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Items: 1 to 20 of 51

1.

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.

Sanderson SC, Brothers KB, Mercaldo ND, Clayton EW, Antommaria AH, Aufox SA, Brilliant MH, Campos D, Carrell DS, Connolly J, Conway P, Fullerton SM, Garrison NA, Horowitz CR, Jarvik GP, Kaufman D, Kitchner TE, Li R, Ludman EJ, McCarty CA, McCormick JB, McManus VD, Myers MF, Scrol A, Williams JL, Shrubsole MJ, Schildcrout JS, Smith ME, Holm IA.

Am J Hum Genet. 2017 Mar 2;100(3):414-427. doi: 10.1016/j.ajhg.2017.01.021. Epub 2017 Feb 9.

PMID:
28190457
2.

Evaluation of cortisol and telomere length measurements in ethnically diverse women with breast cancer using culturally sensitive methods.

Ramirez J, Elmofty M, Castillo E, DeRouen M, Shariff-Marco S, Allen L, Gomez SL, Nápoles AM, Márquez-Magaña L.

J Community Genet. 2017 Apr;8(2):75-86. doi: 10.1007/s12687-016-0288-y. Epub 2017 Jan 3.

3.

Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.

Smith ME, Sanderson SC, Brothers KB, Myers MF, McCormick J, Aufox S, Shrubsole MJ, Garrison NA, Mercaldo ND, Schildcrout JS, Clayton EW, Antommaria AH, Basford M, Brilliant M, Connolly JJ, Fullerton SM, Horowitz CR, Jarvik GP, Kaufman D, Kitchner T, Li R, Ludman EJ, McCarty C, McManus V, Stallings S, Williams JL, Holm IA.

BMC Med Res Methodol. 2016 Nov 24;16(1):162.

4.

A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment.

Kaufman DJ, Baker R, Milner LC, Devaney S, Hudson KL.

PLoS One. 2016 Aug 17;11(8):e0160461. doi: 10.1371/journal.pone.0160461. eCollection 2016.

5.

Conducting Precision Medicine Research with African Americans.

Halbert CH, McDonald J, Vadaparampil S, Rice L, Jefferson M.

PLoS One. 2016 Jul 21;11(7):e0154850. doi: 10.1371/journal.pone.0154850. eCollection 2016.

6.

Community Willingness to Participate in a Dengue Study in Aceh Province, Indonesia.

Harapan H, Anwar S, Bustaman A, Radiansyah A, Angraini P, Fasli R, Salwiyadi S, Bastian RA, Oktiviyari A, Akmal I, Iqbalamin M, Adil J, Henrizal F, Darmayanti D, Pratama R, Fajar JK, Setiawan AM, Imrie A, Kuch U, Groneberg DA, Sasmono RT, Dhimal M, Müller R.

PLoS One. 2016 Jul 12;11(7):e0159139. doi: 10.1371/journal.pone.0159139. eCollection 2016.

7.

Population Stratification in the Context of Diverse Epidemiologic Surveys Sans Genome-Wide Data.

Oetjens MT, Brown-Gentry K, Goodloe R, Dilks HH, Crawford DC.

Front Genet. 2016 May 6;7:76. doi: 10.3389/fgene.2016.00076. eCollection 2016.

8.

A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.

Garrison NA, Sathe NA, Antommaria AH, Holm IA, Sanderson SC, Smith ME, McPheeters ML, Clayton EW.

Genet Med. 2016 Jul;18(7):663-71. doi: 10.1038/gim.2015.138. Epub 2015 Nov 19.

9.

Total Exposure Study Analysis consortium: a cross-sectional study of tobacco exposures.

Bergen AW, Krasnow R, Javitz HS, Swan GE, Li MD, Baurley JW, Chen X, Murrelle L, Zedler B.

BMC Public Health. 2015 Sep 7;15:866. doi: 10.1186/s12889-015-2212-5.

10.

Neighborhood × Serotonin Transporter Linked Polymorphic Region (5-HTTLPR) interactions for substance use from ages 10 to 24 years using a harmonized data set of African American children.

Windle M, Kogan SM, Lee S, Chen YF, Lei KM, Brody GH, Beach SR, Yu T.

Dev Psychopathol. 2016 May;28(2):415-31. doi: 10.1017/S095457941500053X. Epub 2015 Jun 15.

11.
12.

Demographic differences in willingness to provide broad and narrow consent for biobank research.

Ewing AT, Erby LA, Bollinger J, Tetteyfio E, Ricks-Santi LJ, Kaufman D.

Biopreserv Biobank. 2015 Apr;13(2):98-106. doi: 10.1089/bio.2014.0032. Epub 2015 Mar 31.

13.
14.

Genetic research participation in a young adult community sample.

Storr CL, Or F, Eaton WW, Ialongo N.

J Community Genet. 2014 Oct;5(4):363-75. doi: 10.1007/s12687-014-0191-3. Epub 2014 Jun 20.

15.

Intentions to donate to a biobank in a national sample of African Americans.

McDonald JA, Vadaparampil S, Bowen D, Magwood G, Obeid JS, Jefferson M, Drake R, Gebregziabher M, Hughes Halbert C.

Public Health Genomics. 2014;17(3):173-82. doi: 10.1159/000360472. Epub 2014 Jun 12.

16.

Strategies for enrollment of African Americans into cancer genetic studies.

Ewing A, Thompson N, Ricks-Santi L.

J Cancer Educ. 2015 Mar;30(1):108-15. doi: 10.1007/s13187-014-0669-z.

17.

Factors associated with willingness to participate in biospecimen research among Chinese Americans.

Gao W, Ma GX, Tan Y, Fang C, Weaver J, Jin M, Lai P.

Biopreserv Biobank. 2014 Apr;12(2):131-8. doi: 10.1089/bio.2013.0081.

18.

Patient characteristics and participation in a genetic study: a type 2 diabetes cohort.

Amiri L, Cassidy-Bushrow AE, Dakki H, Li J, Wells K, Oliveria SA, Yood MU, Thomas A, Lanfear DE.

J Investig Med. 2014 Jan;62(1):26-32. doi: 10.2310/JIM.0000000000000022.

19.

Characteristics associated with informed consent for genetic studies in the ACCORD trial.

Simons-Morton DG, Chan JC, Kimel AR, Linz PE, Stowe CL, Summerson J, Ambrosius WT.

Contemp Clin Trials. 2014 Jan;37(1):155-64. doi: 10.1016/j.cct.2013.12.002. Epub 2013 Dec 17.

20.

Surrogate consent for genetic testing, the reconsent process, and consent for long-term outcomes in acute respiratory distress syndrome trials.

Smart A, Thompson BT, Needham DM, Hopkins RO, Williams A, Burnham EL, Moss M; NHLBI ARDS Network Investigators.

Am J Respir Crit Care Med. 2013 Dec 1;188(11):1370-3. doi: 10.1164/rccm.201307-1235LE. No abstract available.

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