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Items: 1 to 20 of 24

1.
2.

Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach.

Culhane-Pera KA, Straka RJ, Moua M, Roman Y, Vue P, Xiaaj K, Lo MX, Lor M.

J Community Genet. 2017 Apr;8(2):117-125. doi: 10.1007/s12687-017-0292-x. Epub 2017 Jan 10.

3.

Leaves imitate trees: Minnesota Hmong concepts of heredity and applications to genomics research.

Culhane-Pera KA, Moua M, Vue P, Xiaaj K, Lo MX, Straka RJ.

J Community Genet. 2017 Jan;8(1):23-34. doi: 10.1007/s12687-016-0284-2. Epub 2016 Nov 7.

4.

Ethical Considerations for the Return of Incidental Findings in Ophthalmic Genomic Research.

Souzeau E, Burdon KP, Mackey DA, Hewitt AW, Savarirayan R, Otlowski M, Craig JE.

Transl Vis Sci Technol. 2016 Feb 9;5(1):3. eCollection 2016 Feb.

5.

Obtaining informed consent for genomics research in Africa: analysis of H3Africa consent documents.

Munung NS, Marshall P, Campbell M, Littler K, Masiye F, Ouwe-Missi-Oukem-Boyer O, Seeley J, Stein DJ, Tindana P, de Vries J.

J Med Ethics. 2016 Feb;42(2):132-7. doi: 10.1136/medethics-2015-102796. Epub 2015 Dec 7.

6.

Genomics and infectious disease: a call to identify the ethical, legal and social implications for public health and clinical practice.

Geller G, Dvoskin R, Thio CL, Duggal P, Lewis MH, Bailey TC, Sutherland A, Salmon DA, Kahn JP.

Genome Med. 2014 Nov 18;6(11):106. doi: 10.1186/s13073-014-0106-2. eCollection 2014.

7.

Consenting for current genetic research: is Canadian practice adequate?

Jaitovich Groisman I, Egalite N, Godard B.

BMC Med Ethics. 2014 Nov 20;15:80. doi: 10.1186/1472-6939-15-80.

8.

Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.

Bui ET, Anderson NK, Kassem L, McMahon FJ.

PLoS One. 2014 Jul 1;9(7):e101111. doi: 10.1371/journal.pone.0101111. eCollection 2014.

9.

Research capacity. Enabling the genomic revolution in Africa.

H3Africa Consortium, Rotimi C, Abayomi A, Abimiku A, Adabayeri VM, Adebamowo C, Adebiyi E, Ademola AD, Adeyemo A, Adu D, Affolabi D, Agongo G, Ajayi S, Akarolo-Anthony S, Akinyemi R, Akpalu A, Alberts M, Alonso Betancourt O, Alzohairy AM, Ameni G, Amodu O, Anabwani G, Andersen K, Arogundade F, Arulogun O, Asogun D, Bakare R, Balde N, Baniecki ML, Beiswanger C, Benkahla A, Bethke L, Boehnke M, Boima V, Brandful J, Brooks AI, Brosius FC, Brown C, Bucheton B, Burke DT, Burnett BG, Carrington-Lawrence S, Carstens N, Chisi J, Christoffels A, Cooper R, Cordell H, Crowther N, Croxton T, de Vries J, Derr L, Donkor P, Doumbia S, Duncanson A, Ekem I, El Sayed A, Engel ME, Enyaru JC, Everett D, Fadlelmola FM, Fakunle E, Fischbeck KH, Fischer A, Folarin O, Gamieldien J, Garry RF, Gaseitsiwe S, Gbadegesin R, Ghansah A, Giovanni M, Goesbeck P, Gomez-Olive FX, Grant DS, Grewal R, Guyer M, Hanchard NA, Happi CT, Hazelhurst S, Hennig BJ, Hertz- C, Fowler, Hide W, Hilderbrandt F, Hugo-Hamman C, Ibrahim ME, James R, Jaufeerally-Fakim Y, Jenkins C, Jentsch U, Jiang PP, Joloba M, Jongeneel V, Joubert F, Kader M, Kahn K, Kaleebu P, Kapiga SH, Kassim SK, Kasvosve I, Kayondo J, Keavney B, Kekitiinwa A, Khan SH, Kimmel P, King MC, Kleta R, Koffi M, Kopp J, Kretzler M, Kumuthini J, Kyobe S, Kyobutungi C, Lackland DT, Lacourciere KA, Landouré G, Lawlor R, Lehner T, Lesosky M, Levitt N, Littler K, Lombard Z, Loring JF, Lyantagaye S, Macleod A, Madden EB, Mahomva CR, Makani J, Mamven M, Marape M, Mardon G, Marshall P, Martin DP, Masiga D, Mason R, Mate-Kole M, Matovu E, Mayige M, Mayosi BM, Mbanya JC, McCurdy SA, McCarthy MI, McIlleron H, Mc'Ligeyo SO, Merle C, Mocumbi AO, Mondo C, Moran JV, Motala A, Moxey-Mims M, Mpoloka WS, Msefula CL, Mthiyane T, Mulder N, Mulugeta Gh, Mumba D, Musuku J, Nagdee M, Nash O, Ndiaye D, Nguyen AQ, Nicol M, Nkomazana O, Norris S, Nsangi B, Nyarko A, Nyirenda M, Obe E, Obiakor R, Oduro A, Ofori-Acquah SF, Ogah O, Ogendo S, Ohene-Frempong K, Ojo A, Olanrewaju T, Oli J, Osafo C, Ouwe Missi Oukem-Boyer O, Ovbiagele B, Owen A, Owolabi MO, Owolabi L, Owusu-Dabo E, Pare G, Parekh R, Patterton HG, Penno MB, Peterson J, Pieper R, Plange-Rhule J, Pollak M, Puzak J, Ramesar RS, Ramsay M, Rasooly R, Reddy S, Sabeti PC, Sagoe K, Salako T, Samassékou O, Sandhu MS, Sankoh O, Sarfo FS, Sarr M, Shaboodien G, Sidibe I, Simo G, Simuunza M, Smeeth L, Sobngwi E, Soodyall H, Sorgho H, Sow Bah O, Srinivasan S, Stein DJ, Susser ES, Swanepoel C, Tangwa G, Tareila A, Tastan Bishop O, Tayo B, Tiffin N, Tinto H, Tobin E, Tollman SM, Traoré M, Treadwell MJ, Troyer J, Tsimako-Johnstone M, Tukei V, Ulasi I, Ulenga N, van Rooyen B, Wachinou AP, Waddy SP, Wade A, Wayengera M, Whitworth J, Wideroff L, Winkler CA, Winnicki S, Wonkam A, Yewondwos M, sen T, Yozwiak N, Zar H.

