurca M, Jung A, Casaulta C, Barben J; Swiss Cystic Fibrosis Screening Group.

Pediatr Pulmonol. 2019 Mar;54(3):264-272. doi: 10.1002/ppul.24227. Epub 2019 Jan 4.

PMID:
30609259
6.

Variation in Endoscopic Activity Assessment and Endoscopy Score Validation in Adults with Eosinophilic Esophagitis.

Schoepfer AM, Hirano I, Coslovsky M, Roumet MC, Zwahlen M, Kuehni CE, Hafner D, Alexander JA, Dellon ES, Gonsalves N, Leung J, Bussmann C, Collins MH, Newbury RO, Smyrk TC, Woosley JT, Yang GY, Romero Y, Katzka DA, Furuta GT, Gupta SK, Aceves SS, Chehade M, Spergel JM, Falk GW, Meltzer BA, Comer GM, Straumann A, Safroneeva E; International EEsAI Study Group.

Clin Gastroenterol Hepatol. 2018 Nov 23. pii: S1542-3565(18)31275-8. doi: 10.1016/j.cgh.2018.11.032. [Epub ahead of print]

PMID:
30476587
7.

The Swiss Paediatric Airway Cohort (SPAC).

Pedersen ESL, de Jong CCM, Ardura-Garcia C, Barben J, Casaulta C, Frey U, Jochmann A, Latzin P, Moeller A, Regamey N, Singer F, Spycher B, Sutter O, Goutaki M, Kuehni CE.

ERJ Open Res. 2018 Nov 20;4(4). pii: 00050-2018. doi: 10.1183/23120541.00050-2018. eCollection 2018 Oct.

8.

Adults with eosinophilic oesophagitis identify symptoms and quality of life as the most important outcomes.

Safroneeva E, Balsiger L, Hafner D, Kuehni CE, Zwahlen M, Trelle S, Godat S, Biedermann L, Greuter T, Vavricka S, Straumann A, Schoepfer AM.

Aliment Pharmacol Ther. 2018 Nov;48(10):1082-1090. doi: 10.1111/apt.15000.

PMID:
30375682
9.

The Simple 10-Item Predicting Asthma Risk in Children Tool to Predict Childhood Asthma-An External Validation.

Pedersen ESL, Spycher BD, de Jong CCM, Halbeisen F, Ramette A, Gaillard EA, Granell R, Henderson AJ, Kuehni CE.

J Allergy Clin Immunol Pract. 2018 Oct 9. pii: S2213-2198(18)30609-3. doi: 10.1016/j.jaip.2018.09.032. [Epub ahead of print]

PMID:
30312804
10.

Hearing loss and quality of life in survivors of paediatric CNS tumours and other cancers.

Weiss A, Sommer G, Schindera C, Wengenroth L, Karow A, Diezi M, Michel G, Kuehni CE; Swiss Paediatric Oncology Group (SPOG).

Qual Life Res. 2019 Feb;28(2):515-521. doi: 10.1007/s11136-018-2021-2. Epub 2018 Oct 10.

PMID:
30306534
11.

Structural and Functional Lung Impairment in Primary Ciliary Dyskinesia. Assessment with Magnetic Resonance Imaging and Multiple Breath Washout in Comparison to Spirometry.

Nyilas S, Bauman G, Pusterla O, Sommer G, Singer F, Stranzinger E, Heyer C, Ramsey K, Schlegtendal A, Benzrath S, Casaulta C, Goutaki M, Kuehni CE, Bieri O, Koerner-Rettberg C, Latzin P.

Ann Am Thorac Soc. 2018 Dec;15(12):1434-1442. doi: 10.1513/AnnalsATS.201712-967OC.

12.

The PanCareSurFup consortium: research and guidelines to improve lives for survivors of childhood cancer.

Byrne J, Alessi D, Allodji RS, Bagnasco F, Bárdi E, Bautz A, Bright CJ, Brown M, Diallo I, Feijen EAML, Fidler MM, Frey E, Garwicz S, Grabow D, Gudmundsdottir T, Hagberg O, Harila-Saari A, Hau EM, Haupt R, Hawkins MM, Jakab Z, Jankovic M, Kaatsch P, Kaiser M, Kremer LCM, Kuehni CE, Kuonen R, Ladenstein R, Lähteenmäki PM, Levitt G, Linge H, LLanas D, Michel G, Morsellino V, Mulder RL, Reulen RC, Ronckers CM, Sacerdote C, Skinner R, Steliarova-Foucher E, van der Pal HJ, de Vathaire F, Vũ Bezin G, Wesenberg F, Wiebe T, Winter DL, Falck Winther J, Witthoff E, Zadravec Zaletel L, Hjorth L.

Eur J Cancer. 2018 Nov;103:238-248. doi: 10.1016/j.ejca.2018.08.017. Epub 2018 Oct 1.

PMID:
30286417
13.

PanCareLIFE: The scientific basis for a European project to improve long-term care regarding fertility, ototoxicity and health-related quality of life after cancer occurring among children and adolescents.

