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Items: 15


Support for infants and young people with sight loss: a qualitative study of sight impairment certification and referral to education and social care services.

Boyce T, Dahlmann-Noor A, Bowman R, Keil S.

BMJ Open. 2015 Dec 18;5(12):e009622. doi: 10.1136/bmjopen-2015-009622.


Educating K-12 Professionals and Parents: Finding Health Information for Special Needs Children.

Irish DE, Lyman DM, Squillace HA, Geyer EM, Cosgrove TD, Hagzan A, Leinung J, Tosh T.

J Consum Health Internet. 2015 Jan 1;19(1):25-39.


Children with medical complexity in Canada.

Dewan T, Cohen E.

Paediatr Child Health. 2013 Dec;18(10):518-22. Review.


Key outcomes from stakeholder workshops at a symposium to inform the development of an Australian national plan for rare diseases.

Molster C, Youngs L, Hammond E, Dawkins H; National Rare Diseases Coordinating Committee; National Rare Diseases Working Group.

Orphanet J Rare Dis. 2012 Aug 10;7:50. doi: 10.1186/1750-1172-7-50.


Patient satisfaction regarding eye care services at tertiary hospital of central India.

Sudhan A, Khandekar R, Deveragonda S, Devi S, Jain BK, Sachan R, Singh V.

Oman J Ophthalmol. 2011 May;4(2):73-6. doi: 10.4103/0974-620X.83657.


Quality of Life Measurement for Children with Life-Threatening Conditions: Limitations and a New Framework.

Huang IC, Wen PS, Revicki DA, Shenkman EA.

Child Indic Res. 2011 Jan;4(1):145-160.


Hospital-based comprehensive care programs for children with special health care needs: a systematic review.

Cohen E, Jovcevska V, Kuo DZ, Mahant S.

Arch Pediatr Adolesc Med. 2011 Jun;165(6):554-61. doi: 10.1001/archpediatrics.2011.74. Review.


Reorganizing pediatric rehabilitation services to improve accessibility: do we sacrifice quality?

Camden C, Swaine B, T├ętreault S, Brodeur MM.

BMC Health Serv Res. 2010 Aug 5;10:227. doi: 10.1186/1472-6963-10-227.


The Madison Clinic: Evaluation of a collaborative outpatient paediatric palliative care clinic.

Siden H, Straatman L, Miller T, Ham J.

Paediatr Child Health. 2009 Jul;14(6):379-84.


Continuity of care for children with complex chronic health conditions: parents' perspectives.

Miller AR, Condin CJ, McKellin WH, Shaw N, Klassen AF, Sheps S.

BMC Health Serv Res. 2009 Dec 21;9:242. doi: 10.1186/1472-6963-9-242.


Measuring quality of life in pediatric palliative care: challenges and potential solutions.

Huang IC, Shenkman EA, Madden VL, Vadaparampil S, Quinn G, Knapp CA.

Palliat Med. 2010 Mar;24(2):175-82. doi: 10.1177/0269216309352418. Epub 2009 Dec 10.


Prenatal and postnatal diagnosis of infant disability: breaking the news to mothers.

Wright JA.

J Perinat Educ. 2008 Summer;17(3):27-32. doi: 10.1624/105812408X324543.


An evaluation of two decision-making scales for children with life-limiting illnesses.

Knapp C, Huang IC, Madden V, Vadaparampil S, Quinn G, Shenkman E.

Palliat Med. 2009 Sep;23(6):518-25. doi: 10.1177/0269216309104892. Epub 2009 Apr 3.


How can the principles of complexity science be applied to improve the coordination of care for complex pediatric patients?

Matlow AG, Wright JG, Zimmerman B, Thomson K, Valente M.

Qual Saf Health Care. 2006 Apr;15(2):85-8.


"Contact A Family": professionals and parents in partnership.

Davies S, Hall D.

Arch Dis Child. 2005 Oct;90(10):1053-7. Review.

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