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Items: 1 to 20 of 129

1.

Barriers to hematopoietic cell transplantation clinical trial participation of african american and black youth with sickle cell disease and their parents.

Omondi NA, Ferguson SE, Majhail NS, Denzen EM, Buchanan GR, Haight AE, Labotka RJ, Rizzo JD, Murphy EA.

J Pediatr Hematol Oncol. 2013 May;35(4):289-98. doi: 10.1097/MPH.0b013e31828d5e6a.

2.

Barriers to conceiving sibling donors for sickle cell disease: perspectives from patients and parents.

Jae GA, Lewkowitz AK, Yang JC, Shen L, Rahman A, Del Toro G.

Ethn Health. 2011 Aug-Oct;16(4-5):431-45. doi: 10.1080/13557858.2011.558619.

PMID:
21797728
3.

Parental attitudes toward research participation in pediatric sickle cell disease.

Liem RI, Cole AH, Pelligra SA, Mason M, Thompson AA.

Pediatr Blood Cancer. 2010 Jul 15;55(1):129-33. doi: 10.1002/pbc.22450.

PMID:
20213846
4.

Health-related quality of life after allogeneic hematopoietic stem cell transplantation for sickle cell disease.

Bhatia M, Kolva E, Cimini L, Jin Z, Satwani P, Savone M, George D, Garvin J, Paz ML, Briamonte C, Cruz-Arrieta E, Sands S.

Biol Blood Marrow Transplant. 2015 Apr;21(4):666-72. doi: 10.1016/j.bbmt.2014.12.007. Epub 2015 Jan 2.

5.

Awareness of sickle cell among people of reproductive age: Dominicans and African Americans in northern Manhattan.

Siddiqui S, Schunk K, Batista M, Adames F, Ayala P, Stix B, Rodriguez J, McCord M, Green NS.

J Urban Health. 2012 Feb;89(1):53-8. doi: 10.1007/s11524-011-9618-x.

6.
7.

Living with sickle cell disease: traversing 'race' and identity.

Royal CD, Jonassaint CR, Jonassaint JC, De Castro LM.

Ethn Health. 2011 Aug-Oct;16(4-5):389-404. doi: 10.1080/13557858.2011.563283.

PMID:
21797725
8.

Health status and healthcare use in a national sample of children with sickle cell disease.

Boulet SL, Yanni EA, Creary MS, Olney RS.

Am J Prev Med. 2010 Apr;38(4 Suppl):S528-35. doi: 10.1016/j.amepre.2010.01.003.

PMID:
20331954
9.

Exploring barriers and facilitators to clinical trial enrollment in the context of sickle cell anemia and hydroxyurea.

Lebensburger JD, Sidonio RF, Debaun MR, Safford MM, Howard TH, Scarinci IC.

Pediatr Blood Cancer. 2013 Aug;60(8):1333-7. doi: 10.1002/pbc.24486. Epub 2013 Feb 15.

10.

Clinical Trial Decision Making in Pediatric Sickle Cell Disease: A Qualitative Study of Perceived Benefits and Barriers to Participation.

Patterson CA, Chavez V, Mondestin V, Deatrick J, Li Y, Barakat LP.

J Pediatr Hematol Oncol. 2015 Aug;37(6):415-22. doi: 10.1097/MPH.0000000000000216.

PMID:
25072368
11.

Reproductive attitudes and behaviors in people with sickle cell disease or sickle cell trait: a qualitative interpretive meta-synthesis.

Smith M, Aguirre RT.

Soc Work Health Care. 2012;51(9):757-79. doi: 10.1080/00981389.2012.693580. Review.

PMID:
23078010
12.

Attitudes and beliefs of African-Americans toward genetics, genetic testing, and sickle cell disease education and awareness.

Long KA, Thomas SB, Grubs RE, Gettig EA, Krishnamurti L.

J Genet Couns. 2011 Dec;20(6):572-92. doi: 10.1007/s10897-011-9388-3. Epub 2011 Jul 12.

PMID:
21748660
13.

Participation in clinical research: perspectives of adult patients and parents of pediatric patients undergoing hematopoietic stem cell transplantation.

Keusch F, Rao R, Chang L, Lepkowski J, Reddy P, Choi SW.

Biol Blood Marrow Transplant. 2014 Oct;20(10):1604-11. doi: 10.1016/j.bbmt.2014.06.020. Epub 2014 Jun 24.

14.

An educational symposium for patients with sickle cell disease and their families: results from surveys of knowledge and factors influencing decisions about hematopoietic stem cell transplant.

Thompson AL, Bridley A, Twohy E, Dioguardi J, Sande J, Hsu LL, Kamani N, Meier ER.

Pediatr Blood Cancer. 2013 Dec;60(12):1946-51. doi: 10.1002/pbc.24704. Epub 2013 Jul 30.

PMID:
23900784
15.

Inadequate community knowledge about sickle cell disease among African-American women.

Boyd JH, Watkins AR, Price CL, Fleming F, DeBaun MR.

J Natl Med Assoc. 2005 Jan;97(1):62-7.

16.

Stem cell transplant for children with sickle cell anemia: parent and patient interest.

Roth M, Krystal J, Manwani D, Driscoll C, Ricafort R.

Biol Blood Marrow Transplant. 2012 Nov;18(11):1709-15. doi: 10.1016/j.bbmt.2012.05.013. Epub 2012 May 29.

17.

How patients' self-disclosure about sickle cell pain episodes to significant others relates to living with sickle cell disease.

Derlega VJ, Janda LH, Miranda J, Chen IA, Goodman BM 3rd, Smith W.

Pain Med. 2014 Sep;15(9):1496-507. doi: 10.1111/pme.12535. Epub 2014 Aug 26.

PMID:
25159869
18.

Bone marrow transplantation in sickle cell anemia.

Hoppe CC, Walters MC.

Curr Opin Oncol. 2001 Mar;13(2):85-90. Review.

PMID:
11224704
19.

Exploring family communication about sickle cell disease in adolescence.

Graff JC, Hankins J, Graves RJ, Robitaille KY, Roberts R, Cejda K, Hardy BT, Johnson M, Porter JS.

J Pediatr Oncol Nurs. 2012 Nov-Dec;29(6):323-36. doi: 10.1177/1043454212456086. Epub 2012 Sep 19.

PMID:
22992426
20.

Reproductive health choices for young adults with sickle cell disease or trait: randomized controlled trial immediate posttest effects.

Wilkie DJ, Gallo AM, Yao Y, Molokie RE, Stahl C, Hershberger PE, Zhao Z, Suarez ML, Labotka RJ, Johnson B, Angulo R, Angulo V, Carrasco J, Shuey D, Pelligra S, Wang E, Rogers DT, Thompson AA.

Nurs Res. 2013 Sep-Oct;62(5):352-61. doi: 10.1097/NNR.0b013e3182a0316b.

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