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Items: 1 to 20 of 81

1.

Comparison of participants and non-participants in patient-reported outcome surveys: the case of Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study.

Berghammer MC, Mattsson E, Johansson B, Moons P, Dellborg M.

Cardiol Young. 2017 Apr;27(3):427-434. doi: 10.1017/S1047951116000676. Epub 2016 May 11.

PMID:
27167242
2.

Patient reported outcomes are associated with physical activity level in adults with congenital heart disease.

Bay A, Dellborg M, Berghammer M, Sandberg C, Engström G, Moons P, Johansson B.

Int J Cardiol. 2017 Sep 15;243:174-179. doi: 10.1016/j.ijcard.2017.03.137.

PMID:
28747022
3.

Health-related quality of life in children with surgery for CHD: a study from the Swedish National Registry for Congenital Heart Disease.

Svensson B, Idvall E, Nilsson F, Liuba P.

Cardiol Young. 2017 Mar;27(2):333-343. doi: 10.1017/S1047951116000585. Epub 2016 May 26.

PMID:
27225489
4.

Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease - International Study (APPROACH-IS): rationale, design, and methods.

Apers S, Kovacs AH, Luyckx K, Alday L, Berghammer M, Budts W, Callus E, Caruana M, Chidambarathanu S, Cook SC, Dellborg M, Enomoto J, Eriksen K, Fernandes SM, Jackson JL, Johansson B, Khairy P, Kutty S, Menahem S, Rempel G, Sluman MA, Soufi A, Thomet C, Veldtman G, Wang JK, White K, Moons P; APPROACH-IS consortium; International Society for Adult Congenital Heart Disease (ISACHD).

Int J Cardiol. 2015 Jan 20;179:334-42. doi: 10.1016/j.ijcard.2014.11.084. Epub 2014 Nov 8.

PMID:
25464481
5.

Ischemic Stroke in Children and Young Adults With Congenital Heart Disease.

Mandalenakis Z, Rosengren A, Lappas G, Eriksson P, Hansson PO, Dellborg M.

J Am Heart Assoc. 2016 Feb 23;5(2). pii: e003071. doi: 10.1161/JAHA.115.003071.

6.

The level of physical exercise is associated with self-reported health status (EQ-5D) in adults with congenital heart disease.

Sandberg C, Engström KG, Dellborg M, Thilén U, Wadell K, Johansson B.

Eur J Prev Cardiol. 2015 Feb;22(2):240-8. doi: 10.1177/2047487313508665. Epub 2013 Oct 9.

PMID:
24108385
7.

Self-efficacy as a predictor of patient-reported outcomes in adults with congenital heart disease.

Thomet C, Moons P, Schwerzmann M, Apers S, Luyckx K, Oechslin EN, Kovacs AH.

Eur J Cardiovasc Nurs. 2018 Oct;17(7):619-626. doi: 10.1177/1474515118771017. Epub 2018 Apr 17.

PMID:
29661025
8.

Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors.

Moons P, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Yang HL, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White K, Callus E, Kutty S, Van Bulck L, Apers S; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).

Int J Cardiol. 2018 Jan 15;251:34-41. doi: 10.1016/j.ijcard.2017.10.064. Epub 2017 Oct 21.

PMID:
29107358
9.

Medical factors that predict quality of life for young adults with congenital heart disease: What matters most?

Jackson JL, Hassen L, Gerardo GM, Vannatta K, Daniels CJ.

Int J Cardiol. 2016 Jan 1;202:804-9. doi: 10.1016/j.ijcard.2015.09.116. Epub 2015 Sep 30.

10.

Illness perceptions in adult congenital heart disease: A multi-center international study.

Rassart J, Apers S, Kovacs AH, Moons P, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Subramanyan R, Alday L, Eriksen K, Dellborg M, Berghammer M, Johansson B, Rempel GR, Menahem S, Caruana M, Veldtman G, Soufi A, Fernandes SM, White KS, Callus E, Kutty S, Luyckx K; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).

Int J Cardiol. 2017 Oct 1;244:130-138. doi: 10.1016/j.ijcard.2017.06.072. Epub 2017 Jun 26.

PMID:
28669511
11.

Self-reported health status (EQ-5D) in adults with congenital heart disease.

Berghammer M, Karlsson J, Ekman I, Eriksson P, Dellborg M.

