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Items: 1 to 20 of 21


Assessing capacity to consent for research in cognitively impaired older patients.

Gilbert T, Bosquet A, Thomas-Antérion C, Bonnefoy M, Le Saux O.

Clin Interv Aging. 2017 Sep 26;12:1553-1563. doi: 10.2147/CIA.S141905. eCollection 2017. Review.


Is Safety in the Eye of the Beholder? Safeguards in Research With Adults With Intellectual Disability.

McDonald KE, Conroy NE, Kim CI, LoBraico EJ, Prather EM, Olick RS.

J Empir Res Hum Res Ethics. 2016 Dec;11(5):424-438. doi: 10.1177/1556264616651182. Epub 2016 Jul 31.


Surrogate consent to non-beneficial research: erring on the right side when substituted judgments may be inaccurate.

Johansson M, Broström L.

Theor Med Bioeth. 2016 Apr;37(2):149-60. doi: 10.1007/s11017-016-9363-y.


Acceptable Approaches to Enrolling Adults Who Cannot Consent in More Than Minimal Risk Research.

Danis M, Wendler D, Kim S.

Am J Bioeth. 2015;15(10):70-1. doi: 10.1080/15265161.2015.1075806. No abstract available.


Research involving subjects with Alzheimer's disease in Italy: the possible role of family members.

Porteri C, Petrini C.

BMC Med Ethics. 2015 Mar 4;16:12. doi: 10.1186/s12910-015-0009-9.


Why are spousal caregivers more prevalent than nonspousal caregivers as study partners in AD dementia clinical trials?

Cary MS, Rubright JD, Grill JD, Karlawish J.

Alzheimer Dis Assoc Disord. 2015 Jan-Mar;29(1):70-4. doi: 10.1097/WAD.0000000000000047.


Public's approach to surrogate consent for dementia research: cautious pragmatism.

De Vries R, Ryan KA, Stanczyk A, Appelbaum PS, Damschroder L, Knopman DS, Kim SY.

Am J Geriatr Psychiatry. 2013 Apr;21(4):364-72. doi: 10.1016/j.jagp.2012.11.010. Epub 2013 Jan 12.


How important is 'accuracy' of surrogate decision-making for research participation?

Kim SY, Kim HM, Ryan KA, Appelbaum PS, Knopman DS, Damschroder L, De Vries R.

PLoS One. 2013;8(1):e54790. doi: 10.1371/journal.pone.0054790. Epub 2013 Jan 31.


Ethics in Psychiatric Research: A Review of 25 Years of NIH-funded Empirical Research Projects.

Dubois J, Bante H, Hadley WB.

AJOB Prim Res. 2011 Jan 1;2(4):5-17. Epub 2011 Dec 6.


Using data to improve surrogate consent for clinical research with incapacitated adults.

Abdoler E, Wendler D.

J Empir Res Hum Res Ethics. 2012 Apr;7(2):37-50. doi: 10.1525/jer.2012.7.2.37.


Promoting advance planning for health care and research among older adults: a randomized controlled trial.

Bravo G, Arcand M, Blanchette D, Boire-Lavigne AM, Dubois MF, Guay M, Hottin P, Lane J, Lauzon J, Bellemare S.

BMC Med Ethics. 2012 Jan 5;13:1. doi: 10.1186/1472-6939-13-1.


Effect of public deliberation on attitudes toward surrogate consent for dementia research.

Kim SY, Kim HM, Knopman DS, De Vries R, Damschroder L, Appelbaum PS.

Neurology. 2011 Dec 13;77(24):2097-104. doi: 10.1212/WNL.0b013e31823648cb. Epub 2011 Oct 5.


Methodological challenges in physical activity research with older adults.

Chase JA.

West J Nurs Res. 2013 Jan;35(1):76-97. doi: 10.1177/0193945911416829. Epub 2011 Aug 5.


The ethics of informed consent in Alzheimer disease research.

Kim SY.

Nat Rev Neurol. 2011 May 24;7(7):410-4. doi: 10.1038/nrneurol.2011.76. Review.


Preservation of the capacity to appoint a proxy decision maker: implications for dementia research.

Kim SY, Karlawish JH, Kim HM, Wall IF, Bozoki AC, Appelbaum PS.

Arch Gen Psychiatry. 2011 Feb;68(2):214-20. doi: 10.1001/archgenpsychiatry.2010.191.


Surrogate consent for research involving adults with impaired decision making: survey of Institutional Review Board practices.

Gong MN, Winkel G, Rhodes R, Richardson LD, Silverstein JH.

Crit Care Med. 2010 Nov;38(11):2146-54. doi: 10.1097/CCM.0b013e3181f26fe6.


Temporal stability of receptiveness to clinical research on Alzheimer disease.

Lingler JH, Rubin D, Saxton JA.

Alzheimer Dis Assoc Disord. 2010 Jul-Sep;24 Suppl:S30-4. doi: 10.1097/WAD.0b013e3181f14ac0.


How are the interests of incapacitated research participants protected through legislation? An Italian study on legal agency for dementia patients.

Gainotti S, Fusari Imperatori S, Spila-Alegiani S, Maggiore L, Galeotti F, Vanacore N, Petrini C, Raschetti R, Mariani C, Clerici F.

PLoS One. 2010 Jun 16;5(6):e11150. doi: 10.1371/journal.pone.0011150.


Deliberative assessment of surrogate consent in dementia research.

Kim SY, Uhlmann RA, Appelbaum PS, Knopman DS, Kim HM, Damschroder L, Beattie E, Struble L, De Vries R.

Alzheimers Dement. 2010 Jul;6(4):342-50. doi: 10.1016/j.jalz.2009.06.001. Epub 2010 Feb 26.

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