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Items: 1 to 20 of 98

1.

Self-rating makes the difference: identifying palliative care needs of patients feeling severely affected by multiple sclerosis.

Strupp J, Golla H, Galushko M, Buecken R, Ernstmann N, Hahn M, Pfaff H, Voltz R.

Palliat Support Care. 2015 Jun;13(3):733-40. doi: 10.1017/S1478951514000510. Epub 2014 May 22.

PMID:
24849300
2.

Feeling severely affected by multiple sclerosis: what does this mean?

Strupp J, Hartwig A, Golla H, Galushko M, Pfaff H, Voltz R.

Palliat Med. 2012 Dec;26(8):1001-10. doi: 10.1177/0269216311425420. Epub 2011 Oct 31.

PMID:
22042226
3.

Unmet needs of patients feeling severely affected by multiple sclerosis in Germany: a qualitative study.

Galushko M, Golla H, Strupp J, Karbach U, Kaiser C, Ernstmann N, Pfaff H, Ostgathe C, Voltz R.

J Palliat Med. 2014 Mar;17(3):274-81. doi: 10.1089/jpm.2013.0497. Epub 2014 Feb 14.

4.

Unmet needs of caregivers of severely affected multiple sclerosis patients: A qualitative study.

Golla H, Mammeas S, Galushko M, Pfaff H, Voltz R.

Palliat Support Care. 2015 Dec;13(6):1685-93. doi: 10.1017/S1478951515000607. Epub 2015 Jun 17.

PMID:
26081132
5.

Unmet needs of people with severe multiple sclerosis and their carers: qualitative findings for a home-based intervention.

Borreani C, Bianchi E, Pietrolongo E, Rossi I, Cilia S, Giuntoli M, Giordano A, Confalonieri P, Lugaresi A, Patti F, Grasso MG, de Carvalho LL, Palmisano L, Zaratin P, Battaglia MA, Solari A; PeNSAMI project..

PLoS One. 2014 Oct 6;9(10):e109679. doi: 10.1371/journal.pone.0109679. eCollection 2014.

6.

Palliative care for severely affected patients with multiple sclerosis: when and why? Results of a Delphi survey of health care professionals.

Strupp J, Romotzky V, Galushko M, Golla H, Voltz R.

J Palliat Med. 2014 Oct;17(10):1128-36. doi: 10.1089/jpm.2013.0667. Epub 2014 Jul 28.

7.

Unmet needs of multiple sclerosis patients in the community.

Lonergan R, Kinsella K, Fitzpatrick P, Duggan M, Jordan S, Bradley D, Hutchinson M, Tubridy N.

Mult Scler Relat Disord. 2015 Mar;4(2):144-50. doi: 10.1016/j.msard.2015.01.003. Epub 2015 Feb 3.

PMID:
25787190
8.

Opening locked doors: Integrating a palliative care approach into the management of patients with severe multiple sclerosis.

Strupp J, Voltz R, Golla H.

Mult Scler. 2016 Jan;22(1):13-8. doi: 10.1177/1352458515608262. Epub 2015 Oct 7. Review.

PMID:
26447067
9.

A psychometric validation of two brief measures to assess palliative need in patients severely affected by multiple sclerosis.

Sleeman KE, Higginson IJ.

J Pain Symptom Manage. 2013 Sep;46(3):406-12. doi: 10.1016/j.jpainsymman.2012.08.007. Epub 2012 Nov 27.

PMID:
23195389
10.

A palliative care hotline for multiple sclerosis: A pilot feasibility study.

Knies AK, Golla H, Strupp J, Galushko M, Schipper S, Voltz R.

Palliat Support Care. 2015 Aug;13(4):1071-8. doi: 10.1017/S1478951514001035. Epub 2014 Sep 5.

PMID:
25192425
11.

Unmet needs of severely affected multiple sclerosis patients: the health professionals' view.

Golla H, Galushko M, Pfaff H, Voltz R.

Palliat Med. 2012 Mar;26(2):139-51. doi: 10.1177/0269216311401465. Epub 2011 May 4.

PMID:
21543525
12.

Palliative care in patients with severe multiple sclerosis: two case reports and a survey among German MS neurologists.

Kümpfel T, Hoffmann LA, Pöllmann W, Rieckmann P, Zettl UK, Kühnbach R, Borasio GD, Voltz R.

Palliat Med. 2007 Mar;21(2):109-14.

PMID:
17344259
13.

Palliative care for people severely affected by multiple sclerosis: evaluation of a novel palliative care service.

Edmonds P, Hart S, Wei Gao, Vivat B, Burman R, Silber E, Higginson IJ.

Mult Scler. 2010 May;16(5):627-36. doi: 10.1177/1352458510364632. Epub 2010 Mar 19.

PMID:
20305044
14.

Risk Factors for Suicidal Ideation in Patients Feeling Severely Affected by Multiple Sclerosis.

Strupp J, Ehmann C, Galushko M, Bücken R, Perrar KM, Hamacher S, Pfaff H, Voltz R, Golla H.

J Palliat Med. 2016 May;19(5):523-8. doi: 10.1089/jpm.2015.0418. Epub 2016 Apr 5.

PMID:
27046539
15.

Patients feeling severely affected by multiple sclerosis: how do patients want to communicate about end-of-life issues?

Buecken R, Galushko M, Golla H, Strupp J, Hahn M, Ernstmann N, Pfaff H, Voltz R.

Patient Educ Couns. 2012 Aug;88(2):318-24. doi: 10.1016/j.pec.2012.03.010. Epub 2012 Apr 4.

PMID:
22480629
16.

'Fighting for everything': service experiences of people severely affected by multiple sclerosis.

Edmonds P, Vivat B, Burman R, Silber E, Higginson IJ.

Mult Scler. 2007 Jun;13(5):660-7. Epub 2007 Feb 9.

PMID:
17548447
17.

Symptom prevalence and severity in people severely affected by multiple sclerosis.

Higginson IJ, Hart S, Silber E, Burman R, Edmonds P.

J Palliat Care. 2006 Autumn;22(3):158-65.

PMID:
17058754
18.

Evaluation of a new model of short-term palliative care for people severely affected with multiple sclerosis: a randomised fast-track trial to test timing of referral and how long the effect is maintained.

Higginson IJ, Costantini M, Silber E, Burman R, Edmonds P.

Postgrad Med J. 2011 Nov;87(1033):769-75. doi: 10.1136/postgradmedj-2011-130290. Epub 2011 Oct 6.

PMID:
21978993
19.

Palliative care and support for people with neurodegenerative conditions and their carers.

Kristjanson LJ, Aoun SM, Oldham L.

Int J Palliat Nurs. 2006 Aug;12(8):368-77.

PMID:
17077795
20.

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