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Items: 1 to 20 of 119

1.

Community engagement with genetics: public perceptions and expectations about genetics research.

Etchegary H, Green J, Parfrey P, Street C, Pullman D.

Health Expect. 2015 Oct;18(5):1413-25. doi: 10.1111/hex.12122. Epub 2013 Aug 23.

2.

Consulting the community: public expectations and attitudes about genetics research.

Etchegary H, Green J, Dicks E, Pullman D, Street C, Parfrey P.

Eur J Hum Genet. 2013 Dec;21(12):1338-43. doi: 10.1038/ejhg.2013.64. Epub 2013 Apr 17.

3.

Enhancing geneticists' perspectives of the public through community engagement.

O'Daniel JM, Rosanbalm KD, Boles L, Tindall GM, Livingston TM, Haga SB.

Genet Med. 2012 Feb;14(2):243-9. doi: 10.1038/gim.2011.29. Epub 2012 Jan 19.

PMID:
22241095
4.
5.

Public attitudes to genomic science: an experiment in information provision.

Sturgis P, Brunton-Smith I, Fife-Schaw C.

Public Underst Sci. 2010 Mar;19(2):166-80.

PMID:
20533796
6.

The routinisation of genomics and genetics: implications for ethical practices.

Foster MW, Royal CD, Sharp RR.

J Med Ethics. 2006 Nov;32(11):635-8. Review.

7.

Community engagement strategies for genomic studies in Africa: a review of the literature.

Tindana P, de Vries J, Campbell M, Littler K, Seeley J, Marshall P, Troyer J, Ogundipe M, Alibu VP, Yakubu A, Parker M; as members of the H3A Working Group on Ethics.

BMC Med Ethics. 2015 Apr 12;16:24. doi: 10.1186/s12910-015-0014-z. Review.

9.

Public engagement on global health challenges.

Cohen ER, Masum H, Berndtson K, Saunders V, Hadfield T, Panjwani D, Persad DL, Minhas GS, Daar AS, Singh JA, Singer PA.

BMC Public Health. 2008 May 20;8:168. doi: 10.1186/1471-2458-8-168.

10.

Communication in a Human biomonitoring study: Focus group work, public engagement and lessons learnt in 17 European countries.

Exley K, Cano N, Aerts D, Biot P, Casteleyn L, Kolossa-Gehring M, Schwedler G, Castaño A, Angerer J, Koch HM, Esteban M, Schoeters G, Den Hond E, Horvat M, Bloemen L, Knudsen LE, Joas R, Joas A, Dewolf MC, Van de Mieroop E, Katsonouri A, Hadjipanayis A, Cerna M, Krskova A, Becker K, Fiddicke U, Seiwert M, Mørck TA, Rudnai P, Kozepesy S, Cullen E, Kellegher A, Gutleb AC, Fischer ME, Ligocka D, Kamińska J, Namorado S, Reis MF, Lupsa IR, Gurzau AE, Halzlova K, Jajcaj M, Mazej D, Tratnik JS, Huetos O, López A, Berglund M, Larsson K, Sepai O.

Environ Res. 2015 Aug;141:31-41. doi: 10.1016/j.envres.2014.12.003. Epub 2014 Dec 12.

11.

Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya.

Marsh VM, Kamuya DM, Mlamba AM, Williams TN, Molyneux SS.

BMC Med Ethics. 2010 Jul 15;11:13. doi: 10.1186/1472-6939-11-13.

12.

Engaging patients in health research: identifying research priorities through community town halls.

Etchegary H, Bishop L, Street C, Aubrey-Bassler K, Humphries D, Vat LE, Barrett B.

BMC Health Serv Res. 2017 Mar 11;17(1):192. doi: 10.1186/s12913-017-2138-y.

13.

Public knowledge and public trust.

Cunningham-Burley S.

Community Genet. 2006;9(3):204-10. Review.

PMID:
16741351
14.

Attitudes to biotechnology: estimating the opinions of a better-informed public.

Sturgis P, Cooper H, Fife-Schaw C.

New Genet Soc. 2005 Apr;24(1):31-56.

PMID:
16552916
15.

Black African immigrant community leaders' views on participation in genomics research and DNA biobanking.

Buseh AG, Underwood SM, Stevens PE, Townsend L, Kelber ST.

Nurs Outlook. 2013 Jul-Aug;61(4):196-204. doi: 10.1016/j.outlook.2012.10.004. Epub 2012 Dec 4.

PMID:
23219004
16.

Deciding whether to engage the public on health care issues.

Chafe R, Neville D, Rathwell T, Deber R.

Healthc Manage Forum. 2008 Autumn;21(3):24-8.

PMID:
19086482
17.

Online participation in climate change adaptation: A case study of agricultural adaptation measures in Northern Italy.

Bojovic D, Bonzanigo L, Giupponi C, Maziotis A.

J Environ Manage. 2015 Jul 1;157:8-19. doi: 10.1016/j.jenvman.2015.04.001. Epub 2015 Apr 12.

PMID:
25874588
18.

Privacy protection and public goods: building a genetic database for health research in Newfoundland and Labrador.

Kosseim P, Pullman D, Perrot-Daley A, Hodgkinson K, Street C, Rahman P.

J Am Med Inform Assoc. 2013 Jan 1;20(1):38-43. doi: 10.1136/amiajnl-2012-001009. Epub 2012 Aug 2.

19.

An Evaluation of In-Person and Online Engagement in Central Newfoundland.

Wilton P, Neville D, Audas R, Brown H, Chafe R.

Healthc Policy. 2015 Nov;11(2):72-85.

20.

Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review.

Shabani M, Bezuidenhout L, Borry P.

Expert Rev Mol Diagn. 2014 Nov;14(8):1053-65. doi: 10.1586/14737159.2014.961917. Epub 2014 Sep 26. Review.

PMID:
25260013

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