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Items: 1 to 20 of 175

1.

Towards biobank privacy regimes in responsible innovation societies: ESBB conference in Granada 2012.

Lauss G, Schröder C, Dabrock P, Eder J, Hamacher K, Kuhn KA, Gottweis H.

Biopreserv Biobank. 2013 Oct;11(5):319-23. doi: 10.1089/bio.2013.0036. Review.

PMID:
24835264
2.

Biobank research and the right to privacy.

Ursin LO.

Theor Med Bioeth. 2008;29(4):267-85. doi: 10.1007/s11017-008-9079-8. Epub 2008 Oct 15.

PMID:
18855123
3.

IT solutions for privacy protection in biobanking.

Eder J, Gottweis H, Zatloukal K.

Public Health Genomics. 2012;15(5):254-62. doi: 10.1159/000336663. Epub 2012 Jun 20.

4.

Ethically sustainable governance in the biobanking of eggs and embryos for research.

Stroud K, O'Doherty KC.

Monash Bioeth Rev. 2015 Dec;33(4):277-94. doi: 10.1007/s40592-015-0047-6.

PMID:
26712609
5.

Publics and biobanks: Pan-European diversity and the challenge of responsible innovation.

Gaskell G, Gottweis H, Starkbaum J, Gerber MM, Broerse J, Gottweis U, Hobbs A, Helén I, Paschou M, Snell K, Soulier A.

Eur J Hum Genet. 2013 Jan;21(1):14-20. doi: 10.1038/ejhg.2012.104. Epub 2012 Jun 6. Erratum in: Eur J Hum Genet. 2013 Jan;21(1):121.

6.

The right to withdraw consent to research on biobank samples.

Helgesson G, Johnsson L.

Med Health Care Philos. 2005;8(3):315-21.

PMID:
16283494
7.

A biobank management model applicable to biomedical research.

Auray-Blais C, Patenaude J.

BMC Med Ethics. 2006 Apr 6;7:E4.

8.

[Establishing and operating a human biobank. Ethical aspects].

Jahns R.

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2016 Mar;59(3):311-6. doi: 10.1007/s00103-015-2292-5. German.

PMID:
26753862
9.

Development and progress of Ireland's biobank network: Ethical, legal, and social implications (ELSI), standardized documentation, sample and data release, and international perspective.

Mee B, Gaffney E, Glynn SA, Donatello S, Carroll P, Connolly E, Garrigle SM, Boyle T, Flannery D, Sullivan FJ, McCormick P, Griffin M, Muldoon C, Fay J, O'Grady T, Kay E, Eustace J, Burke L, Sheikh AA, Finn S, Flavin R, Giles FJ.

Biopreserv Biobank. 2013 Feb;11(1):3-11. doi: 10.1089/bio.2012.0028. Review.

10.

Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework.

Dove ES.

J Law Med Ethics. 2015 Winter;43(4):675-89. doi: 10.1111/jlme.12311.

PMID:
26711409
11.

Taiwan Regulation of Biobanks.

Fan CT, Hung TH, Yeh CK.

J Law Med Ethics. 2015 Winter;43(4):816-26. doi: 10.1111/jlme.12322.

PMID:
26711420
12.

Spanish regulatory approach for biobanking.

Arias-Diaz J, Martín-Arribas MC, García del Pozo J, Alonso C.

Eur J Hum Genet. 2013 Jul;21(7):708-12. doi: 10.1038/ejhg.2012.249. Epub 2012 Nov 28.

13.
14.

From protection of privacy to control of data streams: a focus group study on biobanks in the information society.

Snell K, Starkbaum J, Lauß G, Vermeer A, Helén I.

Public Health Genomics. 2012;15(5):293-302. doi: 10.1159/000336541. Epub 2012 Jun 20.

PMID:
22722693
15.

What Potential Donors in Research Biobanking Want to Know: A Large Population Study of the Italian Twin Registry.

Toccaceli V, Brescianini S, Fagnani C, Gigantesco A, D'Abramo F, Stazi MA.

Biopreserv Biobank. 2016 Dec;14(6):456-463. Epub 2016 Jun 21.

PMID:
27327227
16.

The Research Biobank of the Year Competition of the European, Middle Eastern and African Society for Biopreservation and Biobanking (ESBB): aims and achievements.

Schröder C, Corfield J, di Donato JH, Meir K, Parodi B, Schmitz AA, Tiran A, Tybring G, Hewitt RE.

Biopreserv Biobank. 2014 Apr;12(2):154-60. doi: 10.1089/bio.2014.0004.

PMID:
24749884
17.

The Bio-PIN: a concept to improve biobanking.

Nietfeld JJ, Sugarman J, Litton JE.

Nat Rev Cancer. 2011 Apr;11(4):303-8. doi: 10.1038/nrc3022. Epub 2011 Mar 17. Review.

PMID:
21412253
18.

Factors influencing public participation in biobanking.

Ahram M, Othman A, Shahrouri M, Mustafa E.

Eur J Hum Genet. 2014 Apr;22(4):445-51. doi: 10.1038/ejhg.2013.174. Epub 2013 Aug 7.

19.

Finland on a road towards a modern legal biobanking infrastructure.

Soini S.

Eur J Health Law. 2013 Jun;20(3):289-94.

PMID:
23984494
20.

Legal issues surrounding French research-focused biobanks.

Commin V.

J Int Bioethique. 2009 Sep;20(3):69-86, 149.

PMID:
20425941

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