Format
Sort by
Items per page

Send to

Choose Destination

Links from PubMed

Items: 1 to 20 of 137

1.

Parents' experiences of receiving their child's genetic diagnosis: a qualitative study to inform clinical genetics practice.

Ashtiani S, Makela N, Carrion P, Austin J.

Am J Med Genet A. 2014 Jun;164A(6):1496-502. doi: 10.1002/ajmg.a.36525. Epub 2014 Apr 4.

2.

Parents' Experience with Pediatric Microarray: Transferrable Lessons in the Era of Genomic Counseling.

Hayeems RZ, Babul-Hirji R, Hoang N, Weksberg R, Shuman C.

J Genet Couns. 2016 Apr;25(2):298-304. doi: 10.1007/s10897-015-9871-3. Epub 2015 Aug 12.

PMID:
26259530
3.

How not to tell parents about their child's new diagnosis of congenital heart disease: an Internet survey of 841 parents.

Hilton-Kamm D, Sklansky M, Chang RK.

Pediatr Cardiol. 2014 Feb;35(2):239-52. doi: 10.1007/s00246-013-0765-6. Epub 2013 Aug 8.

PMID:
23925415
4.

An exploration of Singaporean parental experiences in managing school-aged children's postoperative pain: a descriptive qualitative approach.

Lim SH, Mackey S, Liam JL, He HG.

J Clin Nurs. 2012 Mar;21(5-6):860-9. doi: 10.1111/j.1365-2702.2011.03911.x. Epub 2011 Nov 15.

PMID:
22081992
5.

Parental attitudes toward a diagnosis in children with unidentified multiple congenital anomaly syndromes.

Rosenthal ET, Biesecker LG, Biesecker BB.

Am J Med Genet. 2001 Oct 1;103(2):106-14.

PMID:
11568915
6.

Not the End of the Odyssey: Parental Perceptions of Whole Exome Sequencing (WES) in Pediatric Undiagnosed Disorders.

Rosell AM, Pena LD, Schoch K, Spillmann R, Sullivan J, Hooper SR, Jiang YH, Mathey-Andrews N, Goldstein DB, Shashi V.

J Genet Couns. 2016 Oct;25(5):1019-31. doi: 10.1007/s10897-016-9933-1. Epub 2016 Feb 12.

PMID:
26868367
7.

Why we need a process on breaking news of Juvenile Idiopathic Arthritis: a mixed methods study.

Chausset A, Gominon AL, Montmaneix N, Echaubard S, Guillaume-Czitrom S, Cambon B, Miele C, Rochette E, Merlin E.

Pediatr Rheumatol Online J. 2016 May 21;14(1):31. doi: 10.1186/s12969-016-0092-6.

8.

Comparison of parent and child reports of emotional trauma symptoms in pediatric outpatient settings.

Shemesh E, Newcorn JH, Rockmore L, Shneider BL, Emre S, Gelb BD, Rapaport R, Noone SA, Annunziato R, Schmeidler J, Yehuda R.

Pediatrics. 2005 May;115(5):e582-9.

PMID:
15867023
9.

"It wasn't a disaster or anything": Parents' experiences of their child's uncertain chromosomal microarray result.

Wilkins EJ, Archibald AD, Sahhar MA, White SM.

Am J Med Genet A. 2016 Nov;170(11):2895-2904. doi: 10.1002/ajmg.a.37838. Epub 2016 Jul 13.

PMID:
27411073
10.

Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions.

Kirk S, Fallon D, Fraser C, Robinson G, Vassallo G.

Child Care Health Dev. 2015 Mar;41(2):303-13. doi: 10.1111/cch.12173. Epub 2014 Jul 4.

PMID:
25039833
11.

Peering into a Chilean black box: parental storytelling in pediatric genetic counseling.

Ordonez J, Margarit S, Downs K, Yashar BM.

J Genet Couns. 2013 Dec;22(6):805-16. doi: 10.1007/s10897-013-9620-4. Epub 2013 Jun 29.

PMID:
23813299
12.

[Experiences and support needs of parents of hospitalized children with multiple disabilities: a qualitative study].

Seliner B, Latal B, Spirig R.

Pflege. 2016;29(2):73-82. doi: 10.1024/1012-5302/a000475. German.

PMID:
26974279
13.

Family pediatrics: report of the Task Force on the Family.

Schor EL; American Academy of Pediatrics Task Force on the Family.

Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.

PMID:
12777595
14.

Transition experience of parents caring of children with epilepsy: a phenomenological study.

Mu PF.

Int J Nurs Stud. 2008 Apr;45(4):543-51. Epub 2006 Dec 8.

PMID:
17157850
15.

Factors influencing parents' decision to donate their healthy infant's DNA for minimal-risk genetic research.

Hatfield LA, Pearce MM.

J Nurs Scholarsh. 2014 Nov;46(6):398-407. doi: 10.1111/jnu.12096. Epub 2014 Jun 19.

PMID:
24948372
16.

The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.

Mu PF, Lee MY, Sheng CC, Tung PC, Huang LY, Chen YW.

JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698. Review.

PMID:
26455612
17.

A qualitative look at parents' experience of their child's dental general anaesthesia.

Amin MS, Harrison RL, Weinstein P.

Int J Paediatr Dent. 2006 Sep;16(5):309-19.

PMID:
16879327
18.
19.

Parents' attitudes toward pediatric genetic testing for common disease risk.

Tercyak KP, Hensley Alford S, Emmons KM, Lipkus IM, Wilfond BS, McBride CM.

Pediatrics. 2011 May;127(5):e1288-95. doi: 10.1542/peds.2010-0938. Epub 2011 Apr 18.

20.

Fathers and the well-child visit.

Garfield CF, Isacco A.

Pediatrics. 2006 Apr;117(4):e637-45.

PMID:
16585280

Supplemental Content

Support Center