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Items: 1 to 20 of 105

1.

The impact of severe osteogenesis imperfecta on the lives of young patients and their parents - a qualitative analysis.

Dogba MJ, Bedos C, Durigova M, Montpetit K, Wong T, Glorieux FH, Rauch F.

BMC Pediatr. 2013 Sep 30;13:153. doi: 10.1186/1471-2431-13-153.

2.

Shaping and managing the course of a child's disease: parental experiences with osteogenesis imperfecta.

Dogba MJ, Rauch F, Tre G, Glorieux FH, Bedos C.

Disabil Health J. 2014 Jul;7(3):343-9. doi: 10.1016/j.dhjo.2014.03.002. Epub 2014 Apr 20.

PMID:
24947576
3.

Involving Families with Osteogenesis Imperfecta in Health Service Research: Joint Development of the OI/ECE Questionnaire.

Dogba MJ, Dahan-Oliel N, Snider L, Glorieux FH, Durigova M, Palomo T, Cordey M, Bédard MH, Bedos C, Rauch F.

PLoS One. 2016 Jan 22;11(1):e0147654. doi: 10.1371/journal.pone.0147654. eCollection 2016.

4.

Quality of life in children and adolescents with Osteogenesis Imperfecta: a qualitative interview based study.

Hill CL, Baird WO, Walters SJ.

Health Qual Life Outcomes. 2014 Apr 16;12:54. doi: 10.1186/1477-7525-12-54.

5.

Assessment of quality of life of parents of children with osteogenesis imperfecta.

Szczepaniak-Kubat A, Kurnatowska O, Jakubowska-Pietkiewicz E, Chlebna-Sokół D.

Adv Clin Exp Med. 2012 Jan-Feb;21(1):99-104.

6.

Quality of life in osteogenesis imperfecta: A mixed-methods systematic review.

Dahan-Oliel N, Oliel S, Tsimicalis A, Montpetit K, Rauch F, Dogba MJ.

Am J Med Genet A. 2016 Jan;170A(1):62-76. doi: 10.1002/ajmg.a.37377. Epub 2015 Sep 14. Review.

PMID:
26365089
7.

From pediatric to adult care: strategic evaluation of a transition program for patients with osteogenesis imperfecta.

Dogba MJ, Rauch F, Wong T, Ruck J, Glorieux FH, Bedos C.

BMC Health Serv Res. 2014 Oct 31;14:489. doi: 10.1186/s12913-014-0489-1.

8.

Surgical treatment in Osteogenesis Imperfecta - 10 years experience.

Georgescu I, Vlad C, Gavriliu TŞ, Dan S, Pârvan AA.

J Med Life. 2013 Jun 15;6(2):205-13. Epub 2013 Jun 25.

9.

The psychosocial experience of individuals living with osteogenesis imperfecta: a mixed-methods systematic review.

Tsimicalis A, Denis-Larocque G, Michalovic A, Lepage C, Williams K, Yao TR, Palomo T, Dahan-Oliel N, Le May S, Rauch F.

Qual Life Res. 2016 Aug;25(8):1877-96. doi: 10.1007/s11136-016-1247-0. Epub 2016 Feb 19. Review.

PMID:
26894269
10.

The experiences of family members in the year following the diagnosis of a child or adolescent with cancer: a qualitative systematic review.

Mu PF, Lee MY, Sheng CC, Tung PC, Huang LY, Chen YW.

JBI Database System Rev Implement Rep. 2015 Jun 12;13(5):293-329. doi: 10.11124/jbisrir-2015-1698. Review.

PMID:
26455612
11.

Activities and participation in young adults with osteogenesis imperfecta.

Montpetit K, Dahan-Oliel N, Ruck-Gibis J, Fassier F, Rauch F, Glorieux F.

J Pediatr Rehabil Med. 2011;4(1):13-22. doi: 10.3233/PRM-2011-0149.

PMID:
21757806
12.

Multidisciplinary Treatment of Severe Osteogenesis Imperfecta: Functional Outcomes at Skeletal Maturity.

Montpetit K, Palomo T, Glorieux FH, Fassier F, Rauch F.

Arch Phys Med Rehabil. 2015 Oct;96(10):1834-9. doi: 10.1016/j.apmr.2015.06.006. Epub 2015 Jul 2.

PMID:
26140741
13.

Family experience with osteogenesis imperfecta type 1: the most distressing situations.

Santos MCD, Pires AF, Soares K, Barros L.

Disabil Rehabil. 2017 Jun 6:1-7. doi: 10.1080/09638288.2017.1334236. [Epub ahead of print]

PMID:
28585474
14.

Quality of life in caregivers of children and adolescents with Osteogenesis Imperfecta.

Vanz AP, Félix TM, da Rocha NS, Schwartz IV.

Health Qual Life Outcomes. 2015 Apr 1;13:41. doi: 10.1186/s12955-015-0226-4.

15.

Part 2. Osteogenesis imperfecta.

Bender LH.

Orthop Nurs. 1991 Jul-Aug;10(4):23-32.

PMID:
1870896
16.

The functional muscle-bone unit in patients with osteogenesis imperfecta type I.

Veilleux LN, Pouliot-Laforte A, Lemay M, Cheung MS, Glorieux FH, Rauch F.

Bone. 2015 Oct;79:52-7. doi: 10.1016/j.bone.2015.05.019. Epub 2015 May 21.

PMID:
26004918
17.

Living with type 1 diabetes: perceptions of children and their parents.

Marshall M, Carter B, Rose K, Brotherton A.

J Clin Nurs. 2009 Jun;18(12):1703-10. doi: 10.1111/j.1365-2702.2008.02737.x.

PMID:
19646116
18.

Oral mucositis: a phenomenological study of pediatric patients' and their parents' perspectives and experiences.

Cheng KK.

Support Care Cancer. 2009 Jul;17(7):829-37. doi: 10.1007/s00520-009-0618-2. Epub 2009 Mar 26.

PMID:
19322593
19.

Rib cage deformities alter respiratory muscle action and chest wall function in patients with severe osteogenesis imperfecta.

LoMauro A, Pochintesta S, Romei M, D'Angelo MG, Pedotti A, Turconi AC, Aliverti A.

PLoS One. 2012;7(4):e35965. doi: 10.1371/journal.pone.0035965. Epub 2012 Apr 27.

20.

Initial report of the osteogenesis imperfecta adult natural history initiative.

Tosi LL, Oetgen ME, Floor MK, Huber MB, Kennelly AM, McCarter RJ, Rak MF, Simmonds BJ, Simpson MD, Tucker CA, McKiernan FE.

Orphanet J Rare Dis. 2015 Nov 14;10:146. doi: 10.1186/s13023-015-0362-2.

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