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Items: 1 to 20 of 22


An activist's argument that participant values should guide risk-benefit ratio calculations in HIV cure research.

Evans D.

J Med Ethics. 2017 Feb;43(2):100-103. doi: 10.1136/medethics-2015-103120. Epub 2017 Jan 6.


Ethical considerations for informed consent in infertility research: The use of electronic health records.

Wells KJ, Gordon JR, Su HI, Plosker S, Quinn GP.

Adv Med Ethics. 2015;2. pii: 7. Epub 2015 Dec 21.


An open access pilot freely sharing cancer genomic data from participants in Texas.

Becnel LB, Pereira S, Drummond JA, Gingras MC, Covington KR, Kovar CL, Doddapaneni HV, Hu J, Muzny D, McGuire AL, Wheeler DA, Gibbs RA.

Sci Data. 2016 Feb 16;3:160010. doi: 10.1038/sdata.2016.10.


Research participants' perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.

D'Abramo F, Schildmann J, Vollmann J.

BMC Med Ethics. 2015 Sep 9;16:60. doi: 10.1186/s12910-015-0053-5. Review.


Informed Consent: An Ethical Issue in Conducting Research with Male Partner Violent Offenders.

Crane CA, Hawes SW, Mandel D, Easton CJ.

Ethics Behav. 2013;23(6):477-488.


Participants' understanding of informed consent in clinical trials over three decades: systematic review and meta-analysis.

Tam NT, Huy NT, Thoa le TB, Long NP, Trang NT, Hirayama K, Karbwang J.

Bull World Health Organ. 2015 Mar 1;93(3):186-98H. doi: 10.2471/BLT.14.141390. Epub 2015 Jan 22. Review.


Reported consent processes and demographics: a substudy of the INSIGHT Strategic Timing of AntiRetroviral Treatment (START) trial.

Denning E, Sharma S, Smolskis M, Touloumi G, Walker S, Babiker A, Clewett M, Emanuel E, Florence E, Papadopoulos A, Sánchez A, Tavel J, Grady C; International Network for Strategic Initiatives in Global HIV Trials (INSIGHT) START Study Group.

HIV Med. 2015 Apr;16 Suppl 1:24-9. doi: 10.1111/hiv.12230.


The definition of placebo in the informed consent forms of clinical trials.

Hernández A, Baños JE, Llop C, Farré M.

PLoS One. 2014 Nov 25;9(11):e113654. doi: 10.1371/journal.pone.0113654. eCollection 2014.


Open access data sharing in genomic research.

Pereira S, Gibbs RA, McGuire AL.

Genes (Basel). 2014 Aug 29;5(3):739-47. doi: 10.3390/genes5030739.


Participants' recall and understanding of genomic research and large-scale data sharing.

Robinson JO, Slashinski MJ, Wang T, Hilsenbeck SG, McGuire AL.

J Empir Res Hum Res Ethics. 2013 Oct;8(4):42-52. doi: 10.1525/jer.2013.8.4.42.


Returning genetic research results: study type matters.

McGuire AL, Robinson JO, Ramoni RB, Morley DS, Jofe S, Plon SE.

Per Med. 2013 Jan;10(1):27-34.


An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting.

Chalil Madathil K, Koikkara R, Obeid J, Greenstein JS, Sanderson IC, Fryar K, Moskowitz J, Gramopadhye AK.

Int J Med Inform. 2013 Sep;82(9):854-63. doi: 10.1016/j.ijmedinf.2013.04.008. Epub 2013 Jun 10.


A booklet on participants' rights to improve consent for clinical research: a randomized trial.

Benatar JR, Mortimer J, Stretton M, Stewart RA.

PLoS One. 2012;7(10):e47023. doi: 10.1371/journal.pone.0047023. Epub 2012 Oct 19.


Perspectives on human microbiome research ethics.

McGuire AL, Achenbaum LS, Whitney SN, Slashinski MJ, Versalovic J, Keitel WA, McCurdy SA.

J Empir Res Hum Res Ethics. 2012 Jul;7(3):1-14. doi: 10.1525/jer.2012.7.3.1.


The quality of informed consent: mapping the landscape. A review of empirical data from developing and developed countries.

Mandava A, Pace C, Campbell B, Emanuel E, Grady C.

J Med Ethics. 2012 Jun;38(6):356-65. doi: 10.1136/medethics-2011-100178. Epub 2012 Feb 7. Review.


Repeated assessments of informed consent comprehension among HIV-infected participants of a three-year clinical trial in Botswana.

Chaisson LH, Kass NE, Chengeta B, Mathebula U, Samandari T.

PLoS One. 2011;6(10):e22696. doi: 10.1371/journal.pone.0022696. Epub 2011 Oct 27.


Can patient decision aids help people make good decisions about participating in clinical trials? A study protocol.

Brehaut JC, Lott A, Fergusson DA, Shojania KG, Kimmelman J, Saginur R.

Implement Sci. 2008 Jul 23;3:38. doi: 10.1186/1748-5908-3-38.


Ethics in studies on children and environmental health.

Merlo DF, Knudsen LE, Matusiewicz K, Niebrój L, Vähäkangas KH.

J Med Ethics. 2007 Jul;33(7):408-13. Review.


Quality of parental consent in a Ugandan malaria study.

Pace C, Talisuna A, Wendler D, Maiso F, Wabwire-Mangen F, Bakyaita N, Okiria E, Garrett-Mayer ES, Emanuel E, Grady C.

Am J Public Health. 2005 Jul;95(7):1184-9. Epub 2005 Jun 2.

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