Science. 2014 Jun 20;344(6190):1346-8. doi: 10.1126/science.1251546. No abstract available.

10.

Voluntary participation and comprehension of informed consent in a genetic epidemiological study of breast cancer in Nigeria.

Marshall PA, Adebamowo CA, Adeyemo AA, Ogundiran TO, Strenski T, Zhou J, Rotimi CN.

BMC Med Ethics. 2014 May 13;15:38. doi: 10.1186/1472-6939-15-38.

11.

Current status, challenges, policies, and bioethics of biobanks.

Kang B, Park J, Cho S, Lee M, Kim N, Min H, Lee S, Park O, Han B.

Genomics Inform. 2013 Dec;11(4):211-7. doi: 10.5808/GI.2013.11.4.211. Epub 2013 Dec 31. Review.

12.

Patient compliance based on genetic medicine: a literature review.

Schneider KI, Schmidtke J.

J Community Genet. 2014 Jan;5(1):31-48. doi: 10.1007/s12687-013-0160-2. Epub 2013 Aug 10.

13.

Recruiting for epigenetic research: facilitating the informed consent process.

Jallo N, Lyon DE, Kinser PA, Kelly DL, Menzies V, Jackson-Cook C.

Nurs Res Pract. 2013;2013:935740. doi: 10.1155/2013/935740. Epub 2013 Jun 6.

14.

Why personalized medicine will fail if we stay the course.

Ramos E, Callier SL, Rotimi CN.

Per Med. 2012 Nov;9(8):839-847.

15.

Evolving approaches to the ethical management of genomic data.

McEwen JE, Boyer JT, Sun KY.

Trends Genet. 2013 Jun;29(6):375-82. doi: 10.1016/j.tig.2013.02.001. Epub 2013 Feb 28. Review.

16.

Use of next generation sequencing technologies in research and beyond: are participants with mental health disorders fully protected?

Groisman IJ, Mathieu G, Godard B.

BMC Med Ethics. 2012 Dec 20;13:36. doi: 10.1186/1472-6939-13-36. Review.

17.

Understanding participation by African Americans in cancer genetics research.

McDonald JA, Barg FK, Weathers B, Guerra CE, Troxel AB, Domchek S, Bowen D, Shea JA, Halbert CH.

J Natl Med Assoc. 2012 Jul-Aug;104(7-8):324-30.

18.

Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.

Facio FM, Sapp JC, Linn A, Biesecker LG.

BMC Med Genomics. 2012 Oct 10;5:45. doi: 10.1186/1755-8794-5-45.

19.

Seeking consent to genetic and genomic research in a rural Ghanaian setting: a qualitative study of the MalariaGEN experience.

Tindana P, Bull S, Amenga-Etego L, de Vries J, Aborigo R, Koram K, Kwiatkowski D, Parker M.

BMC Med Ethics. 2012 Jul 2;13:15. doi: 10.1186/1472-6939-13-15.

20.

To tell or not to tell? A systematic review of ethical reflections on incidental findings arising in genetics contexts.

Christenhusz GM, Devriendt K, Dierickx K.

Eur J Hum Genet. 2013 Mar;21(3):248-55. doi: 10.1038/ejhg.2012.130. Epub 2012 Jun 27. Review.

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