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Items: 18

1.

Recommendations for ethical approaches to genotype-driven research recruitment.

Beskow LM, Fullerton SM, Namey EE, Nelson DK, Davis AM, Wilfond BS.

Hum Genet. 2012 Sep;131(9):1423-31. doi: 10.1007/s00439-012-1177-z. Epub 2012 May 24.

2.

Informed consent in emergency research. Consensus statement from the Coalition Conference of Acute Resuscitation and Critical Care Researchers.

Biros MH, Lewis RJ, Olson CM, Runge JW, Cummins RO, Fost N.

JAMA. 1995 Apr 26;273(16):1283-7. Review.

PMID:
7715041
3.

Issues in data monitoring and interim analysis of trials.

Grant AM, Altman DG, Babiker AB, Campbell MK, Clemens FJ, Darbyshire JH, Elbourne DR, McLeer SK, Parmar MK, Pocock SJ, Spiegelhalter DJ, Sydes MR, Walker AE, Wallace SA; DAMOCLES study group.

Health Technol Assess. 2005 Mar;9(7):1-238, iii-iv. Review.

4.

Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Ries NM, LeGrandeur J, Caulfield T.

BMC Med Ethics. 2010 Mar 23;11:4. doi: 10.1186/1472-6939-11-4. Review.

5.

Ethics in population-based genetic research.

DeCamp M, Sugarman J.

Account Res. 2004 Jan-Mar;11(1):1-26. Review.

PMID:
15341044
6.

Bioethics for clinicians: 10. Research ethics.

Weijer C, Dickens B, Meslin EM.

CMAJ. 1997 Apr 15;156(8):1153-7. Review.

7.

Cell-based interventions for neurologic conditions: ethical challenges for early human trials.

Mathews DJ, Sugarman J, Bok H, Blass DM, Coyle JT, Duggan P, Finkel J, Greely HT, Hillis A, Hoke A, Johnson R, Johnston M, Kahn J, Kerr D, Kurtzberg J, Liao SM, McDonald JW, McKhann G, Nelson KB, Rao M, Regenberg A, Siegel AW, Smith K, Solter D, Song H, Vescovi A, Young W, Gearhart JD, Faden R.

Neurology. 2008 Jul 22;71(4):288-93. doi: 10.1212/01.wnl.0000316436.13659.80. Epub 2008 May 7. Review.

PMID:
18463365
8.

Getting meaningful informed consent from older adults: a structured literature review of empirical research.

Sugarman J, McCrory DC, Hubal RC.

J Am Geriatr Soc. 1998 Apr;46(4):517-24. Review.

PMID:
9560079
9.

Informed consent for genetic research on stored tissue samples.

Clayton EW, Steinberg KK, Khoury MJ, Thomson E, Andrews L, Kahn MJ, Kopelman LM, Weiss JO.

JAMA. 1995 Dec 13;274(22):1786-92. Review.

PMID:
7500511
10.

Proxy and surrogate consent in geriatric neuropsychiatric research: update and recommendations.

Kim SY, Appelbaum PS, Jeste DV, Olin JT.

Am J Psychiatry. 2004 May;161(5):797-806. Review.

PMID:
15121642
11.

The need for evidence-based research ethics: a review of the substance abuse literature.

Anderson EE, DuBois JM.

Drug Alcohol Depend. 2007 Jan 12;86(2-3):95-105. Epub 2006 Aug 22. Review.

PMID:
16930856
12.

Informed consent in clinical research: Consensus recommendations for reform identified by an expert interview panel.

Lorell BH, Mikita JS, Anderson A, Hallinan ZP, Forrest A.

Clin Trials. 2015 Dec;12(6):692-5. doi: 10.1177/1740774515594362. Epub 2015 Jul 15.

13.

[Recent topics on ethical issues in psychiatry, mental care and welfare].

Takahashi K.

Seishin Shinkeigaku Zasshi. 2002;104(9):725-34. Review. Japanese.

PMID:
12481440
14.

Research ethics, informed consent, and participant recruitment.

Steinke EE.

Clin Nurse Spec. 2004 Mar-Apr;18(2):88-95; quiz 96-7. Review.

PMID:
15164670
15.

Contemporary Issues for Protecting Patients in Cancer Research: Workshop Summary.

National Cancer Policy Forum, Board on Health Care Services, Institute of Medicine.

Washington (DC): National Academies Press (US); 2014 Sep 19.

16.

Waiver of informed consent in pediatric resuscitation research: a systematic review.

Eltorki M, Uleryk E, Freedman SB.

Acad Emerg Med. 2013 Aug;20(8):822-34. doi: 10.1111/acem.12180. Review.

17.

Ethical challenges in neonatal research: Summary report of the ethics group of the newborn drug development initiative.

Baer GR, Nelson RM; Ethics Group of the Newborn Drug Development Initiative.

Clin Ther. 2006 Sep;28(9):1399-407. Review.

PMID:
17062312
18.

Ethical and regulatory considerations in HIV prevention studies employing respondent-driven sampling.

Semaan S, Santibanez S, Garfein RS, Heckathorn DD, Des Jarlais DC.

Int J Drug Policy. 2009 Jan;20(1):14-27. doi: 10.1016/j.drugpo.2007.12.006. Epub 2008 Feb 19. Review.

PMID:
18243679

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