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Items: 1 to 20 of 427

1.

Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study*.

Blume ED, Balkin EM, Aiyagari R, Ziniel S, Beke DM, Thiagarajan R, Taylor L, Kulik T, Pituch K, Wolfe J.

Pediatr Crit Care Med. 2014 May;15(4):336-42. doi: 10.1097/PCC.0000000000000072.

PMID:
24583501
2.

Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.

Hechler T, Blankenburg M, Friedrichsdorf SJ, Garske D, Hübner B, Menke A, Wamsler C, Wolfe J, Zernikow B.

Klin Padiatr. 2008 May-Jun;220(3):166-74. doi: 10.1055/s-2008-1065347.

PMID:
18478489
3.

Physician and parent perceptions of prognosis and end-of-life experience in children with advanced heart disease.

Balkin EM, Wolfe J, Ziniel SI, Lang P, Thiagarajan R, Dillis S, Fynn-Thompson F, Blume ED.

J Palliat Med. 2015 Apr;18(4):318-23. doi: 10.1089/jpm.2014.0305. Epub 2014 Dec 10.

PMID:
25493354
4.

Symptoms and suffering at the end of life in children with cancer: an Australian perspective.

Heath JA, Clarke NE, Donath SM, McCarthy M, Anderson VA, Wolfe J.

Med J Aust. 2010 Jan 18;192(2):71-5.

PMID:
20078405
5.

Symptoms and suffering at the end of life in children with cancer.

Wolfe J, Grier HE, Klar N, Levin SB, Ellenbogen JM, Salem-Schatz S, Emanuel EJ, Weeks JC.

N Engl J Med. 2000 Feb 3;342(5):326-33.

6.

Physical symptoms of children receiving pediatric hospice care at home during the last week of life.

Hendricks-Ferguson V.

Oncol Nurs Forum. 2008 Nov;35(6):E108-15. doi: 10.1188/08.ONF. E108-E115.

PMID:
18980914
7.

Listening to parents: The role of symptom perception in pediatric palliative home care.

Vollenbroich R, Borasio GD, Duroux A, Grasser M, Brandstätter M, Führer M.

Palliat Support Care. 2016 Feb;14(1):13-9. doi: 10.1017/S1478951515000462. Epub 2015 May 22.

PMID:
25998176
8.

Parental perceptions of forgoing artificial nutrition and hydration during end-of-life care.

Rapoport A, Shaheed J, Newman C, Rugg M, Steele R.

Pediatrics. 2013 May;131(5):861-9. doi: 10.1542/peds.2012-1916. Epub 2013 Apr 8.

9.

Bereaved parents' perspectives on pediatric palliative care.

Robert R, Zhukovsky DS, Mauricio R, Gilmore K, Morrison S, Palos GR.

J Soc Work End Life Palliat Care. 2012;8(4):316-38. doi: 10.1080/15524256.2012.732023.

PMID:
23194168
10.

Parental perspectives on end-of-life care in the pediatric intensive care unit.

Meyer EC, Burns JP, Griffith JL, Truog RD.

Crit Care Med. 2002 Jan;30(1):226-31.

PMID:
11902266
11.

Parent and physician perspectives on quality of care at the end of life in children with cancer.

Mack JW, Hilden JM, Watterson J, Moore C, Turner B, Grier HE, Weeks JC, Wolfe J.

J Clin Oncol. 2005 Dec 20;23(36):9155-61. Epub 2005 Sep 19.

PMID:
16172457
12.

The Bereaved Parent Needs Assessment: a new instrument to assess the needs of parents whose children died in the pediatric intensive care unit*.

Meert KL, Templin TN, Michelson KN, Morrison WE, Hackbarth R, Custer JR, Schim SM, Briller SH, Thurston CS.

Crit Care Med. 2012 Nov;40(11):3050-7. doi: 10.1097/CCM.0b013e31825fe164.

13.

Improving the quality of end-of-life care in the pediatric intensive care unit: parents' priorities and recommendations.

Meyer EC, Ritholz MD, Burns JP, Truog RD.

Pediatrics. 2006 Mar;117(3):649-57.

PMID:
16510643
14.

Patterns of care at end of life in children with advanced heart disease.

Morell E, Wolfe J, Scheurer M, Thiagarajan R, Morin C, Beke DM, Smoot L, Cheng H, Gauvreau K, Blume ED.

Arch Pediatr Adolesc Med. 2012 Aug;166(8):745-8.

15.

[Palliative home care of children: an opinion survey of orphaned parents].

Kuhlen M, Schlote A, Borkhardt A, Janßen G.

Klin Padiatr. 2014 May;226(3):182-7. doi: 10.1055/s-0034-1371841. Epub 2014 May 12. German.

PMID:
24819389
16.

Family perspectives on the quality of pediatric palliative care.

Contro N, Larson J, Scofield S, Sourkes B, Cohen H.

Arch Pediatr Adolesc Med. 2002 Jan;156(1):14-9.

PMID:
11772185
17.
18.

Care-related distress: a nationwide study of parents who lost their child to cancer.

Kreicbergs U, Valdimarsdóttir U, Onelöv E, Björk O, Steineck G, Henter JI.

J Clin Oncol. 2005 Dec 20;23(36):9162-71. Epub 2005 Sep 19.

PMID:
16172455
19.

Provider perceptions of child deaths.

Andresen EM, Seecharan GA, Toce SS.

Arch Pediatr Adolesc Med. 2004 May;158(5):430-5.

PMID:
15123474
20.

Parents' perceptions of the quality of pediatric and perinatal end-of-life care.

Widger K, Picot C.

Pediatr Nurs. 2008 Jan-Feb;34(1):53-8.

PMID:
18361087

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