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Rare ovarian tumours: Epidemiology, treatment challenges in and outside a network setting.

Ray-Coquard I, Trama A, Seckl MJ, Fotopoulou C, Pautier P, Pignata S, Kristensen G, Mangili G, Falconer H, Massuger L, Sehouli J, Pujade-Lauraine E, Lorusso D, Amant F, Rokkones E, Vergote I, Ledermann JA; RARECARENet Working Group.

Eur J Surg Oncol. 2019 Jan;45(1):67-74. doi: 10.1016/j.ejso.2017.09.025. Epub 2017 Nov 3. Review.


Italian cancer figures--Report 2015: The burden of rare cancers in Italy.

AIRTUM Working Group, Busco S, Buzzoni C, Mallone S, Trama A, Castaing M, Bella F, Amodio R, Bizzoco S, Cassetti T, Cirilli C, Cusimano R, De Angelis R, Fusco M, Gatta G, Gennaro V, Giacomin A, Giorgi Rossi P, Mangone L, Mannino S, Rossi S, Pierannunzio D, Tavilla A, Tognazzo S, Tumino R, Vicentini M, Vitale MF, Crocetti E, Dal Maso L.

Epidemiol Prev. 2016 Jan-Feb;40(1 Suppl 2):1-120. doi: 10.19191/EP16.1S2.P001.035. Erratum in: Epidemiol Prev. 2016 Mar-Apr;40(2):83.


New clinical research strategies for rare gynecologic malignancies.

Ray-Coquard I, Pujade-Lauraine E, Ledermann JA.

Curr Opin Obstet Gynecol. 2015 Feb;27(1):53-7. doi: 10.1097/GCO.0000000000000144. Review.


Burden and centralised treatment in Europe of rare tumours: results of RARECAREnet-a population-based study.

Gatta G, Capocaccia R, Botta L, Mallone S, De Angelis R, Ardanaz E, Comber H, Dimitrova N, Leinonen MK, Siesling S, van der Zwan JM, Van Eycken L, Visser O, Žakelj MP, Anderson LA, Bella F, Kaire I, Otter R, Stiller CA, Trama A; RARECAREnet working group.

Lancet Oncol. 2017 Aug;18(8):1022-1039. doi: 10.1016/S1470-2045(17)30445-X. Epub 2017 Jul 4. Erratum in: Lancet Oncol. 2017 Aug;18(8):e433.


Novel approaches to improve the treatment of rare gynecologic cancers: research opportunities and challenges.

Ledermann JA, Ray-Coquard I.

Am Soc Clin Oncol Educ Book. 2014:e282-6. doi: 10.14694/EdBook_AM.2014.34.e282. Review.


Epidemiology of rare cancers and inequalities in oncologic outcomes.

Gatta G, Trama A, Capocaccia R; RARECARENet Working Group.

Eur J Surg Oncol. 2019 Jan;45(1):3-11. doi: 10.1016/j.ejso.2017.08.018. Epub 2017 Sep 19.


Italian cancer figures, report 2012: Cancer in children and adolescents.

AIRTUM Working Group; CCM; AIEOP Working Group.

Epidemiol Prev. 2013 Jan-Feb;37(1 Suppl 1):1-225. English, Italian.


Fifth Ovarian Cancer Consensus Conference of the Gynecologic Cancer InterGroup (GCIG): clinical trial design for rare ovarian tumours.

Leary AF, Quinn M, Fujiwara K, Coleman RL, Kohn E, Sugiyama T, Glasspool R, Ray-Coquard I, Colombo N, Bacon M, Zeimet A, Westermann A, Gomez-Garcia E, Provencher D, Welch S, Small W, Millan D, Okamoto A, Stuart G, Ochiai K; participants of the Fifth Ovarian Cancer Consensus Conference.

Ann Oncol. 2017 Apr 1;28(4):718-726. doi: 10.1093/annonc/mdw662.


Treatment challenges in and outside a network setting: Gastrointestinal neuroendocrine tumours.

Laskaratos FM, Caplin M.

Eur J Surg Oncol. 2019 Jan;45(1):52-59. doi: 10.1016/j.ejso.2018.03.012. Epub 2018 Mar 22. Review.


Treatment challenges in and outside a network setting: Head and neck cancers.

Orlandi E, Alfieri S, Simon C, Trama A, Licitra L; RARECAREnet Working Group.

