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Items: 1 to 20 of 87

1.

Sources of uncertainty and their association with medical decision making: exploring mechanisms in Fanconi anemia.

Hamilton JG, Hutson SP, Moser RP, Kobrin SC, Frohnmayer AE, Alter BP, Han PK.

Ann Behav Med. 2013 Oct;46(2):204-16. doi: 10.1007/s12160-013-9507-5.

PMID:
23637072
2.

The use of haematopoietic stem cell transplantation in Fanconi anaemia patients: a survey of decision making among families in the US and Canada.

Hutson SP, Han PK, Hamilton JG, Rife SC, Al-Rahawan MM, Moser RP, Duty SP, Anand S, Alter BP.

Health Expect. 2015 Oct;18(5):929-41. doi: 10.1111/hex.12066.

3.

Waiting for the next shoe to drop: the experience of parents of children with fanconi anemia.

Zierhut HA, Bartels DM.

J Genet Couns. 2012 Feb;21(1):45-58. doi: 10.1007/s10897-011-9394-5.

PMID:
21805222
4.

Genetic Information-Seeking Behaviors and Knowledge among Family Members and Patients with Inherited Bone Marrow Failure Syndromes.

Hamilton JG, Hutson SP, Frohnmayer AE, Han PK, Peters JA, Carr AG, Alter BP.

J Genet Couns. 2015 Oct;24(5):760-70. doi: 10.1007/s10897-014-9807-3.

6.

More than 10 years after the first 'savior siblings': parental experiences surrounding preimplantation genetic diagnosis.

Zierhut H, MacMillan ML, Wagner JE, Bartels DM.

J Genet Couns. 2013 Oct;22(5):594-602. doi: 10.1007/s10897-013-9591-5.

PMID:
23624741
7.

Cancer risks in Fanconi anemia: findings from the German Fanconi Anemia Registry.

Rosenberg PS, Alter BP, Ebell W.

Haematologica. 2008 Apr;93(4):511-7. doi: 10.3324/haematol.12234.

8.

Speaking of risk, managing uncertainty: decision-making about cholesterol-reducing treatment in general practice.

Kirkegaard P, Risør MB, Edwards A, Junge AG, Thomsen JL.

Qual Prim Care. 2012;20(4):245-52.

PMID:
23113909
9.

Immune reconstitution in patients with Fanconi anemia after allogeneic bone marrow transplantation.

Perlingeiro Beltrame M, Malvezzi M, Bonfim C, Covas DT, Orfao A, Pasquini R.

Cytotherapy. 2014 Jul;16(7):976-89. doi: 10.1016/j.jcyt.2014.02.015.

PMID:
24831839
10.

Diagnosis of Fanconi anemia in patients with bone marrow failure.

Pinto FO, Leblanc T, Chamousset D, Le Roux G, Brethon B, Cassinat B, Larghero J, de Villartay JP, Stoppa-Lyonnet D, Baruchel A, Socié G, Gluckman E, Soulier J.

Haematologica. 2009 Apr;94(4):487-95. doi: 10.3324/haematol.13592.

11.

Perception of cancer and inconsistency in medical information are associated with decisional conflict: a pilot study of men with prostate cancer who undergo active surveillance.

Goh AC, Kowalkowski MA, Bailey DE Jr, Kazer MW, Knight SJ, Latini DM.

BJU Int. 2012 Jul;110(2 Pt 2):E50-6. doi: 10.1111/j.1464-410X.2011.10791.x.

12.

Information-seeking behaviour of nurses: where is information sought and what processes are followed?

O'leary DF, Mhaolrúnaigh SN.

J Adv Nurs. 2012 Feb;68(2):379-90. doi: 10.1111/j.1365-2648.2011.05750.x.

13.

Predictive modelling: parents' decision making to use online child health information to increase their understanding and/or diagnose or treat their child's health.

Walsh AM, Hyde MK, Hamilton K, White KM.

BMC Med Inform Decis Mak. 2012 Dec 10;12:144. doi: 10.1186/1472-6947-12-144.

14.

Factors that influence parental decisions to participate in clinical research: consenters vs nonconsenters.

Hoberman A, Shaikh N, Bhatnagar S, Haralam MA, Kearney DH, Colborn DK, Kienholz ML, Wang L, Bunker CH, Keren R, Carpenter MA, Greenfield SP, Pohl HG, Mathews R, Moxey-Mims M, Chesney RW.

JAMA Pediatr. 2013 Jun;167(6):561-6. doi: 10.1001/jamapediatrics.2013.1050.

15.

Fertility recovery and pregnancy after allogeneic hematopoietic stem cell transplantation in Fanconi anemia patients.

Nabhan SK, Bitencourt MA, Duval M, Abecasis M, Dufour C, Boudjedir K, Rocha V, Socié G, Passweg J, Goi K, Sanders J, Snowden J, Yabe H, Pasquini R, Gluckman E; Aplastic Anaemia Working Party, EBMT..

Haematologica. 2010 Oct;95(10):1783-7. doi: 10.3324/haematol.2010.023929.

16.

Gene therapy for fanconi anemia.

Croop JM.

Curr Hematol Rep. 2003 Jul;2(4):335-40. Review.

PMID:
12901331
17.

Therapy preference and decision-making among patients with severe sickle cell anemia and their families.

Hankins J, Hinds P, Day S, Carroll Y, Li CS, Garvie P, Wang W.

Pediatr Blood Cancer. 2007 Jun 15;48(7):705-10.

PMID:
16732581
18.
19.

Parental decision-making for the varicella vaccine.

Niederhauser VP, Baruffi G, Heck R.

J Pediatr Health Care. 2001 Sep-Oct;15(5):236-43.

PMID:
11562641
20.

Oral leukoplakia in patients with Fanconi anaemia without hematopoietic stem cell transplantation.

Grein Cavalcanti L, Lyko KF, Araújo RL, Amenábar JM, Bonfim C, Torres-Pereira CC.

Pediatr Blood Cancer. 2015 Jun;62(6):1024-6. doi: 10.1002/pbc.25417.

PMID:
25682760

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