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Items: 1 to 20 of 34

1.

Retrospective access to data: the ENGAGE consent experience.

Tassé AM, Budin-Ljøsne I, Knoppers BM, Harris JR.

Eur J Hum Genet. 2010 Jul;18(7):741-5. doi: 10.1038/ejhg.2010.30. Epub 2010 Mar 24.

2.

Handling ethical, legal and social issues in birth cohort studies involving genetic research: responses from studies in six countries.

Ries NM, LeGrandeur J, Caulfield T.

BMC Med Ethics. 2010 Mar 23;11:4. doi: 10.1186/1472-6939-11-4. Review.

3.

Biobanking and deceased persons.

Tassé AM.

Hum Genet. 2011 Sep;130(3):415-23. doi: 10.1007/s00439-011-1049-y. Epub 2011 Jun 25. Review.

PMID:
21706182
4.

The ethics of research biobanking: a critical review of the literature.

Hoeyer K.

Biotechnol Genet Eng Rev. 2008;25:429-52. Review.

PMID:
21412365
5.

Commercial biobanks and genetic research: ethical and legal issues.

Anderlik M.

Am J Pharmacogenomics. 2003;3(3):203-15. Review.

PMID:
12814328
6.

Returning genetic research results to individuals: points-to-consider.

Renegar G, Webster CJ, Stuerzebecher S, Harty L, Ide SE, Balkite B, Rogalski-Salter TA, Cohen N, Spear BB, Barnes DM, Brazell C.

Bioethics. 2006 Feb;20(1):24-36. Review.

PMID:
16680905
7.

Sampling populations of humans across the world: ELSI issues.

Knoppers BM, Zawati MH, Kirby ES.

Annu Rev Genomics Hum Genet. 2012;13:395-413. doi: 10.1146/annurev-genom-090711-163834. Epub 2012 Mar 8. Review.

PMID:
22404491
8.

Children and biobanks: a review of the ethical and legal discussion.

Hens K, Lévesque E, Dierickx K.

Hum Genet. 2011 Sep;130(3):403-13. doi: 10.1007/s00439-011-1031-8. Epub 2011 Jun 10. Review.

PMID:
21660506
9.

Tackling legal challenges posed by population biobanks: reconceptualising consent requirements.

Otlowski MF.

Med Law Rev. 2012 Spring;20(2):191-226. doi: 10.1093/medlaw/fwr035. Epub 2012 Jan 29. Review.

PMID:
22290730
10.

Ethical challenges in biobanking: moving the agenda forward in India.

Vaz M, Vaz M, Srinivasan K.

Indian J Med Ethics. 2014 Apr 1;11(2):79-88. Review.

PMID:
24727618
11.

Informed consent for human genetic and genomic studies: a systematic review.

Khan A, Capps BJ, Sum MY, Kuswanto CN, Sim K.

Clin Genet. 2014 Sep;86(3):199-206. doi: 10.1111/cge.12384. Epub 2014 Apr 18. Review.

PMID:
24646408
12.
13.

Should donors be allowed to give broad consent to future biobank research?

Hansson MG, Dillner J, Bartram CR, Carlson JA, Helgesson G.

Lancet Oncol. 2006 Mar;7(3):266-9. Review.

PMID:
16510336
14.

The uneasy ethical and legal underpinnings of large-scale genomic biobanks.

Greely HT.

Annu Rev Genomics Hum Genet. 2007;8:343-64. Review.

PMID:
17550341
15.

The tension between data sharing and the protection of privacy in genomics research.

Kaye J.

Annu Rev Genomics Hum Genet. 2012;13:415-31. doi: 10.1146/annurev-genom-082410-101454. Epub 2012 Mar 9. Review.

16.

Informed consent in experimentation involving mentally impaired persons: ethical issues.

Petrini C.

Ann Ist Super Sanita. 2010;46(4):411-21. doi: DOI: 10.4415/ANN_10_04_09. Review.

17.

[Patient's consent to treatment with reference to the development of medical ethics].

Nasiłowski W.

Wiad Lek. 2007;60(3-4):198-200. Review. Polish.

PMID:
17726878
18.

Ethical issues in tissue banking for research: a brief review of existing organizational policies.

Bauer K, Taub S, Parsi K.

Theor Med Bioeth. 2004;25(2):113-42. Review.

PMID:
15368750
19.

Participation in biobanks for research by incapacitated adults: review and discussion of current guidelines.

Togni E, Dierickx K, Porteri C.

Int J Geriatr Psychiatry. 2014 Jul;29(7):670-81. doi: 10.1002/gps.4059. Epub 2013 Dec 16. Review.

PMID:
24338764
20.

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