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Items: 19

1.

Evolving approaches to the ethical management of genomic data.

McEwen JE, Boyer JT, Sun KY.

Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

2.

Stakeholders' perspectives on biobank-based genomic research: systematic review of the literature.

Husedzinovic A, Ose D, Schickhardt C, Fröhling S, Winkler EC.

Eur J Hum Genet. 2015 Dec;23(12):1607-14. doi: 10.1038/ejhg.2015.27. Epub 2015 Mar 4. Review.

3.

Managing the ethical challenges of next-generation sequencing in genomic medicine.

Clarke AJ.

Br Med Bull. 2014 Sep;111(1):17-30. doi: 10.1093/bmb/ldu017. Epub 2014 Aug 13. Review.

PMID:
25122627
4.

Is informed consent broken?

Henderson GE.

Am J Med Sci. 2011 Oct;342(4):267-72. doi: 10.1097/MAJ.0b013e31822a6c47. Review.

PMID:
21817873
5.

Informed consent for human genetic and genomic studies: a systematic review.

Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.

Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
24646408
6.

Genomics and privacy: implications of the new reality of closed data for the field.

Greenbaum D, Sboner A, Mu XJ, Gerstein M.

PLoS Comput Biol. 2011 Dec;7(12):e1002278. doi: 10.1371/journal.pcbi.1002278. Epub 2011 Dec 1. Review.

7.

Ethical issues raised by whole genome sequencing.

Pinxten W, Howard HC.

Best Pract Res Clin Gastroenterol. 2014 Apr;28(2):269-79. doi: 10.1016/j.bpg.2014.02.004. Epub 2014 Mar 12. Review.

PMID:
24810188
8.
9.

The ethical use of existing samples for genome research.

Bathe OF, McGuire AL.

Genet Med. 2009 Oct;11(10):712-5. doi: 10.1097/GIM.0b013e3181b2e168. Review.

PMID:
19745750
10.

[Ethical issues in genome-era].

Kosugi S.

Nihon Rinsho. 2016 Jun;74(6):1022-7. Review. Japanese.

PMID:
27311196
11.

Ethical, legal, and social implications of incorporating genomic information into electronic health records.

Hazin R, Brothers KB, Malin BA, Koenig BA, Sanderson SC, Rothstein MA, Williams MS, Clayton EW, Kullo IJ.

Genet Med. 2013 Oct;15(10):810-6. doi: 10.1038/gim.2013.117. Epub 2013 Sep 12. Review.

12.

Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.

Cook-Deegan R, Ankeny RA, Maxson Jones K.

Annu Rev Genomics Hum Genet. 2017 Aug 31;18:389-415. doi: 10.1146/annurev-genom-083115-022515. Epub 2017 Apr 17. Review.

13.

Stop, look, and listen: revisiting the involvement of children and adolescents in genomic research.

Driessnack M, Gallo AM.

Annu Rev Nurs Res. 2011;29:133-49. Review.

PMID:
22891502
14.

The Ethics of Big Data: Current and Foreseeable Issues in Biomedical Contexts.

Mittelstadt BD, Floridi L.

Sci Eng Ethics. 2016 Apr;22(2):303-41. doi: 10.1007/s11948-015-9652-2. Epub 2015 May 23. Review.

PMID:
26002496
15.

From genetic privacy to open consent.

Lunshof JE, Chadwick R, Vorhaus DB, Church GM.

Nat Rev Genet. 2008 May;9(5):406-11. doi: 10.1038/nrg2360. Review.

PMID:
18379574
16.

Valid consent for genomic epidemiology in developing countries.

Chokshi DA, Thera MA, Parker M, Diakite M, Makani J, Kwiatkowski DP, Doumbo OK.

PLoS Med. 2007 Apr;4(4):e95. Review. No abstract available.

17.

Next generation sequencing in psychiatric research: what study participants need to know about research findings.

Mathieu G, Groisman IJ, Godard B.

Int J Neuropsychopharmacol. 2013 Oct;16(9):2119-27. doi: 10.1017/S1461145713000527. Epub 2013 Jun 3. Review.

PMID:
23725748
18.

Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.

Abdul-Karim R, Berkman BE, Wendler D, Rid A, Khan J, Badgett T, Hull SC.

Pediatrics. 2013 Mar;131(3):564-71. doi: 10.1542/peds.2012-0084. Epub 2013 Feb 11. Review. Erratum in: Pediatrics. 2013 Jul;132(1):172.

19.

Participatory Genomic Research: Ethical Issues from the Bottom Up to the Top Down.

Aungst H, Fishman JR, McGowan ML.

Annu Rev Genomics Hum Genet. 2017 Aug 31;18:357-367. doi: 10.1146/annurev-genom-091416-035230. Epub 2017 Apr 19. Review.

PMID:
28426284

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