Eur J Surg Oncol. 2019 Jan;45(1):40-45. doi: 10.1016/j.ejso.2018.02.007. Epub 2018 Feb 14. Review.


Evidence-based data and rare cancers: The need for a new methodological approach in research and investigation.

Mathoulin-Pélissier S, Pritchard-Jones K.

Eur J Surg Oncol. 2019 Jan;45(1):22-30. doi: 10.1016/j.ejso.2018.02.015. Epub 2018 Mar 2.


Improving treatment results with reference centres for rare cancers: where do we stand?

Ray-Coquard I, Pujade Lauraine E, Le Cesne A, Pautier P, Vacher Lavenue MC, Trama A, Casali P, Coindre JM, Blay JY.

Eur J Cancer. 2017 May;77:90-98. doi: 10.1016/j.ejca.2017.02.006. Epub 2017 Apr 3. Review.


Clinical trial designs for rare diseases: studies developed and discussed by the International Rare Cancers Initiative.

Bogaerts J, Sydes MR, Keat N, McConnell A, Benson A, Ho A, Roth A, Fortpied C, Eng C, Peckitt C, Coens C, Pettaway C, Arnold D, Hall E, Marshall E, Sclafani F, Hatcher H, Earl H, Ray-Coquard I, Paul J, Blay JY, Whelan J, Panageas K, Wheatley K, Harrington K, Licitra L, Billingham L, Hensley M, McCabe M, Patel PM, Carvajal R, Wilson R, Glynne-Jones R, McWilliams R, Leyvraz S, Rao S, Nicholson S, Filiaci V, Negrouk A, Lacombe D, Dupont E, Pauporté I, Welch JJ, Law K, Trimble T, Seymour M.

Eur J Cancer. 2015 Feb;51(3):271-81. doi: 10.1016/j.ejca.2014.10.027. Epub 2014 Dec 24. Review.


[Rare ovarian tumours: therapeutic strategies in 2010, national website observatory for rare ovarian cancers and delineation of referent centers in France].

Ray-Coquard I, Pautier P, Pujade-Lauraine E, Méeus P, Morice P, Treilleux I, Duvillard P, Alexandre J, Lhommé C, Selle F, Guastalla J.

Bull Cancer. 2010 Jan;97(1):123-35. doi: 10.1684/bdc.2010.1017. French.


Testicular germ-cell tumours and penile squamous cell carcinoma: Appropriate management makes the difference.

Nicolai N, Biasoni D, Catanzaro MA, Colecchia M, Trama A; RARECAREnet Working Group.

Eur J Surg Oncol. 2019 Jan;45(1):60-66. doi: 10.1016/j.ejso.2018.02.006. Epub 2018 Feb 14. Review.


The NCI All Ireland Cancer Conference.

Johnston PG, Daly PA, Liu E.

Oncologist. 1999;4(4):275-277.


Clinical trial design for rare cancers: why a less conventional route may be required.

Panageas KS.

Expert Rev Clin Pharmacol. 2015;8(6):661-3. doi: 10.1586/17512433.2015.1088382.


A systematic literature review of evidence-based clinical practice for rare diseases: what are the perceived and real barriers for improving the evidence and how can they be overcome?

Rath A, Salamon V, Peixoto S, Hivert V, Laville M, Segrestin B, Neugebauer EAM, Eikermann M, Bertele V, Garattini S, Wetterslev J, Banzi R, Jakobsen JC, Djurisic S, Kubiak C, Demotes-Mainard J, Gluud C.

Trials. 2017 Nov 22;18(1):556. doi: 10.1186/s13063-017-2287-7. Review.


Non-epithelial Ovarian Cancer: Elucidating Uncommon Gynaecological Malignancies.

Boussios S, Zarkavelis G, Seraj E, Zerdes I, Tatsi K, Pentheroudakis G.

Anticancer Res. 2016 Oct;36(10):5031-5042. Review.


Rare cancers are not so rare: the rare cancer burden in Europe.

Gatta G, van der Zwan JM, Casali PG, Siesling S, Dei Tos AP, Kunkler I, Otter R, Licitra L, Mallone S, Tavilla A, Trama A, Capocaccia R; RARECARE working group.

Eur J Cancer. 2011 Nov;47(17):2493-511. doi: 10.1016/j.ejca.2011.08.008. Epub 2011 Oct 25.


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