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Items: 1 to 20 of 125

1.

What should men living with haemophilia need to know? The perspectives of Canadian men with haemophilia.

Arnold E, Lane S, Webert KE, Chan A, Walker I, Tufts J, Rubin S, Poon MC, Heddle NM.

Haemophilia. 2014 Mar;20(2):219-25. doi: 10.1111/hae.12297. Epub 2013 Nov 20.

PMID:
24252098
2.

What should men living with severe haemophilia need to know? The perspectives of Canadian haemophilia health care providers.

Lane S, Arnold E, Webert KE, Chan A, Walker I, Heddle NM.

Haemophilia. 2013 Jul;19(4):503-10. doi: 10.1111/hae.12104. Epub 2013 Apr 1.

PMID:
23551887
3.

A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia.

Nilson J, Schachter C, Mulder K, Hahn M, Steele M, Hilliard P, Jarock C.

Haemophilia. 2012 May;18(3):e120-5. doi: 10.1111/j.1365-2516.2011.02714.x. Epub 2011 Dec 16.

PMID:
22171673
4.

Issues in the ageing individual with haemophilia and other inherited bleeding disorders: understanding and responding to the patients' perspective.

Smith N, Bartholomew C, Jackson S.

Haemophilia. 2014 Jan;20(1):e1-6. doi: 10.1111/hae.12278. Epub 2013 Oct 14.

PMID:
24118548
5.

Haemophilia A: patients' knowledge level of treatment and sources of treatment-related information.

Miller KL, Guelcher C, Taylor A.

Haemophilia. 2009 Jan;15(1):73-7. doi: 10.1111/j.1365-2516.2008.01875.x. Epub 2008 Sep 8.

PMID:
18783441
6.

Treatment decision-making among Canadian youth with severe haemophilia: a qualitative approach.

Lane SJ, Walker I, Chan AK, Heddle NM, Poon MC, Minuk L, Jardine L, Arnold E, Sholapur N, Webert KE.

Haemophilia. 2015 Mar;21(2):180-9. doi: 10.1111/hae.12543. Epub 2014 Oct 9.

PMID:
25296666
7.

Survey of current prophylaxis practices and bleeding characteristics of children with severe haemophilia A in US haemophilia treatment centres.

Ragni MV, Fogarty PJ, Josephson NC, Neff AT, Raffini LJ, Kessler CM.

Haemophilia. 2012 Jan;18(1):63-8. doi: 10.1111/j.1365-2516.2011.02554.x. Epub 2011 May 4.

PMID:
21539695
8.

[Haemophilia A, B or von Willebrand disease type 3. Census of patients in the eastern part of Germany].

Scholz U, Syrbe G, Koscielny J, Klamroth R; Kompetenznetzwerk Hämorrhagische Diathesen Ost (KHDO).

Hamostaseologie. 2008;28(3):150-4. German.

PMID:
18521493
9.
10.

Haemophilia care in Europe: the ESCHQoL study.

Schramm W, Gringeri A, Ljung R, Berger K, Crispin A, Bullinger M, Giangrande PL, Von Mackensen S, Mantovani LG, Nemes L, Serban M; ESCHQOL Study Group.

Haemophilia. 2012 Sep;18(5):729-37. doi: 10.1111/j.1365-2516.2012.02847.x. Epub 2012 May 29.

PMID:
22639833
11.

Haemophilia Experiences, Results and Opportunities (HERO) Study: survey methodology and population demographics.

Forsyth AL, Gregory M, Nugent D, Garrido C, Pilgaard T, Cooper DL, Iorio A.

Haemophilia. 2014 Jan;20(1):44-51. doi: 10.1111/hae.12239. Epub 2013 Aug 1.

PMID:
23902228
12.

Medical care for haemophilia.

Nuss R, Hedegaard H, Riske B, Hoffman R, Michael S, Manco-Johnson M.

Haemophilia. 1998 Nov;4(6):806-11.

PMID:
10028302
13.

Treatment trends for haemophilia A and haemophilia B in the United States: results from the 2010 practice patterns survey.

Zappa S, McDaniel M, Marandola J, Allen G.

Haemophilia. 2012 May;18(3):e140-53. doi: 10.1111/j.1365-2516.2012.02770.x. Epub 2012 Mar 12.

PMID:
22533455
14.

The use of prophylaxis in 2663 children and adults with haemophilia: results of the 2006 Canadian national haemophilia prophylaxis survey.

Biss TT, Chan AK, Blanchette VS, Iwenofu LN, McLimont M, Carcao MD; Association of Hemophilia Clinic Directors of Canada (AHCDC); Canadian Association of Nurses in Hemophilia Care (CANHC).

Haemophilia. 2008 Sep;14(5):923-30. doi: 10.1111/j.1365-2516.2008.01810.x. Epub 2008 Jul 14.

PMID:
18637844
15.

Perceived challenges and attitudes to regimen and product selection from Italian haemophilia treaters: the 2013 AICE survey.

Franchini M, Coppola A, Rocino A, Zanon E, Morfini M; Italian Association of Haemophilia Centers AICE Working Group, Accorsi A, Aru AB, Biasoli C, Cantori I, Castaman G, Cesaro S, Ciabatta C, De Cristofaro R, Delios G, Di Minno G, D'IncĂ  M, Dragani A, Ettorre CP, Gagliano F, Gamba G, Gandini G, Giordano P, Giuffrida G, Gresele P, Latella C, Luciani M, Margaglione M, Marietta M, Mazzucconi MG, Messina M, Molinari AC, Notarangelo LD, Oliovecchio E, Peyvandi F, Piseddu G, Rossetti G, Rossi V, Santagostino E, Schiavoni M, Schinco P, Serino ML, Tagliaferri A, Testa S.

Haemophilia. 2014 Mar;20(2):e128-35. doi: 10.1111/hae.12334.

PMID:
24533954
16.

A survey of factor prophylaxis in boys with haemophilia followed in North American haemophilia treatment centres.

Blanchette VS, McCready M, Achonu C, Abdolell M, Rivard G, Manco-Johnson MJ.

Haemophilia. 2003 May;9 Suppl 1:19-26; discussion 26.

PMID:
12709033
17.

Haemophilia care in central Scotland 1980-94. I. Demographic characteristics, hospital admissions and causes of death.

Ludlam CA, Lee RJ, Prescott RJ, Andrews J, Kirke E, Thomas AE, Chalmers E, Lowe GD.

Haemophilia. 2000 Sep;6(5):494-503.

PMID:
11012692
18.

Haemophilia care in South Africa: 2004-2007 look back.

Mahlangu JN; Medical and Scientific Council of the South African Haemophilia Foundation.

Haemophilia. 2009 Jan;15(1):135-41. doi: 10.1111/j.1365-2516.2008.01807.x. Epub 2008 Aug 12.

PMID:
18700842
19.

Factor VIII prophylaxis for adult patients with severe haemophilia A: results of a US survey of attitudes and practices.

Walsh CE, Valentino LA.

Haemophilia. 2009 Sep;15(5):1014-21. doi: 10.1111/j.1365-2516.2009.02036.x. Epub 2009 Jun 1.

PMID:
19493018
20.

An investigation of the spectrum of common and rare inherited coagulation disorders in north-eastern Iran.

Mansouritorghabeh H, Manavifar L, Banihashem A, Modaresi A, Shirdel A, Shahroudian M, Shoja-E-Razavi G, Pousti H, Esmaily H.

Blood Transfus. 2013 Apr;11(2):233-40. doi: 10.2450/2012.0023-12. Epub 2012 Oct 10.

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