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Items: 1 to 20 of 101

1.

Evidence-based data and rare cancers: The need for a new methodological approach in research and investigation.

Mathoulin-Pélissier S, Pritchard-Jones K.

Eur J Surg Oncol. 2019 Jan;45(1):22-30. doi: 10.1016/j.ejso.2018.02.015. Epub 2018 Mar 2.

PMID:
29526369
2.

Italian cancer figures--Report 2015: The burden of rare cancers in Italy.

AIRTUM Working Group, Busco S, Buzzoni C, Mallone S, Trama A, Castaing M, Bella F, Amodio R, Bizzoco S, Cassetti T, Cirilli C, Cusimano R, De Angelis R, Fusco M, Gatta G, Gennaro V, Giacomin A, Giorgi Rossi P, Mangone L, Mannino S, Rossi S, Pierannunzio D, Tavilla A, Tognazzo S, Tumino R, Vicentini M, Vitale MF, Crocetti E, Dal Maso L.

Epidemiol Prev. 2016 Jan-Feb;40(1 Suppl 2):1-120. doi: 10.19191/EP16.1S2.P001.035. Erratum in: Epidemiol Prev. 2016 Mar-Apr;40(2):83.

4.

Burden and centralised treatment in Europe of rare tumours: results of RARECAREnet-a population-based study.

Gatta G, Capocaccia R, Botta L, Mallone S, De Angelis R, Ardanaz E, Comber H, Dimitrova N, Leinonen MK, Siesling S, van der Zwan JM, Van Eycken L, Visser O, Žakelj MP, Anderson LA, Bella F, Kaire I, Otter R, Stiller CA, Trama A; RARECAREnet working group.

Lancet Oncol. 2017 Aug;18(8):1022-1039. doi: 10.1016/S1470-2045(17)30445-X. Epub 2017 Jul 4. Erratum in: Lancet Oncol. 2017 Aug;18(8):e433.

PMID:
28687376
5.

Epidemiology of rare cancers and inequalities in oncologic outcomes.

Gatta G, Trama A, Capocaccia R; RARECARENet Working Group.

Eur J Surg Oncol. 2019 Jan;45(1):3-11. doi: 10.1016/j.ejso.2017.08.018. Epub 2017 Sep 19.

PMID:
29032924
6.

[A research roadmap for complementary and alternative medicine - what we need to know by 2020].

Fischer F, Lewith G, Witt CM, Linde K, von Ammon K, Cardini F, Falkenberg T, Fønnebø V, Johannessen H, Reiter B, Uehleke B, Weidenhammer W, Brinkhaus B.

Forsch Komplementmed. 2014;21(2):e1-16. doi: 10.1159/000360744. Epub 2014 Mar 24.

7.

The project data sphere initiative: accelerating cancer research by sharing data.

Green AK, Reeder-Hayes KE, Corty RW, Basch E, Milowsky MI, Dusetzina SB, Bennett AV, Wood WA.

Oncologist. 2015 May;20(5):464-e20. doi: 10.1634/theoncologist.2014-0431. Epub 2015 Apr 15.

8.

[European Reference Networks : Consequences for healthcare in Germany].

Graessner H, Schäfer F, Scarpa M, Wagner TOF.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 May;60(5):537-541. doi: 10.1007/s00103-017-2533-x. German.

PMID:
28275837
9.

The value of research collaborations and consortia in rare cancers.

Blay JY, Coindre JM, Ducimetière F, Ray-Coquard I.

Lancet Oncol. 2016 Feb;17(2):e62-e69. doi: 10.1016/S1470-2045(15)00388-5. Review.

PMID:
26868355
10.

Clinical trial designs for rare diseases: studies developed and discussed by the International Rare Cancers Initiative.

Bogaerts J, Sydes MR, Keat N, McConnell A, Benson A, Ho A, Roth A, Fortpied C, Eng C, Peckitt C, Coens C, Pettaway C, Arnold D, Hall E, Marshall E, Sclafani F, Hatcher H, Earl H, Ray-Coquard I, Paul J, Blay JY, Whelan J, Panageas K, Wheatley K, Harrington K, Licitra L, Billingham L, Hensley M, McCabe M, Patel PM, Carvajal R, Wilson R, Glynne-Jones R, McWilliams R, Leyvraz S, Rao S, Nicholson S, Filiaci V, Negrouk A, Lacombe D, Dupont E, Pauporté I, Welch JJ, Law K, Trimble T, Seymour M.

Eur J Cancer. 2015 Feb;51(3):271-81. doi: 10.1016/j.ejca.2014.10.027. Epub 2014 Dec 24. Review.

11.

[European Reference Networks for rare diseases].

Vos JR, van Zelst-Stams WAG, Hoogerbrugge N.

Ned Tijdschr Geneeskd. 2018;162:D2376. Dutch.

PMID:
29676715
12.

Rare ovarian tumours: Epidemiology, treatment challenges in and outside a network setting.

Ray-Coquard I, Trama A, Seckl MJ, Fotopoulou C, Pautier P, Pignata S, Kristensen G, Mangili G, Falconer H, Massuger L, Sehouli J, Pujade-Lauraine E, Lorusso D, Amant F, Rokkones E, Vergote I, Ledermann JA; RARECARENet Working Group.

Eur J Surg Oncol. 2019 Jan;45(1):67-74. doi: 10.1016/j.ejso.2017.09.025. Epub 2017 Nov 3. Review.

PMID:
29108961
13.

Association between pacifier use and breast-feeding, sudden infant death syndrome, infection and dental malocclusion.

Callaghan A, Kendall G, Lock C, Mahony A, Payne J, Verrier L.

JBI Libr Syst Rev. 2005;3(6):1-33.

PMID:
27819973
14.

[Challenges for clinical research on rare tumors in Europe].

Blay JY.

Bull Acad Natl Med. 2013 Jan;197(1):103-21; discussion 121-2. Review. French.

PMID:
24672983
15.

Considerations for observational research using large data sets in radiation oncology.

Jagsi R, Bekelman JE, Chen A, Chen RC, Hoffman K, Shih YC, Smith BD, Yu JB.

Int J Radiat Oncol Biol Phys. 2014 Sep 1;90(1):11-24. doi: 10.1016/j.ijrobp.2014.05.013. Review.

16.

Improving treatment results with reference centres for rare cancers: where do we stand?

Ray-Coquard I, Pujade Lauraine E, Le Cesne A, Pautier P, Vacher Lavenue MC, Trama A, Casali P, Coindre JM, Blay JY.

Eur J Cancer. 2017 May;77:90-98. doi: 10.1016/j.ejca.2017.02.006. Epub 2017 Apr 3. Review.

PMID:
28384534
17.

Research methods to change clinical practice for patients with rare cancers.

Billingham L, Malottki K, Steven N.

Lancet Oncol. 2016 Feb;17(2):e70-e80. doi: 10.1016/S1470-2045(15)00396-4. Review.

PMID:
26868356
18.

[Rare tumours: a new heading in Bulletin du cancer].

Massard C, Droz JP.

Bull Cancer. 2010 Sep;97(9):1031-9. doi: 10.1684/bdc.2010.1171. French.

19.

Rare Disease Biospecimens and Patient Registries: Interoperability for Research Promotion, a European Example: EuroBioBank and SpainRDR-BioNER.

Rubinstein YR, Posada de la Paz M, Mora M.

Adv Exp Med Biol. 2017;1031:141-147. doi: 10.1007/978-3-319-67144-4_7.

PMID:
29214569
20.

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