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Items: 1 to 20 of 213


Public attitudes towards the use of primary care patient record data in medical research without consent: a qualitative study.

Robling MR, Hood K, Houston H, Pill R, Fay J, Evans HM.

J Med Ethics. 2004 Feb;30(1):104-9.


Patient and public attitudes towards informed consent models and levels of awareness of Electronic Health Records in the UK.

Riordan F, Papoutsi C, Reed JE, Marston C, Bell D, Majeed A.

Int J Med Inform. 2015 Apr;84(4):237-47. doi: 10.1016/j.ijmedinf.2015.01.008. Epub 2015 Jan 20.


Consent for use of personal information for health research: do people with potentially stigmatizing health conditions and the general public differ in their opinions?

Willison DJ, Steeves V, Charles C, Schwartz L, Ranford J, Agarwal G, Cheng J, Thabane L.

BMC Med Ethics. 2009 Jul 24;10:10. doi: 10.1186/1472-6939-10-10.


Perspectives of Australian adults about protecting the privacy of their health information in statistical databases.

King T, Brankovic L, Gillard P.

Int J Med Inform. 2012 Apr;81(4):279-89. doi: 10.1016/j.ijmedinf.2012.01.005. Epub 2012 Feb 10.


Public good, personal privacy: a citizens' deliberation about using medical information for pharmacoepidemiological research.

Parkin L, Paul C.

J Epidemiol Community Health. 2011 Feb;65(2):150-6. doi: 10.1136/jech.2009.097436. Epub 2009 Nov 29.


Alternatives to project-specific consent for access to personal information for health research: what is the opinion of the Canadian public?

Willison DJ, Schwartz L, Abelson J, Charles C, Swinton M, Northrup D, Thabane L.

J Am Med Inform Assoc. 2007 Nov-Dec;14(6):706-12. Epub 2007 Aug 21.


'Nothing is really safe': a focus group study on the processes of anonymizing and sharing of health data for research purposes.

Haddow G, Bruce A, Sathanandam S, Wyatt JC.

J Eval Clin Pract. 2011 Dec;17(6):1140-6. doi: 10.1111/j.1365-2753.2010.01488.x. Epub 2010 Jul 13.


Written informed consent and selection bias in observational studies using medical records: systematic review.

Kho ME, Duffett M, Willison DJ, Cook DJ, Brouwers MC.

BMJ. 2009 Mar 12;338:b866. doi: 10.1136/bmj.b866. Review.


Patient Perspectives on Sharing Anonymized Personal Health Data Using a Digital System for Dynamic Consent and Research Feedback: A Qualitative Study.

Spencer K, Sanders C, Whitley EA, Lund D, Kaye J, Dixon WG.

J Med Internet Res. 2016 Apr 15;18(4):e66. doi: 10.2196/jmir.5011.


Evaluation of patient reporting of adverse drug reactions to the UK 'Yellow Card Scheme': literature review, descriptive and qualitative analyses, and questionnaire surveys.

Avery AJ, Anderson C, Bond CM, Fortnum H, Gifford A, Hannaford PC, Hazell L, Krska J, Lee AJ, McLernon DJ, Murphy E, Shakir S, Watson MC.

Health Technol Assess. 2011 May;15(20):1-234, iii-iv. doi: 10.3310/hta15200. Review.


Public attitudes regarding the use of residual newborn screening specimens for research.

Botkin JR, Rothwell E, Anderson R, Stark L, Goldenberg A, Lewis M, Burbank M, Wong B.

Pediatrics. 2012 Feb;129(2):231-8. doi: 10.1542/peds.2011-0970. Epub 2012 Jan 16.


Consent, including advanced consent, of older adults to research in care homes: a qualitative study of stakeholders' views in South Wales.

Wood F, Prout H, Bayer A, Duncan D, Nuttall J, Hood K, Butler CC; PAAD Study Team.

Trials. 2013 Aug 9;14:247. doi: 10.1186/1745-6215-14-247.


Eliciting public preferences for healthcare: a systematic review of techniques.

Ryan M, Scott DA, Reeves C, Bate A, van Teijlingen ER, Russell EM, Napper M, Robb CM.

Health Technol Assess. 2001;5(5):1-186.


Public attitudes towards opt-out testing for HIV in primary care: a qualitative study.

Glew S, Pollard A, Hughes L, Llewellyn C.

Br J Gen Pract. 2014 Feb;64(619):e60-6. doi: 10.3399/bjgp14X677103.


Consent, confidentiality, and the Data Protection Act.

Iversen A, Liddell K, Fear N, Hotopf M, Wessely S.

BMJ. 2006 Jan 21;332(7534):165-9. No abstract available.


School-linked sexual health services for young people (SSHYP): a survey and systematic review concerning current models, effectiveness, cost-effectiveness and research opportunities.

Owen J, Carroll C, Cooke J, Formby E, Hayter M, Hirst J, Lloyd Jones M, Stapleton H, Stevenson M, Sutton A.

Health Technol Assess. 2010 Jun;14(30):1-228, iii-iv. doi: 10.3310/hta14300. Review.


Use of electronic patient records for research: views of patients and staff in general practice.

Stevenson F, Lloyd N, Harrington L, Wallace P.

Fam Pract. 2013 Apr;30(2):227-32. doi: 10.1093/fampra/cms069. Epub 2012 Nov 6.

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