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Items: 10

1.

Do researchers have an obligation to actively look for genetic incidental findings?

Gliwa C, Berkman BE.

Am J Bioeth. 2013;13(2):32-42. doi: 10.1080/15265161.2012.754062.

2.

Should genetic findings from genome research be reported back to the participants?

Steinsbekk KS, Solberg B.

Tidsskr Nor Laegeforen. 2012 Oct 16;132(19):2190-3. Review. English, Norwegian.

PMID:
23243670
3.

The law of incidental findings in human subjects research: establishing researchers' duties.

Wolf SM, Paradise J, Caga-anan C.

J Law Med Ethics. 2008 Summer;36(2):361-83, 214. doi: 10.1111/j.1748-720X.2008.00281.x. Review.

4.

Disclosure of incidental findings from next-generation sequencing in pediatric genomic research.

Abdul-Karim R, Berkman BE, Wendler D, Rid A, Khan J, Badgett T, Hull SC.

Pediatrics. 2013 Mar;131(3):564-71. doi: 10.1542/peds.2012-0084. Epub 2013 Feb 11. Review. Erratum in: Pediatrics. 2013 Jul;132(1):172.

5.

The ancillary-care responsibilities of researchers: reasonable but not great expectations.

Brownsword R.

J Law Med Ethics. 2007 Winter;35(4):679-91, 513. Review.

PMID:
18076518
6.

Trust based obligations of the state and physician-researchers to patient-subjects.

Miller PB, Weijer C.

J Med Ethics. 2006 Sep;32(9):542-7. Review.

7.

Funding considerations for the disclosure of genetic incidental findings in biobank research.

Black L, Avard D, Zawati MH, Knoppers BM, H├ębert J, Sauvageau G; Leucegene Project.

Clin Genet. 2013 Nov;84(5):397-406. doi: 10.1111/cge.12190. Epub 2013 Jun 10. Review.

8.

Managing incidental findings in human subjects research: analysis and recommendations.

Wolf SM, Lawrenz FP, Nelson CA, Kahn JP, Cho MK, Clayton EW, Fletcher JG, Georgieff MK, Hammerschmidt D, Hudson K, Illes J, Kapur V, Keane MA, Koenig BA, Leroy BS, McFarland EG, Paradise J, Parker LS, Terry SF, Van Ness B, Wilfond BS.

J Law Med Ethics. 2008 Summer;36(2):219-48, 211. doi: 10.1111/j.1748-720X.2008.00266.x. Review.

9.

Return of individual research results and incidental findings: facing the challenges of translational science.

Wolf SM.

Annu Rev Genomics Hum Genet. 2013;14:557-77. doi: 10.1146/annurev-genom-091212-153506. Epub 2013 Jul 15. Review.

10.

Bridging philosophical and practical implications of incidental findings in brain research.

Illes J, Chin VN.

J Law Med Ethics. 2008 Summer;36(2):298-304, 212. doi: 10.1111/j.1748-720X.2008.00273.x. Review.

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