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Items: 1 to 20 of 118

1.

Practices and policies of clinical exome sequencing providers: analysis and implications.

Jamal SM, Yu JH, Chong JX, Dent KM, Conta JH, Tabor HK, Bamshad MJ.

Am J Med Genet A. 2013 May;161A(5):935-50. doi: 10.1002/ajmg.a.35942.

2.

Genomics really gets personal: how exome and whole genome sequencing challenge the ethical framework of human genetics research.

Tabor HK, Berkman BE, Hull SC, Bamshad MJ.

Am J Med Genet A. 2011 Dec;155A(12):2916-24. doi: 10.1002/ajmg.a.34357. Epub 2011 Oct 28.

3.

Ethical and legal implications of whole genome and whole exome sequencing in African populations.

Wright GE, Koornhof PG, Adeyemo AA, Tiffin N.

BMC Med Ethics. 2013 May 28;14:21. doi: 10.1186/1472-6939-14-21.

4.

Use of metaphors about exome and whole genome sequencing.

Nelson SC, Crouch JM, Bamshad MJ, Tabor HK, Yu JH.

Am J Med Genet A. 2016 May;170A(5):1127-33. doi: 10.1002/ajmg.a.37571. Epub 2016 Jan 29.

PMID:
26822973
5.
6.

Self-guided management of exome and whole-genome sequencing results: changing the results return model.

Yu JH, Jamal SM, Tabor HK, Bamshad MJ.

Genet Med. 2013 Sep;15(9):684-90. doi: 10.1038/gim.2013.35. Epub 2013 Apr 25.

7.

Attitudes of African Americans toward return of results from exome and whole genome sequencing.

Yu JH, Crouch J, Jamal SM, Tabor HK, Bamshad MJ.

Am J Med Genet A. 2013 May;161A(5):1064-72. doi: 10.1002/ajmg.a.35914.

8.

Attitudes of non-African American focus group participants toward return of results from exome and whole genome sequencing.

Yu JH, Crouch J, Jamal SM, Bamshad MJ, Tabor HK.

Am J Med Genet A. 2014 Sep;164A(9):2153-60. doi: 10.1002/ajmg.a.36610. Epub 2014 May 20.

9.

Motivations, concerns and preferences of personal genome sequencing research participants: Baseline findings from the HealthSeq project.

Sanderson SC, Linderman MD, Suckiel SA, Diaz GA, Zinberg RE, Ferryman K, Wasserstein M, Kasarskis A, Schadt EE.

Eur J Hum Genet. 2016 Jan;24(1):14-20. doi: 10.1038/ejhg.2015.118. Epub 2015 Jun 3. Erratum in: Eur J Hum Genet. 2016 Jan;24(1):153.

10.

The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.

Henderson GE, Wolf SM, Kuczynski KJ, Joffe S, Sharp RR, Parsons DW, Knoppers BM, Yu JH, Appelbaum PS.

J Law Med Ethics. 2014 Fall;42(3):344-55. doi: 10.1111/jlme.12151.

11.

Points to consider for informed consent for genome/exome sequencing.

ACMG Board of Directors.

Genet Med. 2013 Sep;15(9):748-9. doi: 10.1038/gim.2013.94. Epub 2013 Aug 22. No abstract available.

PMID:
23970068
12.

Ethical issues raised by whole genome sequencing.

Pinxten W, Howard HC.

Best Pract Res Clin Gastroenterol. 2014 Apr;28(2):269-79. doi: 10.1016/j.bpg.2014.02.004. Epub 2014 Mar 12. Review.

PMID:
24810188
13.

Informed consent in the nursing skills laboratory: an exploratory study.

Redford DS, Klein T.

J Nurs Educ. 2003 Mar;42(3):131-3. No abstract available.

PMID:
12661714
14.

[The origin of informed consent].

Mallardi V.

Acta Otorhinolaryngol Ital. 2005 Oct;25(5):312-27. Italian.

PMID:
16602332
15.

What physicians think about the need for informed consent for communicating the risk of cancer from low-dose radiation.

Karsli T, Kalra MK, Self JL, Rosenfeld JA, Butler S, Simoneaux S.

Pediatr Radiol. 2009 Sep;39(9):917-25. doi: 10.1007/s00247-009-1307-5. Epub 2009 Jun 26.

PMID:
19557405
17.

Attitudes of genetics professionals toward the return of incidental results from exome and whole-genome sequencing.

Yu JH, Harrell TM, Jamal SM, Tabor HK, Bamshad MJ.

Am J Hum Genet. 2014 Jul 3;95(1):77-84. doi: 10.1016/j.ajhg.2014.06.004. Epub 2014 Jun 26.

18.

Stakeholders' opinions on the implementation of pediatric whole exome sequencing: implications for informed consent.

Levenseller BL, Soucier DJ, Miller VA, Harris D, Conway L, Bernhardt BA.

J Genet Couns. 2014 Aug;23(4):552-65. doi: 10.1007/s10897-013-9626-y. Epub 2013 Jul 12.

19.

HIV antibody testing: the gap between policy and practice.

Pomeroy C, Sandry J, Moldow DG.

J Acquir Immune Defic Syndr. 1994 Aug;7(8):816-22.

PMID:
8021815
20.

Informed consent for exome sequencing research in families with genetic disease: the emerging issue of incidental findings.

Bergner AL, Bollinger J, Raraigh KS, Tichnell C, Murray B, Blout CL, Telegrafi AB, James CA.

Am J Med Genet A. 2014 Nov;164A(11):2745-52. doi: 10.1002/ajmg.a.36706. Epub 2014 Sep 22.

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