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Items: 1 to 20 of 51

1.

Waiving informed consent in newborn screening research: balancing social value and respect.

Tarini BA, Burke W, Scott CR, Wilfond BS.

Am J Med Genet C Semin Med Genet. 2008 Feb 15;148C(1):23-30. doi: 10.1002/ajmg.c.30164.

PMID:
18200521
2.

Balancing benefits and risks for cystic fibrosis newborn screening: implications for policy decisions.

Wilfond BS, Parad RB, Fost N.

J Pediatr. 2005 Sep;147(3 Suppl):S109-13. Review.

PMID:
16202773
3.

Expanded newborn screening: social and ethical issues.

Dhondt JL.

J Inherit Metab Dis. 2010 Oct;33(Suppl 2):S211-7. doi: 10.1007/s10545-010-9138-y. Epub 2010 Jun 11. Review.

PMID:
20544288
4.
5.

Newborn screening cards: a legal quagmire.

Bowman DM, Studdert DM.

Med J Aust. 2011 Mar 21;194(6):319-22. Review.

PMID:
21426290
6.

Is meconium screening appropriate for universal use? Science and ethics say no.

Marcellus L.

Adv Neonatal Care. 2007 Aug;7(4):207-14. Review.

PMID:
17700195
7.

Newborn screening: ethical, legal, and social implications.

Anderson R, Rothwell E, Botkin JR.

Annu Rev Nurs Res. 2011;29:113-32. Review.

PMID:
22891501
8.

Understanding newborn screening system issues with emphasis on cystic fibrosis screening.

Therrell BL, Lloyd-Puryear MA, Mann MY.

J Pediatr. 2005 Sep;147(3 Suppl):S6-10. Review.

PMID:
16202785
9.

Newborn screening: new developments, new dilemmas.

Kerruish NJ, Robertson SP.

J Med Ethics. 2005 Jul;31(7):393-8. Review.

10.

Navigating the maze of newborn screening.

Spahis JK, Bowers NR.

MCN Am J Matern Child Nurs. 2006 May-Jun;31(3):190-6. Review.

PMID:
16679962
11.

Some ethical and design challenges of screening programs and screening tests.

McQueen MJ.

Clin Chim Acta. 2002 Jan;315(1-2):41-8. Review.

PMID:
11728409
12.

A primer on expanded newborn screening by tandem mass spectrometry.

McCandless SE.

Prim Care. 2004 Sep;31(3):583-604, ix-x. Review.

PMID:
15331249
13.

Ethical problems with neonatal screening.

Orzalesi M, Danhaive O.

Ann Ist Super Sanita. 2009;45(3):325-30. Review.

14.

Update: newborn screening for endocrinopathies.

Pass KA, Neto EC.

Endocrinol Metab Clin North Am. 2009 Dec;38(4):827-37. doi: 10.1016/j.ecl.2009.08.005. Review.

PMID:
19944295
15.

Time-efficient strategies to ensure vaccine risk/benefit communication.

Tenrreiro KN.

J Pediatr Nurs. 2005 Dec;20(6):469-76. Review.

PMID:
16298289
16.

Neonatal screening for sickle cell disorders.

Henthorn JS, Almeida AM, Davies SC.

Br J Haematol. 2004 Feb;124(3):259-63. Review. No abstract available.

PMID:
14717772
17.

Policy issues related to expanded newborn screening: a review of three genetic/metabolic disorders.

Bishop Hubbard H.

Policy Polit Nurs Pract. 2007 Aug;8(3):201-9. doi: 10.1177/1527154407303498. Review.

PMID:
18178927
18.

[Compliance, conscious participation, and informed consent in tumor screening programs].

Segnan N, Armaroli P.

Epidemiol Prev. 1999 Oct-Dec;23(4):387-91. Review. Italian.

PMID:
10730482
19.

[Generalized neonatal screening based on laboratory tests].

Ardaillou R, Le Gall JY.

Bull Acad Natl Med. 2006 Nov;190(8):1745-59. Review. French.

PMID:
17650757
20.

Challenges in implementing a successful newborn cystic fibrosis screening program.

Comeau AM, Parad R, Gerstle R, O'Sullivan BP, Dorkin HL, Dovey M, Haver K, Martin T, Eaton RB.

J Pediatr. 2005 Sep;147(3 Suppl):S89-93. Review.

PMID:
16202791

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