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Items: 1 to 20 of 87

1.

Lay Attitudes Toward Trust, Uncertainty, and the Return of Pediatric Research Results in Biobanking.

Lynch J, Hines J, Theodore S, Mitchell M.

AJOB Empir Bioeth. 2016;7(3):160-166. doi: 10.1080/23294515.2015.1053008. Epub 2015 Jun 9.

2.

Return of individual genomic research results: what do consent forms tell participants?

Pereira S, Oliver Robinson J, McGuire AL.

Eur J Hum Genet. 2016 Nov;24(11):1524-1529. doi: 10.1038/ejhg.2016.76. Epub 2016 Jun 22.

PMID:
27329739
3.

Incidental germline variants in 1000 advanced cancers on a prospective somatic genomic profiling protocol.

Meric-Bernstam F, Brusco L, Daniels M, Wathoo C, Bailey AM, Strong L, Shaw K, Lu K, Qi Y, Zhao H, Lara-Guerra H, Litton J, Arun B, Eterovic AK, Aytac U, Routbort M, Subbiah V, Janku F, Davies MA, Kopetz S, Mendelsohn J, Mills GB, Chen K.

Ann Oncol. 2016 May;27(5):795-800. doi: 10.1093/annonc/mdw018. Epub 2016 Jan 19.

4.

Institutional review board perspectives on obligations to disclose genetic incidental findings to research participants.

Gliwa C, Yurkiewicz IR, Lehmann LS, Hull SC, Jones N, Berkman BE.

Genet Med. 2016 Jul;18(7):705-11. doi: 10.1038/gim.2015.149. Epub 2015 Nov 19.

5.

Right Ventricular Adaptation Is Associated with the Glu298Asp Variant of the NOS3 Gene in Elite Athletes.

Szelid Z, Lux Á, Kolossváry M, Tóth A, Vágó H, Lendvai Z, Kiss L, Maurovich-Horvat P, Bagyura Z, Merkely B.

PLoS One. 2015 Oct 30;10(10):e0141680. doi: 10.1371/journal.pone.0141680. eCollection 2015.

6.

Living kidney donors and ESRD.

Ross LF.

Am J Kidney Dis. 2015 Jul;66(1):23-7. doi: 10.1053/j.ajkd.2015.01.032. Epub 2015 Apr 30.

7.

Communicating with biobank participants: preferences for receiving and providing updates to researchers.

Mester JL, Mercer M, Goldenberg A, Moore RA, Eng C, Sharp RR.

Cancer Epidemiol Biomarkers Prev. 2015 Apr;24(4):708-12. doi: 10.1158/1055-9965.EPI-13-1375. Epub 2015 Jan 18.

8.
9.

The First Amendment Right to Speak About the Human Genome.

Evans BJ.

Univ Pa J Const Law. 2014 Feb 1;16(3):549-636.

10.

A framework for analyzing the ethics of disclosing genetic research findings.

Eckstein L, Garrett JR, Berkman BE.

J Law Med Ethics. 2014 Summer;42(2):190-207. doi: 10.1111/jlme.12135.

11.

Do participants in genome sequencing studies of psychiatric disorders wish to be informed of their results? A survey study.

Bui ET, Anderson NK, Kassem L, McMahon FJ.

PLoS One. 2014 Jul 1;9(7):e101111. doi: 10.1371/journal.pone.0101111. eCollection 2014.

13.

Return of genomic results to research participants: the floor, the ceiling, and the choices in between.

Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group, Burke W.

Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8.

14.

Disclosure of genetic research results to members of a founder population.

Anderson RL, Murray K, Chong JX, Ouwenga R, Antillon M, Chen P, Diaz de Leon L, Swoboda KJ, Lester LA, Das S, Ober C, Waggoner DJ.

J Genet Couns. 2014 Dec;23(6):984-91. doi: 10.1007/s10897-014-9721-8. Epub 2014 Apr 29.

15.

Genetic profiling for risk reduction in human cardiovascular disease.

Puckelwartz MJ, McNally EM.

Genes (Basel). 2014 Mar 12;5(1):214-34. doi: 10.3390/genes5010214.

16.

Return of results: ethical and legal distinctions between research and clinical care.

Burke W, Evans BJ, Jarvik GP.

Am J Med Genet C Semin Med Genet. 2014 Mar;166C(1):105-11. doi: 10.1002/ajmg.c.31393. Epub 2014 Mar 10.

17.

An update to returning genetic research results to individuals: perspectives of the industry pharmacogenomics working group.

Prucka SK, Arnold LJ, Brandt JE, Gilardi S, Harty LC, Hong F, Malia J, Pulford DJ.

Bioethics. 2015 Feb;29(2):82-90. doi: 10.1111/bioe.12073. Epub 2014 Jan 29.

18.
19.

The Informed Cohort Oversight Board: From Values to Architecture.

Holm IA, Taylor PL.

Minn J Law Sci Technol. 2012 Spring;13(2):669-690. No abstract available.

20.

Returning genetic research results: study type matters.

McGuire AL, Robinson JO, Ramoni RB, Morley DS, Jofe S, Plon SE.

Per Med. 2013 Jan;10(1):27-34.

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