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Items: 1 to 20 of 124

1.

Meaningful health outcomes for paediatric neurodisability: Stakeholder prioritisation and appropriateness of patient reported outcome measures.

Morris C, Janssens A, Shilling V, Allard A, Fellowes A, Tomlinson R, Williams J, Thompson Coon J, Rogers M, Beresford B, Green C, Jenkinson C, Tennant A, Logan S.

Health Qual Life Outcomes. 2015 Jun 25;13:87. doi: 10.1186/s12955-015-0284-7.

2.

Informing the NHS Outcomes Framework: evaluating meaningful health outcomes for children with neurodisability using multiple methods including systematic review, qualitative research, Delphi survey and consensus meeting.

Morris C, Janssens A, Allard A, Thompson Coon J, Shilling V, Tomlinson R, Williams J, Fellowes A, Rogers M, Allen K, Beresford B, Green C, Jenkinson C, Tennant A, Logan S.

Southampton (UK): NIHR Journals Library; 2014 May.

3.

Key health outcomes for children and young people with neurodisability: qualitative research with young people and parents.

Allard A, Fellowes A, Shilling V, Janssens A, Beresford B, Morris C.

BMJ Open. 2014 Apr 19;4(4):e004611. doi: 10.1136/bmjopen-2013-004611.

4.

Therapy interventions for children with neurodisabilities: a qualitative scoping study.

Beresford B, Clarke S, Maddison J.

Health Technol Assess. 2018 Jan;22(3):1-150. doi: 10.3310/hta22030.

5.

Health outcomes for children with neurodisability: what do professionals regard as primary targets?

Janssens A, Williams J, Tomlinson R, Logan S, Morris C.

Arch Dis Child. 2014 Oct;99(10):927-32. doi: 10.1136/archdischild-2013-305803. Epub 2014 May 22.

PMID:
24854564
6.

Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol.

Ekberg S, Bradford N, Herbert A, Danby S, Yates P.

JBI Database System Rev Implement Rep. 2015 Nov;13(11):33-42. doi: 10.11124/jbisrir-2015-2413.

PMID:
26657462
7.

Do Patient- and Parent-reported Outcomes Measures for Children With Congenital Hand Differences Capture WHO-ICF Domains?

Adkinson JM, Bickham RS, Chung KC, Waljee JF.

Clin Orthop Relat Res. 2015 Nov;473(11):3549-63. doi: 10.1007/s11999-015-4505-5. Review.

8.

Exploring neurodevelopmental outcome measures used in children with cerebral malaria: the perspectives of caregivers and health workers in Malawi.

Mbale EW, Taylor T, Brabin B, Mallewa M, Gladstone M.

BMC Pediatr. 2017 Jan 10;17(1):9. doi: 10.1186/s12887-016-0763-y.

9.

Setting research priorities to improve the health of children and young people with neurodisability: a British Academy of Childhood Disability-James Lind Alliance Research Priority Setting Partnership.

Morris C, Simkiss D, Busk M, Morris M, Allard A, Denness J, Janssens A, Stimson A, Coghill J, Robinson K, Fenton M, Cowan K.

BMJ Open. 2015 Jan 28;5(1):e006233. doi: 10.1136/bmjopen-2014-006233.

10.

Systematic review of tools to measure outcomes for young children with autism spectrum disorder.

McConachie H, Parr JR, Glod M, Hanratty J, Livingstone N, Oono IP, Robalino S, Baird G, Beresford B, Charman T, Garland D, Green J, Gringras P, Jones G, Law J, Le Couteur AS, Macdonald G, McColl EM, Morris C, Rodgers J, Simonoff E, Terwee CB, Williams K.

Health Technol Assess. 2015 Jun;19(41):1-506. doi: 10.3310/hta19410.

11.

"It means you are grounded" - caregivers' perspectives on the rehabilitation of children with neurodisability in Malawi.