Byrne J, Grabow D, Campbell H, O'Brien K, Bielack S, Am Zehnhoff-Dinnesen A, Calaminus G, Kremer L, Langer T, van den Heuvel-Eibrink MM, van Dulmen-den Broeder E, Baust K, Bautz A, Beck JD, Berger C, Binder H, Borgmann-Staudt A, Broer L, Cario H, Casagranda L, Clemens E, Deuster D, de Vries A, Dirksen U, Falck Winther J, Fosså S, Font-Gonzalez A, Grandage V, Haupt R, Hecker-Nolting S, Hjorth L, Kaiser M, Kenborg L, Kepak T, Kepáková K, Knudsen LE, Krawczuk-Rybak M, Kruseova J, Kuehni CE, Kunstreich M, Kuonen R, Lackner H, Leiper A, Loeffen EAH, Luks A, Modan-Moses D, Mulder R, Parfitt R, Paul NW, Ranft A, Ruud E, Schilling R, Spix C, Stefanowicz J, Strauβ G, Uitterlinden AG, van den Berg M, van der Kooi AL, van Dijk M, van Leeuwen F, Zolk O, Zöller D, Kaatsch P; PanCareLIFE consortium.

Eur J Cancer. 2018 Nov;103:227-237. doi: 10.1016/j.ejca.2018.08.007. Epub 2018 Sep 29.

PMID:
30273888
14.

Prevalence and reasons for smoking in adolescent Swiss childhood cancer survivors.

Kasteler R, Belle F, Schindera C, Barben J, Gumy-Pause F, Tinner EM, Kuehni CE; Swiss Pediatric Oncology Group (SPOG).

Pediatr Blood Cancer. 2019 Jan;66(1):e27438. doi: 10.1002/pbc.27438. Epub 2018 Sep 21.

PMID:
30239111
15.

Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE).

van den Berg M, van Dijk M, Byrne J, Campbell H, Berger C, Borgmann-Staudt A, Calaminus G, Dirksen U, Winther JF, Fossa SD, Grabow D, Grandage VL, van den Heuvel-Eibrink MM, Kaiser M, Kepak T, Kremer LC, Kruseova J, Kuehni CE, Lambalk CB, van Leeuwen FE, Leiper A, Modan-Moses D, Morsellino V, Spix C, Kaatsch P, van Dulmen-den Broeder E; PanCareLIFE Consortium.

JMIR Res Protoc. 2018 Sep 14;7(9):e10824. doi: 10.2196/10824.

16.

Neighbourhood child population density as a proxy measure for exposure to respiratory infections in the first year of life: A validation study.

Lupatsch JE, Kreis C, Korten I, Latzin P, Frey U, Kuehni CE, Spycher BD.

PLoS One. 2018 Sep 12;13(9):e0203743. doi: 10.1371/journal.pone.0203743. eCollection 2018.

17.

Epidemiology of blood culture-proven bacterial sepsis in children in Switzerland: a population-based cohort study.

Agyeman PKA, Schlapbach LJ, Giannoni E, Stocker M, Posfay-Barbe KM, Heininger U, Schindler M, Korten I, Konetzny G, Niederer-Loher A, Kahlert CR, Donas A, Leone A, Hasters P, Relly C, Baer W, Kuehni CE, Aebi C, Berger C; Swiss Pediatric Sepsis Study.

Lancet Child Adolesc Health. 2017 Oct;1(2):124-133. doi: 10.1016/S2352-4642(17)30010-X. Epub 2017 Jul 21.

PMID:
30169202
18.

Risk of Meningioma in European Patients Treated With Growth Hormone in Childhood: Results From the SAGhE Cohort.

Swerdlow AJ, Cooke R, Beckers D, Butler G, Carel JC, Cianfarani S, Clayton P, Coste J, Deodati A, Ecosse E, Hokken-Koelega ACS, Khan AJ, Kiess W, Kuehni CE, Flück CE, Pfaffle R, Sävendahl L, Sommer G, Thomas M, Tidblad A, Tollerfield S, Zandwijken GRJ.

J Clin Endocrinol Metab. 2019 Mar 1;104(3):658-664. doi: 10.1210/jc.2018-01133.

19.

No evidence of overweight in long-term survivors of childhood cancer after glucocorticoid treatment.

Belle FN, Kasteler R, Schindera C, Bochud M, Ammann RA, von der Weid NX, Kuehni CE; Swiss Pediatric Oncology Group (SPOG).

Cancer. 2018 Sep 1;124(17):3576-3585. doi: 10.1002/cncr.31599. Epub 2018 Aug 17.

PMID:
30119140
20.

Respiratory rate in infants with cystic fibrosis throughout the first year of life and association with lung clearance index measured shortly after birth.

Korten I, Kieninger E, Yammine S, Cangiano G, Nyilas S, Anagnostopoulou P, Singer F, Kuehni CE, Regamey N, Frey U, Casaulta C, Spycher BD, Latzin P; SCILD; BILD study group.

J Cyst Fibros. 2019 Jan;18(1):118-126. doi: 10.1016/j.jcf.2018.07.002. Epub 2018 Jul 27.

PMID:
30060960

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