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Items: 12

1.

Development of six PROMIS pediatrics proxy-report item banks.

Irwin DE, Gross HE, Stucky BD, Thissen D, DeWitt EM, Lai JS, Amtmann D, Khastou L, Varni JW, DeWalt DA.

Health Qual Life Outcomes. 2012 Feb 22;10:22. doi: 10.1186/1477-7525-10-22.

3.

Recent advances in patient and proxy-reported quality of life research.

Bandayrel K, Johnston BC.

Health Qual Life Outcomes. 2014 Aug 29;12:110. doi: 10.1186/s12955-014-0110-7. Review.

4.

Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting.

Morris C, Janssens A, Allard A, Thompson Coon J, Shilling V, Tomlinson R, Williams J, Fellowes A, Rogers M, Allen K, Beresford B, Green C, Jenkinson C, Tennant A, Logan S.

Southampton (UK): NIHR Journals Library; 2014 May.

5.

A comprehensive systematic review of the development process of 104 patient-reported outcomes (PROs) for physical activity in chronically ill and elderly people.

Frei A, Williams K, Vetsch A, Dobbels F, Jacobs L, Rüdell K, Puhan MA; PROactive consortium..

Health Qual Life Outcomes. 2011 Dec 20;9:116. doi: 10.1186/1477-7525-9-116. Review.

6.

Development of an online library of patient-reported outcome measures in gastroenterology: the GI-PRO database.

Khanna P, Agarwal N, Khanna D, Hays RD, Chang L, Bolus R, Melmed G, Whitman CB, Kaplan RM, Ogawa R, Snyder B, Spiegel BM.

Am J Gastroenterol. 2014 Feb;109(2):234-48. doi: 10.1038/ajg.2013.401. Review.

7.

Conceptual and methodological advances in child-reported outcomes measurement.

Bevans KB, Riley AW, Moon J, Forrest CB.

Expert Rev Pharmacoecon Outcomes Res. 2010 Aug;10(4):385-96. doi: 10.1586/erp.10.52. Review.

8.

Patient-reported physical activity questionnaires: a systematic review of content and format.

Williams K, Frei A, Vetsch A, Dobbels F, Puhan MA, Rüdell K.

Health Qual Life Outcomes. 2012 Mar 13;10:28. doi: 10.1186/1477-7525-10-28. Review.

9.

Minimally Important Differences in Patient or Proxy-Reported Outcome Studies Relevant to Children: A Systematic Review.

Ebrahim S, Vercammen K, Sivanand A, Guyatt GH, Carrasco-Labra A, Fernandes RM, Crawford MW, Nesrallah G, Johnston BC.

Pediatrics. 2017 Mar;139(3). pii: e20160833. doi: 10.1542/peds.2016-0833. Review.

PMID:
28196931
10.

Measurement invariance across chronic conditions: a systematic review and an empirical investigation of the Health Education Impact Questionnaire (heiQ™).

Schuler M, Musekamp G, Bengel J, Nolte S, Osborne RH, Faller H.

Health Qual Life Outcomes. 2014 Apr 23;12:56. doi: 10.1186/1477-7525-12-56. Review.

11.

Pain assessment using the adolescent pediatric pain tool: a systematic review.

Fernandes AM, De Campos C, Batalha L, Perdigão A, Jacob E.

Pain Res Manag. 2014 Jul-Aug;19(4):212-8. Review.

12.

The future of measuring patient-reported outcomes in rheumatology: Patient-Reported Outcomes Measurement Information System (PROMIS).

Khanna D, Krishnan E, Dewitt EM, Khanna PP, Spiegel B, Hays RD.

Arthritis Care Res (Hoboken). 2011 Nov;63 Suppl 11:S486-90. doi: 10.1002/acr.20581. Review. No abstract available.

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