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Items: 1 to 20 of 102

1.

Parents' preferences for return of results in pediatric genomic research.

Ziniel SI, Savage SK, Huntington N, Amatruda J, Green RC, Weitzman ER, Taylor P, Holm IA.

Public Health Genomics. 2014;17(2):105-14. doi: 10.1159/000358539. Epub 2014 Mar 13.

2.

Guidelines for return of research results from pediatric genomic studies: deliberations of the Boston Children's Hospital Gene Partnership Informed Cohort Oversight Board.

Holm IA, Savage SK, Green RC, Juengst E, McGuire A, Kornetsky S, Brewster SJ, Joffe S, Taylor P.

Genet Med. 2014 Jul;16(7):547-52. doi: 10.1038/gim.2013.190. Epub 2014 Jan 9.

PMID:
24406460
3.

The beliefs, motivations, and expectations of parents who have enrolled their children in a genetic biorepository.

Harris ED, Ziniel SI, Amatruda JG, Clinton CM, Savage SK, Taylor PL, Huntington NL, Green RC, Holm IA.

Genet Med. 2012 Mar;14(3):330-7. doi: 10.1038/gim.2011.25. Epub 2012 Jan 26.

4.

Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.

Holm IA, Iles BR, Ziniel SI, Bacon PL, Savage SK, Christensen KD, Weitzman ER, Green RC, Huntington NL.

J Empir Res Hum Res Ethics. 2015 Oct;10(4):414-26. doi: 10.1177/1556264615599620.

PMID:
26376753
5.

Expectation versus Reality: The Impact of Utility on Emotional Outcomes after Returning Individualized Genetic Research Results in Pediatric Rare Disease Research, a Qualitative Interview Study.

Cacioppo CN, Chandler AE, Towne MC, Beggs AH, Holm IA.

PLoS One. 2016 Apr 15;11(4):e0153597. doi: 10.1371/journal.pone.0153597. eCollection 2016.

6.

Attitudes of parents toward the return of targeted and incidental genomic research findings in children.

Fernandez CV, Bouffet E, Malkin D, Jabado N, O'Connell C, Avard D, Knoppers BM, Ferguson M, Boycott KM, Sorensen PH, Orr AC, Robitaille JM, McMaster CR.

Genet Med. 2014 Aug;16(8):633-40. doi: 10.1038/gim.2013.201. Epub 2014 Jan 16.

PMID:
24434691
7.

Stability of Attitudes to the Ethical Issues Raised by the Return of Incidental Genomic Research Findings in Children: A Follow-Up Study.

Fernandez CV, O╩╝Connell C, Ferguson M, Orr AC, Robitaille JM, Knoppers BM, McMaster CR.

Public Health Genomics. 2015;18(5):299-308. doi: 10.1159/000439244. Epub 2015 Sep 10.

PMID:
26352440
8.

Parents' food choice motives and their associations with children's food preferences.

Russell CG, Worsley A, Liem DG.

Public Health Nutr. 2015 Apr;18(6):1018-27. doi: 10.1017/S1368980014001128. Epub 2014 Jun 2.

PMID:
24887485
9.

Attitudes of African-American parents about biobank participation and return of results for themselves and their children.

Halverson CM, Ross LF.

J Med Ethics. 2012 Sep;38(9):561-6. doi: 10.1136/medethics-2012-100600. Epub 2012 May 9.

10.

Parents' willingness to have their child receive care by physician assistants in a pediatric emergency department.

Doan Q, Sheps S, Wong H, Singer J, Johnson D, Kissoon N.

CJEM. 2013 Nov;15(6):330-6.

PMID:
24176456
11.

Opinions and intentions of parents of an autistic child toward genetic research results: two typical profiles.

Baret L, Godard B.

Eur J Hum Genet. 2011 Nov;19(11):1127-32. doi: 10.1038/ejhg.2011.106. Epub 2011 Jun 15.

12.

The development of a preference-setting model for the return of individual genomic research results.

Bacon PL, Harris ED, Ziniel SI, Savage SK, Weitzman ER, Green RC, Huntington NL, Holm IA.

J Empir Res Hum Res Ethics. 2015 Apr;10(2):107-20. doi: 10.1177/1556264615572092. Epub 2015 Feb 20.

PMID:
25742675
13.

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.

Tabor HK, Brazg T, Crouch J, Namey EE, Fullerton SM, Beskow LM, Wilfond BS.

J Empir Res Hum Res Ethics. 2011 Dec;6(4):41-52. doi: 10.1525/jer.2011.6.4.41.

14.

Family pediatrics: report of the Task Force on the Family.

Schor EL; American Academy of Pediatrics Task Force on the Family..

Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.

PMID:
12777595
15.

How Well Do Customers of Direct-to-Consumer Personal Genomic Testing Services Comprehend Genetic Test Results? Findings from the Impact of Personal Genomics Study.

Ostergren JE, Gornick MC, Carere DA, Kalia SS, Uhlmann WR, Ruffin MT, Mountain JL, Green RC, Roberts JS; PGen Study Group..

Public Health Genomics. 2015;18(4):216-24. doi: 10.1159/000431250. Epub 2015 Jun 16.

16.

Parents' and children's attitudes toward the enrollment of minors in genetic susceptibility research: implications for informed consent.

Bernhardt BA, Tambor ES, Fraser G, Wissow LS, Geller G.

Am J Med Genet A. 2003 Feb 1;116A(4):315-23.

PMID:
12522783
17.

Parental language and dosing errors after discharge from the pediatric emergency department.

Samuels-Kalow ME, Stack AM, Porter SC.

Pediatr Emerg Care. 2013 Sep;29(9):982-7. doi: 10.1097/PEC.0b013e3182a269ec.

PMID:
23974717
18.

Pediatric data sharing in genomic research: attitudes and preferences of parents.

Burstein MD, Robinson JO, Hilsenbeck SG, McGuire AL, Lau CC.

Pediatrics. 2014 Apr;133(4):690-7. doi: 10.1542/peds.2013-1592. Epub 2014 Mar 10.

19.

The quality of parental consent for research with children: a prospective repeated measure self-report survey.

Franck LS, Winter I, Oulton K.

Int J Nurs Stud. 2007 May;44(4):525-33. Epub 2006 May 18.

PMID:
16712850
20.

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