Int J Cardiol. 2013 May 25;165(3):537-43. doi: 10.1016/j.ijcard.2011.10.002. Epub 2011 Nov 1.

PMID:
22051437
12.

Correlates of posttraumatic stress disorder in adults with congenital heart disease.

Eslami B.

Congenit Heart Dis. 2017 May;12(3):357-363. doi: 10.1111/chd.12452. Epub 2017 Feb 20.

PMID:
28217850
13.

Educational level and employment status in adults with congenital heart disease.

Pfitzer C, Helm PC, Rosenthal LM, Walker C, Ferentzi H, Bauer UMM, Berger F, Schmitt KRL.

Cardiol Young. 2018 Jan;28(1):32-38. doi: 10.1017/S104795111700138X. Epub 2017 Sep 13.

PMID:
28899436
14.

High mortality and morbidity among adults with congenital heart disease and type 2 diabetes.

Dellborg M, Björk A, Pirouzi Fard MN, Ambring A, Eriksson P, Svensson AM, Gudbjörnsdottir S.

Scand Cardiovasc J. 2015;49(6):344-50. doi: 10.3109/14017431.2015.1085595. Epub 2015 Sep 11.

PMID:
26400059
15.

Quality of Life of Adults With Congenital Heart Disease in 15 Countries: Evaluating Country-Specific Characteristics.

Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Enomoto J, Sluman MA, Wang JK, Jackson JL, Khairy P, Cook SC, Chidambarathanu S, Alday L, Eriksen K, Dellborg M, Berghammer M, Mattsson E, Mackie AS, Menahem S, Caruana M, Veldtman G, Soufi A, Romfh AW, White K, Callus E, Kutty S, Fieuws S, Moons P; APPROACH-IS consortium and ISACHD.

J Am Coll Cardiol. 2016 May 17;67(19):2237-2245. doi: 10.1016/j.jacc.2016.03.477.

16.

Adult congenital heart disease in Greece: Preliminary data from the CHALLENGE registry.

Giannakoulas G, Vasiliadis K, Frogoudaki A, Ntellos C, Tzifa A, Brili S, Manginas A, Papaphylactou M, Parcharidou D, Kampouridis N, Pitsis A, Chamaidi A, Kolios M, Papadopoulos G, Douras A, Davlouros P, Ntiloudi D, Karvounis H, Kalangos A, Tsioufis C, Rammos S; CHALLENGE investigators.

Int J Cardiol. 2017 Oct 15;245:109-113. doi: 10.1016/j.ijcard.2017.07.024. Epub 2017 Jul 13.

PMID:
28743482
17.

The medical history of adults with complex congenital heart disease affects their social development and professional activity.

Karsenty C, Maury P, Blot-Souletie N, Ladouceur M, Leobon B, Senac V, Mondoly P, Elbaz M, Galinier M, Dulac Y, Carrié D, Acar P, Hascoet S.

Arch Cardiovasc Dis. 2015 Nov;108(11):589-97. doi: 10.1016/j.acvd.2015.06.004. Epub 2015 Sep 11.

18.

Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients-An APPROACH-IS Substudy.

Caruana M, Apers S, Kovacs AH, Luyckx K, Thomet C, Budts W, Sluman M, Eriksen K, Dellborg M, Berghammer M, Johansson B, Soufi A, Callus E, Moons P, Grech V; APPROACH-IS consortium and the International Society for Adult Congenital Heart Disease (ISACHD).

Pediatr Cardiol. 2017 Jun;38(5):965-973. doi: 10.1007/s00246-017-1604-y. Epub 2017 Mar 24.

PMID:
28341902
19.

Prevalence and clinical characteristics of adult patients with congenital heart disease in Tuscany.

Favilli S, Santoro G, Ballo P, Arcangeli C, Bovenzi FM, Chiappa E, Conti U, Monopoli A, Murzi B, Rosini C, Zuppiroli A.

J Cardiovasc Med (Hagerstown). 2012 Dec;13(12):805-9. doi: 10.2459/JCM.0b013e3283569b3a.

PMID:
23165408
20.

Is having a job a protective factor? Employment status and state of medical care as subjectively perceived by adults with CHD in Germany.

Helm PC, Sticker EJ, Keuchen R, Koerten MA, Diller GP, Tutarel O, Bauer UMM.

Cardiol Young. 2017 Aug;27(6):1110-1117. doi: 10.1017/S1047951116002146. Epub 2016 Nov 10.

PMID:
27830637

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