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Items: 1 to 20 of 96

1.

From newborn screening to population health research: implementation of the Michigan BioTrust for health.

Langbo C, Bach J, Kleyn M, Downes FP.

Public Health Rep. 2013 Sep-Oct;128(5):377-84.

2.

Michigan BioTrust for Health: public support for using residual dried blood spot samples for health research.

Duquette D, Langbo C, Bach J, Kleyn M.

Public Health Genomics. 2012;15(3-4):146-55. doi: 10.1159/000336565. Epub 2012 Apr 4.

PMID:
22488457
3.

The Michigan BioTrust for Health: using dried bloodspots for research to benefit the community while respecting the individual.

Chrysler D, McGee H, Bach J, Goldman E, Jacobson PD.

J Law Med Ethics. 2011 Mar;39 Suppl 1:98-101. doi: 10.1111/j.1748-720X.2011.00577.x. No abstract available.

4.

The use of newborn screening dried blood spots for research: the parental perspective.

Gong LM, Tu WJ, He J, Shi XD, Wang XY, Li Y.

J Bioeth Inq. 2012 Jun;9(2):189-93. doi: 10.1007/s11673-012-9368-9. Epub 2012 Mar 21.

PMID:
23180262
5.

IRB review and public health biobanking: a case study of the Michigan BioTrust for Health.

Mongoven A, McGee H.

IRB. 2012 May-Jun;34(3):11-6. No abstract available.

PMID:
22830178
6.

Community perspectives on public health biobanking: an analysis of community meetings on the Michigan BioTrust for Health.

Thiel DB, Platt T, Platt J, King SB, Kardia SL.

J Community Genet. 2014 Apr;5(2):125-38. doi: 10.1007/s12687-013-0162-0. Epub 2013 Jul 27.

7.

Public attitudes regarding the use of residual newborn screening specimens for research.

Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, Lewis M, Burbank M, Wong B.

Pediatrics. 2012 Feb;129(2):231-8. doi: 10.1542/peds.2011-0970. Epub 2012 Jan 16.

8.

Attitude to extended use and long-term storage of newborn screening blood spots in Japan.

Fujii C, Sato Y, Harada S, Kakee N, Gu YH, Kato T, Shintaku H, Owada M, Hirahara F, Umehashi H, Yoshino M.

Pediatr Int. 2010 Jun;52(3):393-7. doi: 10.1111/j.1442-200X.2009.03018.x. Epub 2009 Dec 8.

PMID:
20003144
9.

Prenatal Education of Parents About Newborn Screening and Residual Dried Blood Spots: A Randomized Clinical Trial.

Botkin JR, Rothwell E, Anderson RA, Rose NC, Dolan SM, Kuppermann M, Stark LA, Goldenberg A, Wong B.

JAMA Pediatr. 2016 Jun 1;170(6):543-9. doi: 10.1001/jamapediatrics.2015.4850.

PMID:
27043416
10.

Information and consent for newborn screening: practices and attitudes of service providers.

Kerruish NJ, Webster D, Dickson N.

J Med Ethics. 2008 Sep;34(9):648-52. doi: 10.1136/jme.2007.023374.

PMID:
18757632
11.

Not without my permission: parents' willingness to permit use of newborn screening samples for research.

Tarini BA, Goldenberg A, Singer D, Clark SJ, Butchart A, Davis MM.

Public Health Genomics. 2010;13(3):125-30. doi: 10.1159/000228724. Epub 2009 Jul 11.

PMID:
19602864
12.

Consent for newborn screening: the attitudes of health care providers.

Miller FA, Hayeems RZ, Carroll JC, Wilson B, Little J, Allanson J, Bytautas JP, Paynter M, Christensen R, Chaktraborty P.

Public Health Genomics. 2010;13(3):181-90. doi: 10.1159/000240966. Epub 2009 Sep 22.

PMID:
19776551
13.

Testing an online, dynamic consent portal for large population biobank research.

Thiel DB, Platt J, Platt T, King SB, Fisher N, Shelton R, Kardia SL.

Public Health Genomics. 2015;18(1):26-39. doi: 10.1159/000366128. Epub 2014 Oct 30.

15.

Public support for the use of newborn screening dried blood spots in health research.

Duquette D, Rafferty AP, Fussman C, Gehring J, Meyer S, Bach J.

Public Health Genomics. 2011;14(3):143-52. doi: 10.1159/000321756. Epub 2010 Dec 18.

PMID:
21178324
16.

Waiving informed consent in newborn screening research: balancing social value and respect.

Tarini BA, Burke W, Scott CR, Wilfond BS.

Am J Med Genet C Semin Med Genet. 2008 Feb 15;148C(1):23-30. doi: 10.1002/ajmg.c.30164.

PMID:
18200521
17.

Analysis of educational materials and destruction/opt-out initiatives for storage and use of residual newborn screening samples.

Haga SB.

Genet Test Mol Biomarkers. 2010 Oct;14(5):587-92. doi: 10.1089/gtmb.2010.0010. Epub 2010 Sep 21. Review.

PMID:
20858049
18.

Citizens' values regarding research with stored samples from newborn screening in Canada.

Bombard Y, Miller FA, Hayeems RZ, Carroll JC, Avard D, Wilson BJ, Little J, Bytautas JP, Allanson J, Axler R, Giguere Y, Chakraborty P.

Pediatrics. 2012 Feb;129(2):239-47. doi: 10.1542/peds.2011-2572. Epub 2012 Jan 16.

PMID:
22250019
19.

Attitudes of parents of children with serious health conditions regarding residual bloodspot use.

Nagaraj CB, Rothwell E, Hart K, Latimer S, Schiffman JD, Botkin JR.

Public Health Genomics. 2014;17(3):141-8. doi: 10.1159/000360251. Epub 2014 Apr 3.

PMID:
24713606
20.

Primary care providers' experiences notifying parents of cystic fibrosis newborn screening results.

Finan C, Nasr SZ, Rothwell E, Tarini BA.

Clin Pediatr (Phila). 2015 Jan;54(1):67-75. doi: 10.1177/0009922814545619. Epub 2014 Aug 6.

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