Paget A, Mallewa M, Chinguo D, Mahebere-Chirambo C, Gladstone M.

Disabil Rehabil. 2016;38(3):223-34. doi: 10.3109/09638288.2015.1035458. Epub 2015 Apr 16.

12.

Measurement properties of multidimensional patient-reported outcome measures in neurodisability: a systematic review of evaluation studies.

Janssens A, Rogers M, Gumm R, Jenkinson C, Tennant A, Logan S, Morris C.

Dev Med Child Neurol. 2016 May;58(5):437-51. doi: 10.1111/dmcn.12982. Epub 2015 Dec 11. Review.

13.

IMPRoving Outcomes for children exposed to domestic ViolencE (IMPROVE): an evidence synthesis.

Howarth E, Moore THM, Welton NJ, Lewis N, Stanley N, MacMillan H, Shaw A, Hester M, Bryden P, Feder G.

Southampton (UK): NIHR Journals Library; 2016 Dec.

14.

A systematic review of generic multidimensional patient-reported outcome measures for children, part I: descriptive characteristics.

Janssens A, Thompson Coon J, Rogers M, Allen K, Green C, Jenkinson C, Tennant A, Logan S, Morris C.

Value Health. 2015 Mar;18(2):315-33. doi: 10.1016/j.jval.2014.12.006. Epub 2015 Feb 7. Review.

15.

Structured, intensive education maximising engagement, motivation and long-term change for children and young people with diabetes: a cluster randomised controlled trial with integral process and economic evaluation - the CASCADE study.

Christie D, Thompson R, Sawtell M, Allen E, Cairns J, Smith F, Jamieson E, Hargreaves K, Ingold A, Brooks L, Wiggins M, Oliver S, Jones R, Elbourne D, Santos A, Wong IC, O'Neill S, Strange V, Hindmarsh P, Annan F, Viner R.

Health Technol Assess. 2014 Mar;18(20):1-202. doi: 10.3310/hta18200.

16.

Using the International Classification of Functioning, Disability, and Health to identify outcome domains for a core outcome set for aphasia: a comparison of stakeholder perspectives.

Wallace SJ, Worrall L, Rose T, Le Dorze G.

Disabil Rehabil. 2019 Mar;41(5):564-573. doi: 10.1080/09638288.2017.1400593. Epub 2017 Nov 12.

PMID:
29130767
17.

Assessing severity of illness and outcomes of treatment in children with Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME): a systematic review of patient-reported outcome measures (PROMs).

Haywood KL, Collin SM, Crawley E.

Child Care Health Dev. 2014 Nov;40(6):806-24. doi: 10.1111/cch.12135. Epub 2014 Mar 24. Review.

PMID:
24661148
18.

Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.

Busolo D, Woodgate R.

JBI Database System Rev Implement Rep. 2015 Jan;13(1):99-111. doi: 10.11124/jbisrir-2015-1809.

PMID:
26447011
19.

The 'F-words' in childhood disability: I swear this is how we should think!

Rosenbaum P, Gorter JW.

Child Care Health Dev. 2012 Jul;38(4):457-63. doi: 10.1111/j.1365-2214.2011.01338.x. Epub 2011 Nov 1. Review.

PMID:
22040377
20.

Standardised Outcomes in Nephrology-Children and Adolescents (SONG-Kids): a protocol for establishing a core outcome set for children with chronic kidney disease.

Tong A, Samuel S, Zappitelli M, Dart A, Furth S, Eddy A, Groothoff J, Webb NJ, Yap HK, Bockenhauer D, Sinha A, Alexander SI, Goldstein SL, Gipson DS, Hanson CS, Evangelidis N, Crowe S, Harris T, Hemmelgarn BR, Manns B, Gill J, Tugwell P, Van Biesen W, Wheeler DC, Winkelmayer WC, Craig JC; SONG-Kids Investigators.

Trials. 2016 Aug 12;17:401. doi: 10.1186/s13063-016-1528-5.

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