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Items: 1 to 20 of 59

1.

Germline contamination and leakage in whole genome somatic single nucleotide variant detection.

Sendorek DH, Caloian C, Ellrott K, Bare JC, Yamaguchi TN, Ewing AD, Houlahan KE, Norman TC, Margolin AA, Stuart JM, Boutros PC.

BMC Bioinformatics. 2018 Jan 31;19(1):28. doi: 10.1186/s12859-018-2046-0.

2.

Confidentiality in Biobanking Research: A Comparison of Donor and Nondonor Families' Understanding of Risks.

Siminoff LA, Wilson-Genderson M, Mosavel M, Barker L, Trgina J, Traino HM.

Genet Test Mol Biomarkers. 2017 Mar;21(3):171-177. doi: 10.1089/gtmb.2016.0407. Epub 2017 Jan 25.

PMID:
28121471
3.

Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.

Gainotti S, Turner C, Woods S, Kole A, McCormack P, Lochm├╝ller H, Riess O, Straub V, Posada M, Taruscio D, Mascalzoni D.

Eur J Hum Genet. 2016 Aug;24(9):1248-54. doi: 10.1038/ejhg.2016.2. Epub 2016 Feb 10.

4.

Genomic research in Zambia: confronting the ethics, policy and regulatory frontiers in the 21st Century.

Chanda-Kapata P, Kapata N, Moraes AN, Chongwe G, Munthali J.

Health Res Policy Syst. 2015 Oct 29;13:60. doi: 10.1186/s12961-015-0053-4.

5.

Sharing Public Health Research Data: Toward the Development of Ethical Data-Sharing Practice in Low- and Middle-Income Settings.

Parker M, Bull S.

J Empir Res Hum Res Ethics. 2015 Jul;10(3):217-24. doi: 10.1177/1556264615593494.

6.

Expression quantitative trait locus analysis for translational medicine.

Gibson G, Powell JE, Marigorta UM.

Genome Med. 2015 Jun 24;7(1):60. doi: 10.1186/s13073-015-0186-7. eCollection 2015. Review.

7.

Challenges of web-based personal genomic data sharing.

Shabani M, Borry P.

Life Sci Soc Policy. 2015;11:3. doi: 10.1186/s40504-014-0022-7. Epub 2015 Mar 27.

8.

Identifying personal microbiomes using metagenomic codes.

Franzosa EA, Huang K, Meadow JF, Gevers D, Lemon KP, Bohannan BJ, Huttenhower C.

Proc Natl Acad Sci U S A. 2015 Jun 2;112(22):E2930-8. doi: 10.1073/pnas.1423854112. Epub 2015 May 11.

9.

IRB practices and policies regarding the secondary research use of biospecimens.

Goldenberg AJ, Maschke KJ, Joffe S, Botkin JR, Rothwell E, Murray TH, Anderson R, Deming N, Rosenthal BF, Rivera SM.

BMC Med Ethics. 2015 May 8;16:32. doi: 10.1186/s12910-015-0020-1.

10.

SecureMA: protecting participant privacy in genetic association meta-analysis.

Xie W, Kantarcioglu M, Bush WS, Crawford D, Denny JC, Heatherly R, Malin BA.

Bioinformatics. 2014 Dec 1;30(23):3334-41. doi: 10.1093/bioinformatics/btu561. Epub 2014 Aug 21.

11.

Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa.

de Vries J, Williams TN, Bojang K, Kwiatkowski DP, Fitzpatrick R, Parker M.

BMC Med Ethics. 2014 Aug 13;15:62. doi: 10.1186/1472-6939-15-62.

12.

Newspaper coverage of biobanks.

Ogbogu U, Toews M, Ollenberger A, Borry P, Nobile H, Bergmann M, Caulfield T.

PeerJ. 2014 Jul 31;2:e500. doi: 10.7717/peerj.500. eCollection 2014.

13.

A domain analysis model for eIRB systems: addressing the weak link in clinical research informatics.

He S, Narus SP, Facelli JC, Lau LM, Botkin JR, Hurdle JF.

J Biomed Inform. 2014 Dec;52:121-9. doi: 10.1016/j.jbi.2014.05.003. Epub 2014 Jun 11.

14.

Routes for breaching and protecting genetic privacy.

Erlich Y, Narayanan A.

Nat Rev Genet. 2014 Jun;15(6):409-21. doi: 10.1038/nrg3723. Epub 2014 May 8. Review. Erratum in: Nat Rev Genet. 2014 Aug;15(8):570.

15.

Bodies of Data: Genomic Data and Bioscience Data Sharing.

Ossorio PN.

Soc Res (New York). 2011 Fall;78(3):907-932. No abstract available.

16.

Policy recommendations for addressing privacy challenges associated with cell-based research and interventions.

Ogbogu U, Burningham S, Ollenberger A, Calder K, Du L, El Emam K, Hyde-Lay R, Isasi R, Joly Y, Kerr I, Malin B, McDonald M, Penney S, Piat G, Roy DC, Sugarman J, Vercauteren S, Verhenneman G, West L, Caulfield T.

BMC Med Ethics. 2014 Feb 3;15:7. doi: 10.1186/1472-6939-15-7.

17.

Biospecimen policy: Family matters.

Hudson KL, Collins FS.

Nature. 2013 Aug 8;500(7461):141-2. doi: 10.1038/500141a. No abstract available.

18.

Biobanking, consent, and certificates of confidentiality: does the ANPRM muddy the water?

Williams BA, Wolf LE.

J Law Med Ethics. 2013 Summer;41(2):440-53. doi: 10.1111/jlme.12054.

19.

Genetic data and electronic health records: a discussion of ethical, logistical and technological considerations.

Shoenbill K, Fost N, Tachinardi U, Mendonca EA.

J Am Med Inform Assoc. 2014 Jan-Feb;21(1):171-80. doi: 10.1136/amiajnl-2013-001694. Epub 2013 Jun 14. Review.

20.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

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