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Items: 1 to 20 of 45

1.
2.

Improving biobank consent comprehension: a national randomized survey to assess the effect of a simplified form and review/retest intervention.

Beskow LM, Lin L, Dombeck CB, Gao E, Weinfurt KP.

Genet Med. 2017 May;19(5):505-512. doi: 10.1038/gim.2016.157. Epub 2016 Oct 13.

3.

Genome privacy: challenges, technical approaches to mitigate risk, and ethical considerations in the United States.

Wang S, Jiang X, Singh S, Marmor R, Bonomi L, Fox D, Dow M, Ohno-Machado L.

Ann N Y Acad Sci. 2017 Jan;1387(1):73-83. doi: 10.1111/nyas.13259. Epub 2016 Sep 28. Review.

PMID:
27681358
4.

Development and Validation of the Biomedical Research Trust Scale (BRTS) in English and Spanish.

Baik SH, Arevalo M, Gwede C, Meade CD, Jacobsen PB, Quinn GP, Wells KJ.

J Empir Res Hum Res Ethics. 2016 Oct;11(4):346-356. doi: 10.1177/1556264616668973. Epub 2016 Sep 21.

PMID:
27646400
5.

Enhancing Biospecimen Knowledge Among Health Care Providers and Representatives From Community Organizations.

Tham HM, Hohl S, Copeland W, Briant KJ, Márquez-Magaña L, Thompson B.

Health Promot Pract. 2017 Sep;18(5):715-725. doi: 10.1177/1524839916641069. Epub 2016 Apr 26.

PMID:
27118784
6.

Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.

Beskow LM.

Annu Rev Genomics Hum Genet. 2016 Aug 31;17:395-417. doi: 10.1146/annurev-genom-083115-022536. Epub 2016 Mar 3. Review.

7.

Parental perspectives on consent for participation in large-scale, non-biological data repositories.

Manhas KP, Page S, Dodd SX, Letourneau N, Ambrose A, Cui X, Tough SC.

Life Sci Soc Policy. 2016;12:1. doi: 10.1186/s40504-016-0034-6. Epub 2016 Jan 20.

8.

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters ML, Clayton EW.

Genet Med. 2016 Jul;18(7):663-71. doi: 10.1038/gim.2015.138. Epub 2015 Nov 19.

9.

To Share or Not to Share? A Survey of Biomedical Researchers in the U.S. Southwest, an Ethnically Diverse Region.

Oushy MH, Palacios R, Holden AE, Ramirez AG, Gallion KJ, O'Connell MA.

PLoS One. 2015 Sep 17;10(9):e0138239. doi: 10.1371/journal.pone.0138239. eCollection 2015.

10.

Barriers and Strategies to Participation in Tissue Research Among African-American Men.

Drake BF, Boyd D, Carter K, Gehlert S, Thompson VS.

J Cancer Educ. 2017 Mar;32(1):51-58. doi: 10.1007/s13187-015-0905-1.

PMID:
26341221
11.

Family decision maker perspectives on the return of genetic results in biobanking research.

Siminoff LA, Traino HM, Mosavel M, Barker L, Gudger G, Undale A.

Genet Med. 2016 Jan;18(1):82-8. doi: 10.1038/gim.2015.38. Epub 2015 Apr 9.

12.

EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California.

Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D; in collaboration with UC BRAID.

Clin Transl Sci. 2015 Aug;8(4):362-6. doi: 10.1111/cts.12259. Epub 2015 Jan 10.

13.

Sharing the Knowledge: Sharing Aggregate Genomic Findings with Research Participants in Developing Countries.

Kerasidou A.

Dev World Bioeth. 2015 Dec;15(3):267-74. doi: 10.1111/dewb.12071. Epub 2014 Oct 8. Review.

14.

Association of acculturation, nativity, and years living in the United States with biobanking among individuals of Mexican descent.

Lopez DS, Fernandez ME, Cano MA, Mendez C, Tsai CL, Wetter DW, Strom SS.

Cancer Epidemiol Biomarkers Prev. 2014 Mar;23(3):402-8. doi: 10.1158/1055-9965.EPI-13-0747.

15.

Impact of a biospecimen collection seminar on willingness to donate biospecimens among Chinese Americans: results from a randomized, controlled community-based trial.

Tong EK, Fung LC, Stewart SL, Paterniti DA, Dang JH, Chen MS Jr.

Cancer Epidemiol Biomarkers Prev. 2014 Mar;23(3):392-401. doi: 10.1158/1055-9965.EPI-13-0744.

16.

Community engagement in US biobanking: multiplicity of meaning and method.

Haldeman KM, Cadigan RJ, Davis A, Goldenberg A, Henderson GE, Lassiter D, Reavely E.

Public Health Genomics. 2014;17(2):84-94. doi: 10.1159/000357958. Epub 2014 Feb 19.

17.

Risk, reward, and the double-edged sword: perspectives on pharmacogenetic research and clinical testing among Alaska Native people.

Shaw JL, Robinson R, Starks H, Burke W, Dillard DA.

Am J Public Health. 2013 Dec;103(12):2220-5. doi: 10.2105/AJPH.2013.301596. Epub 2013 Oct 17.

18.

Incidental findings: the time is not yet ripe for a policy for biobanks.

Viberg J, Hansson MG, Langenskiöld S, Segerdahl P.

Eur J Hum Genet. 2014 Apr;22(4):437-41. doi: 10.1038/ejhg.2013.217. Epub 2013 Sep 25.

19.

Factors influencing public participation in biobanking.

Ahram M, Othman A, Shahrouri M, Mustafa E.

Eur J Hum Genet. 2014 Apr;22(4):445-51. doi: 10.1038/ejhg.2013.174. Epub 2013 Aug 7.

20.

Awareness and interest in biospecimen donation for cancer research: views from gatekeepers and prospective participants in the Latino community.

Rodriguez EM, Torres ET, Erwin DO.

J Community Genet. 2013 Oct;4(4):461-8. doi: 10.1007/s12687-013-0152-2. Epub 2013 Jun 4.

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